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Recently I had the privilege of attending “A Journey of Courage and Hope: The Johns Hopkins Metastatic Breast Cancer Retreat for Couples.” Facilitated by a renowned leader in patient-centered breast cancer care, Lillie Shockney, this unique retreat for patients and their spouses explores the resources to cope physically, financially, and emotionally with the chronic nature […]
What Caught Our Eye (WCOE) Each week, we recap the cancer policy articles, studies, and stories that caught our attention. "A nurse with fatal breast cancer says end-of-life discussions saved her life" #choosingwisely @NotesOnNursing https://t.co/cPhjYxPKGt — ABIM Foundation (@ABIMFoundation) September 29, 2015 How does cancer affect people from different populations and groups? This video explains […]
Twenty years later, the 9th Principle of the NCCS Imperatives for Quality Cancer Care could not be more relevant. Increasingly, patients are required to take more responsibility for their health, using knowledge and self-monitoring tools that have become an essential part of medical care, such as monitoring of blood pressure, physical activity, and weight-—to name […]
Post by NCCS CEO Shelley Fuld Nasso Today marks three years since my dear friend, Dr. Daniel Brent Whitworth, passed away at the age of 43, 19 months after being diagnosed with advanced kidney cancer. I met Brent on the first day of orientation week at Rice University in 1987. We became fast friends, had the […]
Over the past twenty years, the number of cancer survivors has grown substantially. Survivors are also living longer, getting older, and have numerous medical conditions that require attention. While survivors typically receive general medical care in primary care settings, the role of primary care providers (PCPs) in the long-term follow up of survivorship needs is […]
We are pleased to be joining a Cancer Twitter Chat on Tuesday, September 2, 2015 from 2:00 pm to 3:00 pm EDT. The chat will be hosted by the Patient-Centered Outcomes Research Institute (PCORI), an independent nonprofit, nongovernmental organization located in Washington, DC. PCORI was created to help people make better informed healthcare decisions. NCCS […]
As part of our 20 Years Later blog series which examines progress in advancing the principles in the 1995 NCCS publication Imperatives for Quality Cancer Care: Access, Advocacy, Action, and Accountability (Imperatives), this month we will look at the ninth principle of Imperatives: “The responsibility for appropriate long-term medical care must be shared by cancer survivors, […]
What Caught Our Eye (WCOE) Each week, we recap the cancer policy articles, studies, and stories that caught our attention. Join us on Sept 29 at 2pm ET for a chat about #cancer side effects & symptoms. Use #CTalk. https://t.co/oix4S5ISms — NCCS – National Coalition for Cancer Survivorship (@CancerAdvocacy) September 27, 2015 https://twitter.com/NikiBarrPhD/status/647408343598809088 Seeing is […]
NCCS submitted letters to the Centers for Medicare and Medicaid Services (CMS) on its proposed revisions to the Medicare physician fee schedule for calendar year 2016. In our letter, NCCS commended CMS for its efforts to enhance comprehensive care management for certain Medicare beneficiaries. Through improvements in fee-for-service payments and various demonstration initiatives, CMS has made […]
The terms “palliative care,” “hospice,” and “end-of-life care” are often used interchangeably, but they are not the same. Palliative care includes symptom management and other supportive care that can be provided throughout cancer treatment, whether a cure for the illness is or is not expected. Patients should expect palliative care throughout treatment, as it is […]
Survivorship Champions is a program for all clinicians and researchers, both oncology and primary care, who are interested in improving survivorship care and primary care’s role in caring for cancer survivors.
The NCCS Cancer Policy & Advocacy Team (CPAT) is a program for survivors and caregivers to learn about pressing policy issues that affect quality cancer care in order to be engaged as advocates in public policy around the needs of cancer survivors.
NCCS represents the millions of Americans who share a common experience – living with, through and beyond a cancer diagnosis. By sharing your story of how you have been touched by cancer, you are supporting the national cancer survivorship movement.
Together we can improve cancer care for survivors! Sign up to be the first to know about cancer policy issues and ways to take action
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Founder
Northeast Regional Cancer Institute
“Perhaps one of the most impactful collaborations in Dr. Brereton’s extraordinary career remains his early work and long friendship with Ellen Stovall. Through him, and in turn through the thousands of lives he has touched, Ellen’s work continues, and her mission lives on.”
—Karen M. Saunders
President, Northeast Regional Cancer Institute