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Cancer Nation (Formerly NCCS)
  • About

        • About Us

        • Cancer Nation is the oldest cancer survivor-led non-profit organization in America. We advocate for quality cancer care for all touched by cancer.

        • About Cancer Nation

        • Our Mission
        • What is Advocacy?Learn about the different types of cancer advocacy, from personal advocacy to public interest advocacy.
        • Our HistoryRead how Cancer Nation’s leaders coined the term “cancer survivor,” and established the nation’s first survivor-led non-profit organization.
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        • Support Our Mission

        • Make A GiftSupport our mission of quality cancer care for all with a gift to Cancer Nation.
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  • News
    • Cancer Nation News Blog
    • Advocate SpotlightEach month, Cancer Nation highlights a cancer survivorship advocate, sharing their story and the work they do in their communities.
    • Policy CommentsRead Cancer Nation’s comments to Congress, HHS, and other federal policymakers in Washington, DC on proposed rules and legislation.
    • Issue StatementsRead Cancer Nation statements on pressing issues and developments in Washington affecting cancer survivors and their families.
    • Newsletter: Cancer Nation News
  • Policy

        • Policy

        • Public policy is government action, in the form of legislation, regulation, funding, and other actions. Public policy affects people with cancer and the cancer care system in many ways.

        • Our Policy Priorities

        • Quality Cancer CareQuality cancer care is essential for patients. Learn how Cancer Nation and others define quality.
        • Access to CareCancer Nation believes cancer care and clinical trials should be affordable and accessible to everyone.
        • Health EquityThe cancer experience is not the same for everyone. Cancer Nation works on policy efforts to reduce disparities in outcomes.

        • Current Issues

        • Protecting Access to Medicaid for Cancer Survivors
        • Comprehensive Cancer Survivorship Act (CCSA)The CCSA is a large comprehensive bill introduced in Congress that aims to improve quality of care in all stages of a diagnosis.
        • Cancer Care Planning and Communications Act (CCPCA)CCPCA is a bill that would provide a billable Medicare service code for cancer care planning.
        • DIEP Flap AccessCancer Nation advocates for protection of access to DIEP Flap Breast Reconstruction Surgery for all breast cancer survivors.
        • Policy CommentsRead Cancer Nation’s comments to Congress, HHS, and other federal policymakers in Washington, DC on proposed rules and legislation.
        • Issue StatementsRead Cancer Nation statements on pressing issues and developments in Washington affecting cancer survivors and their families.
        • Quality Measurement Research
  • Get Involved

        • Get Involved

        • Whether you’re new to cancer advocacy or already have experience as an advocate, there are numerous ways you can get involved with Cancer Nation.

        • Join Cancer Nation

        • Cancer Nation AdvocatesA program that brings together individuals who care about cancer care to learn how policy shapes our health care system—and how we can improve it together.
        • Cancer Nation Leadership AcademyEmerging leaders improving cancer care in their communities.
        • Cancer Nation Corporate Council
        • Advocacy OpportunitiesThis page provides a list of upcoming events, webinars, conferences, and advocacy campaigns from Cancer Nation and other leading cancer organizations.

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        • Cancer Nation Survivorship Survey

        • Cancer Nation conducts an annual Cancer Nation Survivorship Survey, in partnership with Edge Research, to explore the cancer patient and survivor journey. This study captures a range of perspectives to better understand how Cancer Nation can support its mission to advocate for quality cancer care for all.

        • Surveys by Year

        • Clinician Perspective (2026)
        • 2025 Survivorship Survey
        • 2024 Survivorship Survey
        • 2023 Survivorship SurveyThe 2023 Survey explored the caregiver experience for the first time, and features new data on the effect of cancer treatment on employment.
        • 2022 Survivorship SurveyThe 2022 Survey found significant disparities in cancer care that impact people of color, young adults, women, and those with metastatic cancer, at higher rates.
        • 2021 Survivorship SurveyThe 2021 Survey demonstrated that when patients receive quality care, have excellent support, and have financial resources, they are more likely to have positive outcomes.
        • 2020 Survivorship SurveyIn the 2020 Survey, survivors reported that their care team is not helpful at addressing some common side effects of their cancer such as fatigue, anxiety, and depression.
  • Survivorship Checklist

        • Cancer Survivorship Checklist

        • The Cancer Survivorship Checklist is designed to be a simple, straightforward tool patients and caregivers can use as a guide for information critical to their care wherever they are on the cancer care continuum.

        • Start Your Cancer Survivorship Checklist
        • Survivorship Checklist Guide for Clinicians

        • Resources for Cancer Survivors

        • Survivorship ResourcesA collection of resources that provide information about navigating the cancer journey.
        • Cancer RehabilitationA supportive health care service that helps improve a person’s functioning during and after cancer treatment.
        • Integrative OncologyA field that combines traditional cancer treatments with therapies that support a person’s natural healing ability.
        • Palliative CareSpecialized medical care for people living with a serious illness that provides relief from the symptoms and stress to improve their quality of life.
        • Cognitive HealingA resource to support cognitive functioning after cancer treatment. Includes cognitive training strategies and tools for both adults and children.
  • Resources

        • Resources

        • Cancer Nation provides a wide variety of resources for patients, caregivers, and health care professionals.

        • Resources for Survivors and Caregivers

        • Health Insurance & Open Enrollment
        • Cancer Survival ToolboxA free, award-winning audio program created by leading cancer organizations to help people better meet & understand the challenges of their illness.
        • Ina® The Intelligent Nutrition Assistant
        • Telehealth
        • Care Planning for Cancer Survivors
        • Remaining Hopeful
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        • Talking With Your Doctor
        • Taking Charge of Your Care
        • Order Our Resources

        • Resources for Health Care Professionals

        • Tools For Care Providers
        • Telehealth Project
        • Survivorship Champions Webinars
        • Survivorship Checklist Guide for Clinicians
  • Events
    • 40th Anniversary Gala
    • 2026 Cancer Nation Summit
    • 2026 Cancer Nation Virtual Summit
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      • 2026 Winners
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    • Igniting Hope Awards Reception
    • Cancer Nation Webinars
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      • Fall 2025
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      • Spring 2023
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News

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NCCS Offers Policy Comments: Strategies for Increasing Patient Participation in FDA Review Activities

December 9, 2014
The Food and Drug Administration Safety and Innovation Act (FDASIA) authorized a patient-focused drug development program, and in the…
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WCOE: Comparing Health Plans, Motivating Change in Clinical Practice, the Sunshine Act, and Clinical Trials Protocols

December 5, 2014
Charles Ornstein, Lena Groeger and Ryann Grochowski Jones from ProPublica analyzed changes in plans under the Affordable Care Act…
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https://canceradvocacy.org/wp-content/uploads/2012/12/NCCS_Starburst_Thumbnail.jpg 125 125 actualizedevs https://canceradvocacy.org/wp-content/uploads/CancerNation_Logo_40Yrs_Stacked_TwoColor-scaled.png actualizedevs2014-12-05 08:31:402020-10-22 08:05:11WCOE: Comparing Health Plans, Motivating Change in Clinical Practice, the Sunshine Act, and Clinical Trials Protocols
Fighting Cancer Data

Guest Blog: Fighting Cancer Means Fighting for Cancer Data

December 4, 2014
The second most common cause of death, cancer touches all of us. According to the Institute of Medicine, the numbers are only projected…
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NCCS Responds to Two Recent Articles Covering the Complexities of Transparency and Shared Decision-Making Issues

November 28, 2014
Two stories in last week’s New York Times illustrate the complexities of the changing healthcare marketplace.  They both describe…
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Guest Post by Peter Bach: Lung Cancer Awareness Month Brings a Long-Awaited Nod to Lung Cancer Screening

November 24, 2014
Guest post by Peter Bach, MD, MAPP, Director of Memorial Sloan Kettering’s Center for Health Policy and Outcomes.   Every…
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Speaking to the Needs of Patients Living with Advanced Cancers and Honoring Cancer Stories with Cancerversary

November 21, 2014
Recently, NCCS had the honor of celebrating the work and advocacy of two amazing individuals. Susan Gubar, the author of The New…
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WCOE: The Burden of Caregiving, Financial Incentives, Unnecessary Services for Medicare Beneficiaries, and Medicaid Reform

November 21, 2014
In “Seeing the ‘Invisible Patient,’”Jane Gross addresses the burden of caregiving and how often caregivers’ health,…
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https://canceradvocacy.org/wp-content/uploads/2012/12/NCCS_Starburst_Thumbnail.jpg 125 125 actualizedevs https://canceradvocacy.org/wp-content/uploads/CancerNation_Logo_40Yrs_Stacked_TwoColor-scaled.png actualizedevs2014-11-21 13:03:162020-10-21 10:56:59WCOE: The Burden of Caregiving, Financial Incentives, Unnecessary Services for Medicare Beneficiaries, and Medicaid Reform
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NCCS to Honor Two Inspiring Advocates at Focus on the Care Event in Washington, DC

November 18, 2014
While We Hope for a Cure, We Must Focus on the Care. Please join us on Wednesday, November 19, 2014, as we celebrate recent accomplishments…
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News

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Latest News

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New Research Links Survivorship Care Plans to Longer Lives. So Why Do So Few Survivors Get One?

October 22, 2026
We have said it for years: when treatment ends, survivors need a plan. A written record of the care we received. A roadmap for what…
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Ringing the Bell Is Not the Finish Line: Desa-Rhea Jefferson on What Cancer Survivors Need Next

September 24, 2026
Desa-Rhea Jefferson survived liver cancer at 3 and thyroid cancer as an adult. She says ringing the bell is a starting point, not a finish line. Read more.
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Image with Orchid background. Text reads: Cancer Nation Stovall Awards | 2026 Honorees | Patient Advocate Award - Erin Geddis Cummings, MSW, LCSW | Health Care Professional Award - Bradley J. Zebrack, PHD, MSW, MPH

Cancer Nation to Recognize Erin Cummings and Bradley J. Zebrack with 2026 Ellen L. Stovall Award

September 17, 2026
Cancer Nation is proud to announce the recipients of the 2026 Ellen L. Stovall Award for Innovation in Patient-Centered Cancer Care: …
Read more
https://canceradvocacy.org/wp-content/uploads/Stovall-Award-Honorees-2026-web-featured.jpg 675 1200 NCCS Staff https://canceradvocacy.org/wp-content/uploads/CancerNation_Logo_40Yrs_Stacked_TwoColor-scaled.png NCCS Staff2026-09-17 13:55:462026-09-22 13:46:42Cancer Nation to Recognize Erin Cummings and Bradley J. Zebrack with 2026 Ellen L. Stovall Award

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  • About
    • Our Mission
    • What is Advocacy?
    • Our History
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    • Contact Us
    • Make A Gift
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    • Fundraise for Cancer Nation
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  • Policy
    • Quality Cancer Care
    • Access to Care
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  • Events
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Harmar Brereton, MD

Founder
Northeast Regional Cancer Institute

 

“Perhaps one of the most impactful collaborations in Dr. Brereton’s extraordinary career remains his early work and long friendship with Ellen Stovall. Through him, and in turn through the thousands of lives he has touched, Ellen’s work continues, and her mission lives on.”

—Karen M. Saunders
President, Northeast Regional Cancer Institute