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You are here: Home1 / Policy2 / Health Equity

Health Equity

Cancer Nation represents the millions of Americans who live with, through and beyond a cancer diagnosis. But the cancer experience is not the same for everyone. Gains in cancer survival due to advances in treatment and screening are not shared by all who are diagnosed with cancer.

Outcomes vary significantly based on a number of factors, including race/ethnicity, socioeconomic status, health insurance status, and geographic location. According to researchers from the American Cancer Society, a quarter of the approximately 600,000 annual cancer deaths in the United States could be prevented if everyone had access to the same prevention, screening, and treatment.

Cancer Nation works on policy efforts to address health equity and reducing disparities in outcomes. The problem of health equity is complex, as some of the factors that lead to inequity are deeply rooted in social determinants of health and systemic and institutional barriers. Many of the policies that would improve access to care  would contribute to reducing disparities. The Affordable Care Act (ACA), including its expansion of Medicaid, has reduced disparities in access to care and mortality rates, compared to states that chose not to expand Medicaid.

“Historically, racial/ethnic minorities, the poor, and the uninsured are less likely to receive evidence‐based cancer prevention and screening, and they are more likely to be diagnosed with advanced disease. Racial/ethnic minorities, the poor, and the uninsured are less likely to receive effective cancer treatment and have poorer survival after diagnosis. A substantial proportion of insured Americans are underinsured, and their access to high‐quality care is also limited. These underinsured populations are also less likely to receive evidence‐based preventive care and, when diagnosed with cancer, they are less likely to receive optimal care, including cancer surgery, radiation therapy, and systemic therapies, and they have poorer survival after a cancer diagnosis. Although some disparities in cancer care by race are decreasing, disparities by socioeconomic status and state of residence are increasing.”Yabroff, K Robin et al. “Minimizing the burden of cancer in the United States: Goals for a high-performing health care system.” CA: a cancer journal for clinicians vol. 69,3 (2019): 166-183. doi:10.3322/caac.21556
NCCS News Cancer Policy Matters

Patient and Consumer Groups Urge Federal Court to Issue Preliminary Injunction Against Short-Term Insurance Rule

October 26, 2018
U.S. District Court Judge Richard J. Leon is expected to hear oral arguments today in Washington, D.C., from groups challenging a rule implementing changes to short-term, limited-duration (STLD) insurance plans. The hearing in the case Association for Community Affiliated Plans v. United States Department of Treasury will allow the plaintiffs to explain the devastating impact patients could face under the rule if bare-bones plans that do not comply [...]
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NCCS Issue Statement HHS CMS

NCCS Expresses Reservations Regarding Effectiveness and Impact of New CMS Drug Pricing Proposal

October 22, 2018
A focus of the National Coalition for Cancer Survivorship (NCCS) since it was founded over thirty years ago continues to be empowering patients to make informed decisions, and this includes transparency about the cost of health care. The Centers for Medicare & Medicaid Services (CMS) recently proposed that list prices be included in direct-to-consumer (DTC) television advertisements of drugs that are reimbursed by Medicare and Medicaid. [...]
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Health Care Roundup: Drug Pricing in TV Ads; Even with Insurance, Serious Illness Can Mean Financial Distress; Fertility in Young Survivors; More

October 19, 2018
HHS Proposes Rule Requiring Drug Pricing in TV Ads – On Monday, Department of Health and Human Services (HHS) Secretary Alex Azar announced that HHS introduced a proposed rule to require direct-to-consumer television advertisements for prescription drugs include pricing information. According to the proposed rule, drugs paid for by Medicare or Medicaid must include the list price of the drug if it costs more than $35 for a month’s supply [...]
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Health Care Roundup: NCCS on Proposed OPPS Changes; Bipartisan Proposal to End ‘Surprise Billing’; Medicaid Work Req’s; Financial Toxicity Survey; More

September 28, 2018
HEALTH CARE HIGHLIGHTS—NCCS submitted a letter to the Centers for Medicare and Medicaid Services (CMS) on the proposed update to the hospital outpatient prospective payment system, known as OPPS, for calendar year 2019. In the letter, NCCS addressed the proposed “site neutral” payments, which would reduce patient cost-sharing but could have other unintended consequences for patient access. NCCS also commented on [...]
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NCCS Policy Comments FDA bldg

NCCS Joins Cancer Leadership Council Recommendations to FDA Regarding the Biosimilar Action Plan

September 26, 2018
NCCS joined with other organizations of the Cancer Leadership Council (CLC) in commenting on the FDA Biosimilar Action Plan (BAP). The comment letter commended the FDA for the development of a plan that balances both innovation and competition. The letter stated that these products provide significant benefits to cancer patients, but that they also come at a significant expense to patients and the health care system. [...]
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https://canceradvocacy.org/wp-content/uploads/2018/10/NCCS-Policy-Comments-FDA-bldg.jpg 600 1200 actualizedevs https://canceradvocacy.org/wp-content/uploads/CancerNation_Logo_40Yrs_Stacked_TwoColor-scaled.png actualizedevs2018-09-26 13:26:122020-07-06 10:05:29NCCS Joins Cancer Leadership Council Recommendations to FDA Regarding the Biosimilar Action Plan
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Health Care Roundup: ‘Misleading’ Pre-Existing Conditions Bill; Clinical Trials Lack Black Patients; ‘Cancer Coaching’ Ethics; Young Adult Cancer Advocates

September 21, 2018
NCCS and 30+ Patient Orgs Raise Concerns Over Senate Pre-Ex Bill — This week, NCCS and more than 30 other patient advocacy organizations submitted a letter to Senator Tillis (R-NC) detailing why his bill does not go far enough in protecting pre-existing conditions despite his intentions. The bill title, “Ensuring Coverage for Patients with Pre-Existing Conditions Act” (S.3388), is misleading and, if passed, would not provide adequate coverage [...]
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Health Care Roundup: Maryland, Advocacy Groups File Suits to Protect ACA; Emergency Resources for Survivors; False Hope in Precision Medicine; More

September 14, 2018
This week, the US Census Bureau released health insurance coverage estimates for 2017. Between 2016 and 2017, the overall uninsured rate did not change significantly, but 14 states experienced an increase in the number of uninsured individuals, due to poverty status or whether the state expanded Medicaid. While coverage numbers dropped in many states, the Trump Administration continues to cut ACA navigator funding, which [...]
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Health Care Roundup: Kasich on Medicaid Expansion Success; New Cervical Cancer Screening Choices; a Nurse’s ‘Gut Feeling’; and More

August 24, 2018
Court Throws Out KY Governor’s Medicaid Countersuit — Kentucky Governor Matt Bevin (R) lost a lawsuit against Medicaid recipients who are challenging the Governor’s attempt to implement Medicaid work requirements. Earlier this year, Bevin was also unsuccessful in moving forward with his plans in changing components of Medicaid expansion in the state when a federal court sided with the same Medicaid recipients. [...]
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Image with Orchid background. Text reads: Cancer Nation Stovall Awards | 2026 Honorees | Patient Advocate Award - Erin Geddis Cummings, MSW, LCSW | Health Care Professional Award - Bradley J. Zebrack, PHD, MSW, MPH

Cancer Nation to Recognize Erin Cummings and Bradley J. Zebrack with 2026 Ellen L. Stovall Award

September 17, 2026
Cancer Nation is proud to announce the recipients of the 2026 Ellen L. Stovall Award for Innovation in Patient-Centered Cancer Care: …
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Cancer Nation Releases Results from Survey of 600 Clinicians on Survivorship Care

September 16, 2026
Since 2019, Cancer Nation has conducted a Survivorship Survey of cancer survivors and caregivers to learn about their experiences with…
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Michael Milken to Receive Cancer Nation’s Inaugural March Forward Award

September 2, 2026
Philanthropist and cancer survivor Michael Milken will receive the inaugural March Forward Award at Cancer Nation's 40th Anniversary…
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Harmar Brereton, MD

Founder
Northeast Regional Cancer Institute

 

“Perhaps one of the most impactful collaborations in Dr. Brereton’s extraordinary career remains his early work and long friendship with Ellen Stovall. Through him, and in turn through the thousands of lives he has touched, Ellen’s work continues, and her mission lives on.”

—Karen M. Saunders
President, Northeast Regional Cancer Institute