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actualizedevs2019-01-11 16:45:592020-07-06 10:12:53House Votes to Intervene in ACA Lawsuit; Drug Pricing News; Colon Cancer Rates Rising in Young Adults; MoreNCCS is now Cancer Nation. Find out more about our next chapter. Join Us
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Remembering Richard Payne, MD
With great sadness, we mourn the passing of former NCCS Board Chair Richard Payne, MD, on January 4. Dr. Payne was a member of the NCCS Board of Directors from 2005 to 2012; he served as Board Chair from 2010 to 2011. Thoughtful, deliberative, and soft spoken, Dr. Payne was a valued and collaborative leader of NCCS. A lover of books and golf, he was always attentive and generous to his extended family, both personal and professional. [...]

NCCS Applauds House Vote on Behalf of Patients to Defend the ACA and Its Pre-Existing Condition Protections
Today, the House of Representatives voted to formally intervene in Texas v. United States, the lawsuit seeking to invalidate the Affordable Care Act (ACA). The resolution passed the House by a vote of 235-192, with three Republican members voting in support. The resolution now heads to the Senate where Republican leaders will likely not bring it up for a vote. “The Supreme Court ruled repeatedly that the Affordable Care Act (ACA) is constitutional [...]

NCCS Letter to CMS Highlights Concerns About Proposed Medicare Part B Reforms
On December 31st, NCCS submitted our final comment letter of the year to the Centers for Medicare and Medicaid Services regarding the advance notice of proposed rulemaking for the Medicare Part B drug program.
In the letter, we outlined concerns that this proposal could have on Medicare beneficiaries such as impacts on patient access to innovative therapies, as well as concerns regarding the enormous scope of the test. NCCS suggested [...]

Remembering Jennifer Friar Groves
By CEO Shelley Fuld Nasso — I’d like to share the story of my dear friend, Jennifer Friar Groves, who died earlier this month at the age of 32 from metastatic breast cancer. She gave me her permission to share her story, and in fact, she desperately wanted her story to be shared. Jennifer was diagnosed with breast cancer in April 2016 at the age of 29. She lived in Booneville, Mississippi, in northern Mississippi near Tupelo. She was too young for regular [...]

NCCS “Not Persuaded” Drug Pricing in DTC Ads Will Improve Doctor-Patient Communication
Earlier this year, the Centers for Medicare and Medicaid Services (CMS) issued a proposed rule that would require information about drug costs be included in direct-to-consumer (DTC) advertisements of prescription drugs and biological products. NCCS issued a statement regarding the proposal, saying, “While we understand [...]

NCCS Statement on District Court Ruling Affordable Care Act Unconstitutional
Silver Spring, M.D. – The National Coalition for Cancer Survivorship (NCCS), a national organization representing survivors of all…

Remembering Kathryn West
Last weekend, the patient advocacy community lost a fierce advocate, leader, and innovator in raising awareness of the issues cancer survivors experience. Kathryn West, oncology nurse and fierce advocate for cancer patients, died of cancer herself in Los Angeles last Sunday. NCCS first met Kathryn through her role as Advocacy Director for Amgen. Her vision to increase awareness of resources for people affected by cancer led her to champion the [...]

