Tag Archive for: Advocacy

What Caught Our Eye: ACA Uncertainty, Coping Post-Treatment, Biden’s New Research Charity, Survivorship Care Plans

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A new study by the Associated Press-NORC Center for Public Affairs Research found that only 16% of Americans feel the ACA should be repealed immediately. | Last weekend, Republican members of Congress gathered in Philadelphia, PA for a party retreat to address some of the most pressing topics. However, one topic remains without consensus is how they will approach the repeal and replacement of the Affordable Care Act.

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ACA Update | January 26, 2017: Watch Our ACA Webinar

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President Donald Trump and the Republican leadership in Congress will soon be making good on their campaign promise to repeal the Affordable Care Act (ACA). While replacement plans have been proposed, there is no consensus on an alternative.

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CPAT Members’ Op-ed: ACA Replacement Must Include Affordable Insurance for Preexisting Conditions

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NCCS’ Cancer Policy & Advocacy Team (CPAT) members Jen Campisano and Ben Fishman wrote a powerful op-ed for STAT News. Both diagnosed with cancer in their early thirties, they each have endured well over a million dollars in surgeries, radiation, and chemotherapy to treat their illness. Without the preexisting conditions and lifetime limit protections in […]

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Guest Post: Mesothelioma Awareness and the Danger of Asbestos Exposure

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Ten years ago, I was just another woman, wife, and mom-to-be. I was anxiously and happily awaiting the birth of my daughter when I began experiencing symptoms that seemed over the top for pregnancy. Just 3 ½ months after she was born, I found out the truth—that cancer had been growing inside my body for decades, and I had no idea.

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NCCS Presents the Inaugural Ellen Stovall Award to Douglas W. Blayney, MD, FACP (Video)

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At the National Coalition for Cancer Survivorship’s (NCCS) 30th Anniversary Reception on October 13, 2016, NCCS presented the inaugural Ellen Stovall Award for Leadership in Patient-Centered Care. The award was created to honor former NCCS CEO Ellen Stovall, who led the organization for more than twenty years and passed away in January 2016 from complications […]

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Highlights from the 2016 CPAT Symposium and Hill Day

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In June, over 50 patient advocates gathered in Washington, D.C. to take part in the NCCS 2016 Cancer Policy & Advocacy Team (CPAT) Symposium and Hill Day. Days One and Two Attendees heard and participated in a number of informational presentations, including “Current Issues in Cancer Care: The Economics of the Cancer Care System,” “Communications […]

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Join the NCCS Cancer Policy & Advocacy Team: Empowering Those Touched by Cancer to Change Cancer Care

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If you have ever wanted to use your cancer journey—either as a survivor or as a caregiver—to make a difference, you are invited to join the NCCS Cancer Policy & Advocacy Team (CPAT)!  Driven by the energy and experiences of the CPAT Steering Committee, CPAT provides cancer survivors and caregivers with tools and training that […]

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Guest Video: Meghan Gutierrez of LRF Discusses Progress in Lymphoma Treatment and Advocacy

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This post is part of our 20 Years Later blog series which examines progress in advancing the principles in the 1995 NCCS publication Imperatives for Quality Cancer Care: Access, Advocacy, Action, and Accountability (Imperatives). The Twelfth Principle states, “Cancer survivors, health care providers and other key constituency groups must work together to increase public awareness; educate consumers, professionals, and […]

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Join Us: “Patient-Care Team Communication: How Can the Survivor Prepare to Manage a Lifetime of Care?” Webinar

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The National Coalition for Cancer Survivorship is hosting a free webinar titled, “Patient-Care Team Communication: How Can the Survivor Prepare to Manage a Lifetime of Care?” on Wednesday, April 29 from 3:00pm-4:30pm EDT as part of our Cancer Policy Advocate Training (CPAT) program. The CPAT program aims to train patient advocates on pressing cancer policy issues. […]

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Honoring Phyllis Torda, a Fierce Advocate for Patient-Centered Health Care

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The National Coalition for Cancer Survivorship (NCCS), notes with sadness the passing of Phyllis Torda, a fierce advocate for patient-centered health care for more than 25 years. We at NCCS first came to know Phyllis when she was with Families USA as their Director of their Health and Social policies. Subsequently, we were very fortunate […]

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Link to: Survivorship Champions

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Survivorship Champions is a program for all clinicians and researchers, both oncology and primary care, who are interested in improving survivorship care and primary care’s role in caring for cancer survivors.

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Link to: Cancer Policy and Advocacy Team (CPAT)

Join CPAT

The NCCS Cancer Policy & Advocacy Team (CPAT) is a program for survivors and caregivers to learn about pressing policy issues that affect quality cancer care in order to be engaged as advocates in public policy around the needs of cancer survivors.

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Link to: Survivor Stories

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NCCS represents the millions of Americans who share a common experience – living with, through and beyond a cancer diagnosis. By sharing your story of how you have been touched by cancer, you are supporting the national cancer survivorship movement.

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