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NCCS - National Coalition for Cancer Survivorship
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Posts

Health Care Roundup: Maryland, Advocacy Groups File Suits to Protect ACA; Emergency Resources for Survivors; False Hope in Precision Medicine; More

September 14, 2018/in Cancer News, Cancer Policy Blog Access to Care, Affordable Care Act, Drug Pricing, Financial Toxicity, Health Care Coverage, Health Equity, Pre-Existing Conditions Health Care Roundup, NCCS News /by actualize

This week, the US Census Bureau released health insurance coverage estimates for 2017. Between 2016 and 2017, the overall uninsured rate did not change significantly, but 14 states experienced an increase in the number of uninsured individuals, due to poverty status or whether the state expanded Medicaid. While coverage numbers dropped in many states, the Trump Administration continues to cut ACA navigator funding, which […]

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https://canceradvocacy.org/wp-content/uploads/2017/01/NCCS-Starburst-250px.png 250 250 actualize https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png actualize2018-09-14 16:46:322020-07-06 10:05:31Health Care Roundup: Maryland, Advocacy Groups File Suits to Protect ACA; Emergency Resources for Survivors; False Hope in Precision Medicine; More

What Caught Our Eye: A Story of Two Survivors’ Enduring Friendship; GOP Still at Odds on Healthcare; Living with an Ostomy; The Perils of Hype in Cancer

April 28, 2017/in Cancer News, Cancer Policy Blog Access to Care, Affordable Care Act NCCS News /by actualize

What Caught Our Eye is our week-in-review blog series.“This is a story of survivors — of patients who were expected to die more than two decades ago but didn’t.” STAT News’ Bob Tedeschi provides an in-depth look Dr. Brian Druker and three of his patients, including Doralee Mortensen and Judy Orem, who became best friends after meeting in the clinical trials for the cancer drug Gleevec in the late 1990s.

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https://canceradvocacy.org/wp-content/uploads/2017/01/NCCS-Starburst-250px.png 250 250 actualize https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png actualize2017-04-28 12:00:342017-04-28 12:00:34What Caught Our Eye: A Story of Two Survivors’ Enduring Friendship; GOP Still at Odds on Healthcare; Living with an Ostomy; The Perils of Hype in Cancer

What Caught Our Eye: Costs of Care in a For-Profit System; New ACA Reporting; Precision Medicine; PSA Testing; End of Life Care

April 14, 2017/in Cancer News, Cancer Policy Blog Access to Care, Affordable Care Act, Financial Toxicity, Health Care Coverage, Health Equity, Palliative Care, Quality Cancer Care, Survivorship Care NCCS News /by actualize

What Caught Our Eye is our week-in-review blog series, where we recap the cancer policy articles that caught our attention. Published this week, Elisabeth Rosenthal’s An American Sickness: How Healthcare became Big Business and How You Can Take it Back describes the business of health care and how it fails patients. See her interview with Terry Gross on Fresh Air, as well as her tips for consumers to avoid unnecessary costs. […]

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What Caught Our Eye: ACA Analysis/Debate, Doc/Patient Communication, Universal Cancer Care, Financial Toxicity, Palliative Care Pain Studies

February 10, 2017/in Cancer News, Cancer Policy Blog Access to Care, Affordable Care Act, Doctor-Patient Communication, Financial Toxicity, Health Equity, Palliative Care, Quality Cancer Care NCCS News /by actualize

As the repeal and replace debate continues in Washington, the Brookings Institution spearheaded a study to look at what is and isn’t working with the Affordable Care Act. Their look at five states who implemented the ACA in various ways is informative to help inform where we go from here.

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Research Priorities for the Growing Population of Childhood Cancer Survivors

December 13, 2016/in Cancer News, Cancer Policy Blog Quality Cancer Care, Survivorship Care NCCS News /by actualize

In the aftermath of this year’s historic Presidential election, one fact remains unchanged: cancer continues to be a devastating array of diseases that has touched or will touch the lives of virtually every American. As a 25-year survivor of childhood cancer, I want to insure that the health challenges faced by patients like me are emphasized as research priorities for the coming years are established.

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President Obama Announces New Precision Medicine Initiative

February 2, 2015/in Cancer News, Cancer Policy Blog Access to Care, Affordable Care Act, Clinical Trials, Quality Cancer Care, Survivorship Care NCCS News /by actualize

I was honored to represent NCCS along with leaders in the health care community at the White House on Friday when President Obama announced his new Precision Medicine Initiative. Introducing the President was 19-year-old Harvard Student Elana Simon, who researched her own liver cancer and helped identify the genetic cause of the rare disease. The […]

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Latest News

NCCS Advocate Spotlight: Sharon Rivera Sanchez - Triple Negative Breast Cancer Survivor Finds Passion in Fitness and Advocacy

Sharon Rivera-Sanchez: Triple Negative Breast Cancer Survivor Finds Passion in Fitness and Advocacy

January 12, 2023
As a Triple Negative Breast Cancer survivor, Sharon turned her personal experience into a passion for advocacy and giving back to the community. When she received her diagnosis in May 2015, she remembers being in a state of shock and grief. She said, “You have to allow yourself time to breathe and grieve.”
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Rep. Debbie Wasserman Schultz introduces Comprehensive Cancer Survivorship Act at December 14, 2022 press conference.

NCCS Celebrates Launch of Comprehensive Cancer Survivorship Act

December 14, 2022
Representative Debbie Wasserman Schultz (FL-23), a champion for cancer survivors and a survivor herself, held a press conference today…
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https://canceradvocacy.org/wp-content/uploads/CCSA-Blog-Featured-Image-1200-×-600-px-1.png 600 1200 Kara Kenan https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png Kara Kenan2022-12-14 16:03:462022-12-14 16:03:46NCCS Celebrates Launch of Comprehensive Cancer Survivorship Act
Alique Topalian, PhD, MPH Advocate Spotlight

Alique Topalian: Childhood Cancer and the Frightening Realities of the Survivorship Journey

December 7, 2022
Alique was first diagnosed with Acute Myeloid Leukemia (AML) at the age of four. Her mother, Michele, knew something was wrong because “the light in her eyes was gone”. After being told by doctors that there was nothing wrong, her family was relentless until new blood work uncovered blast cells.
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  • About
    • Our Mission
    • Our History
    • The 1986 Club
    • Our Team
      • Policy Advisors
    • Employment
    • Partnerships
    • Financial Information
  • Policy
    • Quality Cancer Care
    • Access to Care
    • Health Equity
    • Redefining Functional Status (RFS)
    • 2022 State of Cancer Survivorship Survey
    • 2021 State of Cancer Survivorship Survey
    • 2020 State of Cancer Survivorship Survey
    • Cancer Care Planning and Communications Act (CCPCA)
  • Get Involved
    • What is Advocacy?
    • Cancer Policy and Advocacy Team (CPAT)
    • Survivorship Champions
    • Subscribe to NCCS Updates
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Harmar Brereton, MD

Founder
Northeast Regional Cancer Institute

 

“Perhaps one of the most impactful collaborations in Dr. Brereton’s extraordinary career remains his early work and long friendship with Ellen Stovall. Through him, and in turn through the thousands of lives he has touched, Ellen’s work continues, and her mission lives on.”

—Karen M. Saunders
President, Northeast Regional Cancer Institute