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NCCS News Cancer Policy Matters

NCCS Project Aims to Gain Cancer Survivors’ Insights on Telehealth

May 22, 2020/in Cancer News, Cancer Policy Blog, NCCS News Clinical Guidelines, Doctor-Patient Communication, Quality Cancer Care NCCS News /by actualize

NCCS LogoThis month, the National Coalition for Cancer Survivorship (NCCS) launched a project to identify and share cancer patients’ and survivors’ perspectives on telehealth in cancer care.

Regulatory, societal and practice changes associated with the COVID-19 pandemic have led to an increased use of telehealth, including in various aspects of cancer care. In this rapidly changing environment, there has been little opportunity to gain insight and direction from people with cancer regarding the feasibility and acceptability of telehealth for cancer care.

NCCS will engage patients and survivors to articulate patient needs and perspectives for effective use of telehealth in cancer care, to improve clinical practice, educate cancer survivors and their families, and inform public policy. Goals of the project include the following:

  • Obtain direction from cancer patients and survivors about how to maximize the benefits of telehealth. At the same time, obtain feedback from cancer providers.
  • Create resources for oncology practices on how to address patient barriers and increase the effectiveness of telehealth visits, and for patients and families about what to expect from telehealth visits and how to prepare for those visits.
  • Develop and disseminate a white paper with policy recommendations from a patient perspective and engage in policy advocacy.

Initial findings from the project will be available by the end of June.

NCCS is a nonprofit patient advocacy organization with a mission to advocate for quality cancer care for everyone touched by cancer.

NCCS thanks Pfizer, Inc. for their support of this important initiative.

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Tags: Advocacy, cancer care, Cancer Survivorship, communication, nccs, nccs news
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  • About
    • Our Mission
    • Our History
    • Our Leadership
      • Policy Advisors
    • Employment
    • Partnerships
    • Financial Information
  • Policy
    • Quality Cancer Care
    • Access to Care
    • Health Equity
    • Redefining Functional Status (RFS)
    • 2020 State of Cancer Survivorship Survey
    • Cancer Care Planning and Communications Act (CCPCA)
  • Get Involved
    • What is Advocacy?
    • Cancer Policy and Advocacy Team (CPAT)
    • Elevating Survivorship
    • Survivor Stories
    • Cancerversary
    • State Based Cancer Advocacy
  • Resources
    • Survivorship Checklist
    • Cancer Survival Toolbox
    • Telehealth
    • Publications
      • Talking With Your Doctor
      • Self Advocacy
      • Employment Rights
      • Remaining Hopeful
    • Taking Charge of Your Care
    • Care Planning for Cancer Survivors
    • Tools For Care Providers
    • COVID-19 Resources for Cancer Survivors
    • Order Our Resources
  • News
    • Cancer Convos Podcast
  • Events
    • Ellen L. Stovall Award
      • 2020 Stovall Awards
      • Honorees
      • Sponsors
      • Committees
      • Reception
      • Nominations
    • Cancer Policy Roundtable
      • Fall 2020 Cancer Policy Roundtable
      • Spring 2020 Cancer Policy Roundtable
    • Cancer Policy and Advocacy Team (CPAT) Symposium 2020
    • Webinars
  • Contact Us

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Harmar Brereton, MD

Founder
Northeast Regional Cancer Institute

 

“Perhaps one of the most impactful collaborations in Dr. Brereton’s extraordinary career remains his early work and long friendship with Ellen Stovall. Through him, and in turn through the thousands of lives he has touched, Ellen’s work continues, and her mission lives on.”

—Karen M. Saunders
President, Northeast Regional Cancer Institute