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The National Coalition for Cancer Survivorship (NCCS) commends the Food and Drug Administration (FDA) for taking critical steps to ensure that the promise of personalized cancer medicine is realized and that cancer patients can rest assured that they are receiving treatments consistent with their diagnoses. Today, FDA notified Congress that it will issue a draft […]
As avid followers of Susan Gubar’s series in The New York Times on living with cancer, we read her most recent installment, “Living with Cancer: A Tour of Hospice” with interest. She described her fear of the pain, anxiety, and dementia that can accompany dying and her desire to avoid excessive treatment at the end of life. […]
Living with, through, and beyond a cancer diagnosis– In 1986, the founders of NCCS saw a need for language that truly told the story of life after a cancer diagnosis. At the time, there were a growing number of people living beyond their cancer diagnosis and treatment. Many of them were experiencing an array of […]
In “Biggest Insurer Drops Caution, Embraces Obamacare,” Jay Hancock of Kaiser Health News reported on UnitedHealthcare’s decision to offer plans on the exchanges in 24 states next year, up from four states this year. Hancock writes, “The move represents a major acceleration for the company and a bet that government-subsidized insurance, sold online without regard […]
We are very sad to hear of the passing of Jessie Gruman, the Founder and CEO of the Center for Advancing Health. Jessie was an inspiring and passionate advocate for patients, and her work has touched many facing the challenges of a chronic illness. We were recently honored to celebrate Jessie’s work at the 2013 […]
Discussions about the costs of cancer treatment and how we pay for cancer care dominated many of the cancer policy stories that caught our eye this week. In a Washington Post article from the Wonkblog, Jason Millman outlines some of the troubling statistics that project a significant increase in the costs of cancer care, as […]
On Wednesday, as part of the Merkin Series on Innovation in Care Delivery, the Brookings Institute held an event in their new MEDTalk format titled, Reinventing Patient-Centered Cancer Care. The MEDTalk event follows the popular TED Talk format, and it was designed to feature several short presentations that considered the challenges of delivering oncology care while enhancing the patient experience, […]
A PBS Newshour segment, “Pediatric Cancer Survivors Face a Lifetime of Health Challenges,” discusses the late effects and potential secondary cancers that survivors of pediatric cancers face. The piece puts a human face on the challenges with its profiles of Laura Allaire, an adult survivor of pediatric cancer, and eleven-year-old Samantha Schwarz, who is being […]
On Monday of last week it was with great pleasure that I started in my new position at NCCS as Policy and Advocacy Manager. My first assignment was to attend the Alliance for Childhood Cancer Action Days, which NCCS first reported on in June. This two-day event had significant meaning to me personally as my […]
In a blog post on The Hill, Stephen Crowley urged Congress to “step up” funding for pediatric cancer research, as more than 250 advocates convened in Washington, D.C. for the Alliance for Childhood Cancer Action Day. NCCS is a member of the Alliance and was pleased to participate in and sponsor the advocacy effort. Crowley […]
Survivorship Champions is a program for all clinicians and researchers, both oncology and primary care, who are interested in improving survivorship care and primary care’s role in caring for cancer survivors.
The NCCS Cancer Policy & Advocacy Team (CPAT) is a program for survivors and caregivers to learn about pressing policy issues that affect quality cancer care in order to be engaged as advocates in public policy around the needs of cancer survivors.
NCCS represents the millions of Americans who share a common experience – living with, through and beyond a cancer diagnosis. By sharing your story of how you have been touched by cancer, you are supporting the national cancer survivorship movement.
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Founder
Northeast Regional Cancer Institute
“Perhaps one of the most impactful collaborations in Dr. Brereton’s extraordinary career remains his early work and long friendship with Ellen Stovall. Through him, and in turn through the thousands of lives he has touched, Ellen’s work continues, and her mission lives on.”
—Karen M. Saunders
President, Northeast Regional Cancer Institute