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Two stories in last week’s New York Times illustrate the complexities of the changing healthcare marketplace. They both describe discrete issues that beleaguer and hinder the transparency and shared decision-making that we at the National Coalition for Cancer Survivorship (NCCS) call for when patients need to make an informed decision about their care. We comment […]
Guest post by Lillie D. Shockney, RN, BS, MAS, Director of Johns Hopkins Breast Center and Cancer Survivorship Programs. On November 19, 2014, NCCS will present the Catherine Logan Award for Service to Survivorship to Lillie at the Focus on the Care evening reception in Washington, DC. Though more and more cancer patients are being diagnosed […]
In “Adult Conversation on High-Priced Drugs? Don’t Hold Your Breath (But Hang in There)…,” Rob Cunningham provided a summary of a recent event held by the Brookings Institution that examined the cost and value of biomedical innovation. The event focused predominately on the controversial price of Sovaldi, a drug that has a cure rate of over 90% […]
Recently, the American Society of Clinical Oncology (ASCO) released an updated cancer survivorship care planning (SCP) template—news that was captured by several medical online news outlets including Healio, Medscape, and Cancer.net. Survivorship care planning is a process of cancer care delivery that NCCS has advocated for over the last 20 years. In follow-up to a […]
This week, several articles caught our eye: Amy Berman shared her own experience “Choosing Wisely” when she opted for a single dose of radiation therapy to alleviate pain from bone metastases, instead of a course of 10 treatments. The Kaiser Family Foundation reported that 89% of uninsured individuals polled are not aware that the next open […]
Guest Blog by Carole McCue, RN, MS, CNE According to a recent study, 75 percent of cancer patients with depression are not treated. The integration of psychosocial care into the routine care of all patients with cancer is now being recognized as a new standard of care and the National Comprehensive Cancer Network, (NCCN) developed […]
On October 17th, NCCS Senior Health Policy Advisor Ellen Stovall will be presenting the patient perspective on overtreatment at the ASCO Quality Care Symposium in Boston. Ellen will be discussing the Choosing Wisely® campaign, an initiative of the ABIM Foundation intended to help physicians and patients engage in conversations to reduce overuse of tests and […]
What caught our eye this week was extensive coverage of Dr. Atul Gawande’s new book, Being Mortal: Medicine and what Matters in the End. In it, he examines end-of-life care in our country, and he weaves in personal stories from his own family and his patients, as well as interviews of hundreds of patients, families, […]
We have a lot of bad incentives built into our system, says @sfuldnasso at #T3Cancer — ThinkWellPoint (@ThinkWellPoint) “We need truth telling so patients understand the full influences on their care” Shelley Fuld Nasso @CancerAdvocacy #T3Cancer — CancerSupportCm (@CancerSupportCm) We need to ask patients what’s important to them in order to match their goals & […]
Two new free mobile apps help people facing cancer to better manage the disease by learning how to deal with certain symptoms, and coordinate their care after cancer treatment has ended. Self-Care During Cancer Treatment is an app provided by Empowerment and Action for Cancer Care, an alliance between WellPoint and Genentech. This app provides […]
Survivorship Champions is a program for all clinicians and researchers, both oncology and primary care, who are interested in improving survivorship care and primary care’s role in caring for cancer survivors.
The NCCS Cancer Policy & Advocacy Team (CPAT) is a program for survivors and caregivers to learn about pressing policy issues that affect quality cancer care in order to be engaged as advocates in public policy around the needs of cancer survivors.
NCCS represents the millions of Americans who share a common experience – living with, through and beyond a cancer diagnosis. By sharing your story of how you have been touched by cancer, you are supporting the national cancer survivorship movement.
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Founder
Northeast Regional Cancer Institute
“Perhaps one of the most impactful collaborations in Dr. Brereton’s extraordinary career remains his early work and long friendship with Ellen Stovall. Through him, and in turn through the thousands of lives he has touched, Ellen’s work continues, and her mission lives on.”
—Karen M. Saunders
President, Northeast Regional Cancer Institute