
Young Adult Cancer Survivors Worry What the AHCA Would Mean for Them
Last month, I had the honor of speaking at CancerCon, an incredible gathering of 650 adolescent and young adult (AYA) cancer survivors, their caregivers, and health care providers and advocates from across the country. Along with Kelsey Nepote, NCCS Advocacy Manager, and Kate Houghton, CEO of Critical Mass, we presented ...

What Caught Our Eye: GOP Lawmakers Face AHCA Backlash at Home, A Profile on New FDA Chief Scott Gottlieb, and Survivorship Care Planning
What Caught Our Eye (WCOE), May 12, 2017 - What Caught Our Eye is our week-in-review blog series, where we recap the cancer policy articles, studies, and stories that caught our attention. - “According to the nonpartisan Center on Budget and Policy Priorities, at the highest point of all, the ...

What Caught Our Eye: Next Steps for the ACA; Gottlieb’s Confirmation; ASCO Statement on Right-to-Try; Gene Mutations in Childhood Survivors
Some key findings of the most recent Kaiser tracking poll: the public thinks it’s a “good thing” that the AHCA failed, believes President Trump and the Republican party are responsible for problems with the ACA going forward, and want to see the Trump administration make the ACA work for consumers ...

What Caught Our Eye: AHCA Analysis; Trump Proposes Huge Cuts to NIH; Young People & Colon Cancer; Rx Sticker Shock
What Caught Our Eye - March 17, 2017 | “It was strange circumstances Obama found himself in. He was leaving office an unusually popular president, with approval numbers nearing 60 percent. But his most important domestic achievement was imperiled. Republicans had spent years slamming Obamacare for high premiums, high deductibles, ...

What Caught Our Eye: High-Risk Pools, “Trumpcare,” Childhood Cancer Survivors, Medicaid Spending, Trump’s FDA Deregulation
What Caught Our Eye (WCOE), March 3, 2017 What Caught Our Eye is our week-in-review blog series, where we recap the cancer policy articles, studies, and stories that caught our attention. Affordable Care Act "States Be Warned: High-Risk Pools Offer Little Help At A High Cost" Do high-risk pools offer ...

What Caught Our Eye: ACA Debate, Thyroid Cancer Late Effects, Long-Term Follow-Up Care, Cervical Cancer Mortality, and Anxiety in Partners of Breast Cancer Survivors
For millions of cancer survivors and their families, Rep. Tom Price’s refusal to promise that no one will lose coverage because of President Trump’s executive order is unnerving to say the least ...

Research Priorities for the Growing Population of Childhood Cancer Survivors
In the aftermath of this year’s historic Presidential election, one fact remains unchanged: cancer continues to be a devastating array of diseases that has touched or will touch the lives of virtually every American. As a 25-year survivor of childhood cancer, I want to insure that the health challenges faced ...

WCOE: Childhood Survivor Study on Cost, Dr. Gawande talks Care Quality, Lilly’s Tribute to Ellen, Smita Bhatia in Cure Magazine
What Caught Our Eye (WCOE) Each week, we recap the cancer policy articles, studies, and stories that caught our attention. Serious issue for survivors of childhood cancer. Childhood Cancer Survivors Forgo Care Because of Cost https://t.co/wpsMkuCI6D— NCCS - National Coalition for Cancer Survivorship (@CancerAdvocacy) January 22, 2016 "Death is not ...

20 Years Later Series Wrap-Up: Julia Rowland Shares a History of the Imperatives and the Current Challenges in Survivorship
This post is part of our 20 Years Later blog series which examines progress in advancing the principles in the 1995 NCCS publication Imperatives for Quality Cancer Care: Access, Advocacy, Action, and Accountability (Imperatives). The Twelfth Principle states, "Cancer survivors, health care providers and other key constituency groups must work together to increase public ...

Dr. Julia Rowland Discusses the Importance of Psychosocial Care: Engagement and Dialogue
This post is part of our 20 Years Later blog series which examines progress in advancing the principles in the 1995 NCCS publication Imperatives for Quality Cancer Care: Access, Advocacy, Action, and Accountability(Imperatives). The eleventh principle states that “Psychosocial research is integral to comprehensive cancer care and, as such, psychosocial outcome measures should be ...