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Longtime NCCS CEO Ellen Stovall made a lasting impact on the cancer community, both personally and professionally, through her warmth, generosity, and spirit of collaboration as she worked to make cancer care better for all patients. Shortly after she died in 2016 due to cardiac complications from her cancer treatment, the National Coalition for Cancer […]
As patient advocates (as in most other things in life), it seems the more we learn, the more see what we don’t know. Whether we’re involved in promoting a patient-centered approach to research, direct care, survivorship, policy change or education, there’s a daily twist and update for us to wrap our brains around. And no matter which arena we find ourselves in, we are always looking for the endpoint: How far have we come in cancer care, and how does […]
What Caught Our Eye (WCOE) is our week-in-review blog series, where we recap the cancer policy articles, studies, and stories that caught our attention. Affordable Care Act – It’s Open Enrollment Season! Do You Know Your Health Insurance? – It’s officially “open enrollment season” and that means millions of Americans are about to dive into an alphabet soup of insurance choices. To help with this problem, Merck collaborated with health literacy […]
In his address to a joint session of Congress this week, President Trump shared his priorities for the replacement of the Affordable Care Act (ACA). David Nather of Axios wrote, “It wasn’t detailed enough to be called a proposal, but Trump outlined enough principles to give a general idea of what he wants. He got more specific on some issues than he has in the past […]
At the National Coalition for Cancer Survivorship’s (NCCS) 30th Anniversary Reception on October 13, 2016, NCCS presented the inaugural Ellen Stovall Award for Leadership in Patient-Centered Care. The award was created to honor former NCCS CEO Ellen Stovall, who led the organization for more than twenty years and passed away in January 2016 from complications […]
Today, the Cancer Moonshot Blue Ribbon Panel released ten recommendations to accelerate progress in cancer research. One recommendation is for symptom management research to minimize the debilitating side effects of cancer treatment. The recognition of the toll cancer treatment takes on survivors, during treatment and for the rest of their lives, is significant, and we […]
Ms. M is an 81-year-old woman with Stage IV Pancreatic Cancer. She had remained in great health until her recent diagnosis, after which her energy had plummeted and she was spending over half the day in bed. Overwhelmed with the sight of their loved one losing her strength with each passing day, her family had […]
Having cancer is terrifying. Period. Often, well-intended doctors find themselves unable to mitigate this panic. As humans we are challenged with this disease as old as our chromosomes, struck at the core of our identity, of our body, of our sense of self. We are removed from work, from a normal agenda, from our families, […]
NCCS submitted comments to the Centers for Medicare and Medicaid Services (CMS) on the proposed rule on the Medicare Access and CHIP Reauthorization Act of 2015 (MACRA). Our comments focus on the role of consumers in identification, development, and endorsement of quality measures. As health care delivery and payment transition from a volume-based system, it […]
The Centers for Medicare and Medicaid Services (CMS) announced that they are postponing the release of their Hospital Compare Star Ratings. This is an unfortunate delay, as these ratings will serve as a valuable tool for cancer survivors and their families to have the information necessary to make informed decisions about where they receive care. […]
Survivorship Champions is a program for all clinicians and researchers, both oncology and primary care, who are interested in improving survivorship care and primary care’s role in caring for cancer survivors.
The NCCS Cancer Policy & Advocacy Team (CPAT) is a program for survivors and caregivers to learn about pressing policy issues that affect quality cancer care in order to be engaged as advocates in public policy around the needs of cancer survivors.
NCCS represents the millions of Americans who share a common experience – living with, through and beyond a cancer diagnosis. By sharing your story of how you have been touched by cancer, you are supporting the national cancer survivorship movement.
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Founder
Northeast Regional Cancer Institute
“Perhaps one of the most impactful collaborations in Dr. Brereton’s extraordinary career remains his early work and long friendship with Ellen Stovall. Through him, and in turn through the thousands of lives he has touched, Ellen’s work continues, and her mission lives on.”
—Karen M. Saunders
President, Northeast Regional Cancer Institute