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Cancer Nation (Formerly NCCS)
  • About

        • About Us

        • Cancer Nation is the oldest cancer survivor-led non-profit organization in America. We advocate for quality cancer care for all touched by cancer.

        • About Cancer Nation

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        • What is Advocacy?Learn about the different types of cancer advocacy, from personal advocacy to public interest advocacy.
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    • Cancer Nation News Blog
    • Advocate SpotlightEach month, Cancer Nation highlights a cancer survivorship advocate, sharing their story and the work they do in their communities.
    • Policy CommentsRead Cancer Nation’s comments to Congress, HHS, and other federal policymakers in Washington, DC on proposed rules and legislation.
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    • Newsletter: Cancer Nation News
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        • Policy

        • Public policy is government action, in the form of legislation, regulation, funding, and other actions. Public policy affects people with cancer and the cancer care system in many ways.

        • Our Policy Priorities

        • Quality Cancer CareQuality cancer care is essential for patients. Learn how Cancer Nation and others define quality.
        • Access to CareCancer Nation believes cancer care and clinical trials should be affordable and accessible to everyone.
        • Health EquityThe cancer experience is not the same for everyone. Cancer Nation works on policy efforts to reduce disparities in outcomes.

        • Current Issues

        • Protecting Access to Medicaid for Cancer Survivors
        • Comprehensive Cancer Survivorship Act (CCSA)The CCSA is a large comprehensive bill introduced in Congress that aims to improve quality of care in all stages of a diagnosis.
        • Cancer Care Planning and Communications Act (CCPCA)CCPCA is a bill that would provide a billable Medicare service code for cancer care planning.
        • DIEP Flap AccessCancer Nation advocates for protection of access to DIEP Flap Breast Reconstruction Surgery for all breast cancer survivors.
        • Policy CommentsRead Cancer Nation’s comments to Congress, HHS, and other federal policymakers in Washington, DC on proposed rules and legislation.
        • Issue StatementsRead Cancer Nation statements on pressing issues and developments in Washington affecting cancer survivors and their families.
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        • Get Involved

        • Whether you’re new to cancer advocacy or already have experience as an advocate, there are numerous ways you can get involved with Cancer Nation.

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        • Cancer Nation conducts an annual Cancer Nation Survivorship Survey, in partnership with Edge Research, to explore the cancer patient and survivor journey. This study captures a range of perspectives to better understand how Cancer Nation can support its mission to advocate for quality cancer care for all.

        • Surveys by Year

        • Clinician Perspective (2026)
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        • 2023 Survivorship SurveyThe 2023 Survey explored the caregiver experience for the first time, and features new data on the effect of cancer treatment on employment.
        • 2022 Survivorship SurveyThe 2022 Survey found significant disparities in cancer care that impact people of color, young adults, women, and those with metastatic cancer, at higher rates.
        • 2021 Survivorship SurveyThe 2021 Survey demonstrated that when patients receive quality care, have excellent support, and have financial resources, they are more likely to have positive outcomes.
        • 2020 Survivorship SurveyIn the 2020 Survey, survivors reported that their care team is not helpful at addressing some common side effects of their cancer such as fatigue, anxiety, and depression.
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        • The Cancer Survivorship Checklist is designed to be a simple, straightforward tool patients and caregivers can use as a guide for information critical to their care wherever they are on the cancer care continuum.

        • Start Your Cancer Survivorship Checklist
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        • Survivorship ResourcesA collection of resources that provide information about navigating the cancer journey.
        • Cancer RehabilitationA supportive health care service that helps improve a person’s functioning during and after cancer treatment.
        • Integrative OncologyA field that combines traditional cancer treatments with therapies that support a person’s natural healing ability.
        • Palliative CareSpecialized medical care for people living with a serious illness that provides relief from the symptoms and stress to improve their quality of life.
        • Cognitive HealingA resource to support cognitive functioning after cancer treatment. Includes cognitive training strategies and tools for both adults and children.
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        • Resources

        • Cancer Nation provides a wide variety of resources for patients, caregivers, and health care professionals.

        • Resources for Survivors and Caregivers

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  • Events
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News

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WCOE: FDA News, Medical Debt, the ACA, and Honoring Jessie Gruman

January 9, 2015
https://twitter.com/ElaineSchattner/status/553203989940928512 https://twitter.com/KaiserFamFound/status/553214546643808256 htt…
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Jessie Gruman

The National Coalition for Cancer Survivorship Establishes the Jessie Gruman Patient Engagement Award

January 8, 2015
For more than twenty years, the National Coalition for Cancer Survivorship (NCCS) had the privilege of adapting our friend and…
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https://canceradvocacy.org/wp-content/uploads/2013/10/Jessie-Gruman-scaled.jpg 2560 1707 actualizedevs https://canceradvocacy.org/wp-content/uploads/CancerNation_Logo_40Yrs_Stacked_TwoColor-scaled.png actualizedevs2015-01-08 10:44:292020-12-31 09:45:36The National Coalition for Cancer Survivorship Establishes the Jessie Gruman Patient Engagement Award
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The Year in Cancer Policy

January 5, 2015
Thank you for making the first year of our blog a success. To celebrate, we're looking back at the meaningful cancer and health policy…
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0 0 actualizedevs https://canceradvocacy.org/wp-content/uploads/CancerNation_Logo_40Yrs_Stacked_TwoColor-scaled.png actualizedevs2015-01-05 17:49:072020-12-31 12:42:29The Year in Cancer Policy
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WCOE: Warlike Metaphors, a Report out of the San Antonio Breast Cancer Symposium, Discussing Costs, and Other News

December 19, 2014
The stories that caught our eye this week included an article that points out the use of warlike metaphors to describe one’s experience…
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https://canceradvocacy.org/wp-content/uploads/2012/12/NCCS_Starburst_Thumbnail.jpg 125 125 actualizedevs https://canceradvocacy.org/wp-content/uploads/CancerNation_Logo_40Yrs_Stacked_TwoColor-scaled.png actualizedevs2014-12-19 17:19:002014-12-19 17:19:00WCOE: Warlike Metaphors, a Report out of the San Antonio Breast Cancer Symposium, Discussing Costs, and Other News
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WCOE: Cost of Cancer Care, Adopting a Shorter Course of Treatment for Some Breast Cancer Patients, and Lung Cancer Screening

December 12, 2014
In “The Punishing Cost of Cancer Care,” Dr. Mikkael Sekeres describes the difficult conversations he has with patients regarding…
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https://canceradvocacy.org/wp-content/uploads/2012/12/NCCS_Starburst_Thumbnail.jpg 125 125 actualizedevs https://canceradvocacy.org/wp-content/uploads/CancerNation_Logo_40Yrs_Stacked_TwoColor-scaled.png actualizedevs2014-12-12 17:34:042014-12-12 17:34:04WCOE: Cost of Cancer Care, Adopting a Shorter Course of Treatment for Some Breast Cancer Patients, and Lung Cancer Screening
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Guest Post: Are Right to Try Laws a Good Idea?

December 10, 2014
Are right to try laws a good idea?  During 2014, they began appearing throughout the country, first in Colorado, then in Missouri…
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Blood Cancer Programs

We’re Going Digital: Last Week to Order Cancer Survival Toolbox – Blood Cancer Programs in Audio CD

December 9, 2014
TIME’S RUNNING OUT: Cancer Survival Toolbox – Blood Cancer Programs – Free Shipping on Bulk Audio CD Orders The National Coalition…
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https://canceradvocacy.org/wp-content/uploads/blood-cancer-programs.jpg 1030 1030 actualizedevs https://canceradvocacy.org/wp-content/uploads/CancerNation_Logo_40Yrs_Stacked_TwoColor-scaled.png actualizedevs2014-12-09 11:55:242020-12-30 09:36:49We’re Going Digital: Last Week to Order Cancer Survival Toolbox – Blood Cancer Programs in Audio CD
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NCCS Policy Comments: Recommending Cancer Survivorship as a Topic for FDA Patient-Focused Drug Development Meetings

December 9, 2014
Last week, NCCS submitted comments to the U.S. Food and Drug Administration (FDA) regarding the series of patient-focused drug development…
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https://canceradvocacy.org/wp-content/uploads/2012/12/Dome_Thumbnail_starburst.png 125 125 actualizedevs https://canceradvocacy.org/wp-content/uploads/CancerNation_Logo_40Yrs_Stacked_TwoColor-scaled.png actualizedevs2014-12-09 09:54:082020-10-21 15:22:00NCCS Policy Comments: Recommending Cancer Survivorship as a Topic for FDA Patient-Focused Drug Development Meetings
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News

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Latest News

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New Research Links Survivorship Care Plans to Longer Lives. So Why Do So Few Survivors Get One?

October 22, 2026
We have said it for years: when treatment ends, survivors need a plan. A written record of the care we received. A roadmap for what…
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https://canceradvocacy.org/wp-content/uploads/doctor-patient-care-plan.jpg 675 1200 NCCS Staff https://canceradvocacy.org/wp-content/uploads/CancerNation_Logo_40Yrs_Stacked_TwoColor-scaled.png NCCS Staff2026-10-22 12:38:192026-10-22 13:35:52New Research Links Survivorship Care Plans to Longer Lives. So Why Do So Few Survivors Get One?

Ringing the Bell Is Not the Finish Line: Desa-Rhea Jefferson on What Cancer Survivors Need Next

September 24, 2026
Desa-Rhea Jefferson survived liver cancer at 3 and thyroid cancer as an adult. She says ringing the bell is a starting point, not a finish line. Read more.
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https://canceradvocacy.org/wp-content/uploads/Desa-Rhea-Jefferson_-Advocate-Spotlight-Blog-Banner.png 600 1200 Elleni https://canceradvocacy.org/wp-content/uploads/CancerNation_Logo_40Yrs_Stacked_TwoColor-scaled.png Elleni2026-09-24 11:10:172026-09-24 11:10:17Ringing the Bell Is Not the Finish Line: Desa-Rhea Jefferson on What Cancer Survivors Need Next
Image with Orchid background. Text reads: Cancer Nation Stovall Awards | 2026 Honorees | Patient Advocate Award - Erin Geddis Cummings, MSW, LCSW | Health Care Professional Award - Bradley J. Zebrack, PHD, MSW, MPH

Cancer Nation to Recognize Erin Cummings and Bradley J. Zebrack with 2026 Ellen L. Stovall Award

September 17, 2026
Cancer Nation is proud to announce the recipients of the 2026 Ellen L. Stovall Award for Innovation in Patient-Centered Cancer Care: …
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https://canceradvocacy.org/wp-content/uploads/Stovall-Award-Honorees-2026-web-featured.jpg 675 1200 NCCS Staff https://canceradvocacy.org/wp-content/uploads/CancerNation_Logo_40Yrs_Stacked_TwoColor-scaled.png NCCS Staff2026-09-17 13:55:462026-09-22 13:46:42Cancer Nation to Recognize Erin Cummings and Bradley J. Zebrack with 2026 Ellen L. Stovall Award

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  • About
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Harmar Brereton, MD

Founder
Northeast Regional Cancer Institute

 

“Perhaps one of the most impactful collaborations in Dr. Brereton’s extraordinary career remains his early work and long friendship with Ellen Stovall. Through him, and in turn through the thousands of lives he has touched, Ellen’s work continues, and her mission lives on.”

—Karen M. Saunders
President, Northeast Regional Cancer Institute