Quality Cancer Care

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Our mission is to advocate for quality cancer care for all people touched by cancer, but what exactly is “quality cancer care,” and why is it essential for patients and the health care system? The National Academy of Medicine (formerly Institute of Medicine) and others have worked to define quality cancer care. Cancer Nation has represented patient perspectives in these efforts and played a leadership role in building the evidence base for quality cancer care.

Cancer Nation believes that cancer patients should have access to:

Care that adheres to evidence-based guidelines;
Comprehensive cancer care that assures treatment of the symptoms and side effects of cancer and cancer treatment;
Coordinated care with strong communication among all providers and the patient;
A written care plan detailing all elements of cancer care;
Care in a clinical trial, if it represents a potential treatment option;
Shared decision-making, including honest discussion about prognosis, the intent of therapy and the patient’s values and preferences regarding care;
Support for psychosocial needs;
Palliative care throughout the course of treatment, from diagnosis through end of life;
End-of-life care, including but not limited to hospice care;
Post-treatment survivorship care, including a survivorship care plan with a treatment summary and personalized recommendations for monitoring and follow-up care.
Robust health information systems that support and improve all other aspects of quality cancer care.

Ensuring quality cancer care is complex, and there are many areas for improvement and policy action. An important gap is in treatment decision-making and coordination of the multiple facets of cancer care. To address this gap, Cancer Nation advocates to ensure that every cancer patient has access to cancer care planning and coordination. These services provide cancer patients information to make informed decisions about treatments, encourage collaboration among the multi-disciplinary cancer care providers, and facilitate transitions from active treatment to survivorship.

NCCS Joins 11 Organizations in Filing Amicus Curiae Brief Supporting Lawsuit Challenging Short-Term Health Plans

October 8, 2018

The National Coalition for Cancer Survivorship (NCCS) joined 11 other patient groups in filing an amicus curiae (or “friend of the court”) brief in support of the lawsuit that challenges the regulation authorizing short-term health insurance plans. The amicus curiae brief explains to the court the potentially devastating impact of short-term health insurance plans on people with cancer and other Americans with serious and chronic diseases. [...]

Health Care Roundup: Medicare ‘Step Therapy’ Concerns; Alternative Cancer Treatment Risks; Immunotherapy Scientists Win Nobel Prize; More

October 5, 2018

HEALTH CARE HIGHLIGHT – NCCS Submits Concerns to HHS Regarding New “Step Therapy” Plan – NCCS joined with other cancer organizations of the Cancer Leadership Council (CLC) in a letter to the Department of Health and Human Services (HHS) and the Centers for Medicare and Medicaid Services (CMS) regarding the new plan announced on August 7 that gives Medicare Advantage plans the option of applying step therapy for [...]

NCCS Joins with Cancer Leadership Council to Outline Concerns Regarding New “Step Therapy” Plan

October 3, 2018

NCCS joined with other cancer organizations of the Cancer Leadership Council (CLC) in a letter to the Department of Health and Human Services (HHS) and the Centers for Medicare and Medicaid Services (CMS) regarding the new plan announced on August 7 that gives Medicare Advantage plans the option of applying step therapy for physician-administered and other Part B drugs. The letter outlines several concerns regarding the application of step therapy [...]

NCCS Congratulates Nobel Prize in Medicine Winners for Cancer Immunotherapy Research

October 1, 2018

Silver Spring, MD – The National Coalition for Cancer Survivorship (NCCS) issued the following statement after the announcement of this year’s winners for the Nobel Prize in Medicine, James P. Allison and Tasuku Honjo, whose research into the human immune system led to immunotherapy cancer drugs. “The National Coalition for Cancer Survivorship (NCCS) congratulates Dr. James Allison and Dr. Tasuku Honjo for their breakthrough research [...]

Health Care Roundup: NCCS on Proposed OPPS Changes; Bipartisan Proposal to End ‘Surprise Billing’; Medicaid Work Req’s; Financial Toxicity Survey; More

September 28, 2018

HEALTH CARE HIGHLIGHTS—NCCS submitted a letter to the Centers for Medicare and Medicaid Services (CMS) on the proposed update to the hospital outpatient prospective payment system, known as OPPS, for calendar year 2019. In the letter, NCCS addressed the proposed “site neutral” payments, which would reduce patient cost-sharing but could have other unintended consequences for patient access. NCCS also commented on [...]

NCCS Submits Recommendations to CMS Regarding Proposed Changes to Hospital Outpatient Prospective Payment System (OPPS)

September 27, 2018

NCCS submitted a letter to the Centers for Medicare and Medicaid Services (CMS) on the proposed update to the hospital outpatient prospective payment system, known as OPPS, for calendar year 2019. In the letter, NCCS outlines support for a change in payment for clinical services that are provided at off-campus provider-based departments that will reduce cost-sharing for patients for clinic visits. Additionally, CMS included a “request for information” [...]

NCCS Joins Cancer Leadership Council Recommendations to FDA Regarding the Biosimilar Action Plan

September 26, 2018

NCCS joined with other organizations of the Cancer Leadership Council (CLC) in commenting on the FDA Biosimilar Action Plan (BAP). The comment letter commended the FDA for the development of a plan that balances both innovation and competition. The letter stated that these products provide significant benefits to cancer patients, but that they also come at a significant expense to patients and the health care system. [...]

Health Care Roundup: ‘Misleading’ Pre-Existing Conditions Bill; Clinical Trials Lack Black Patients; ‘Cancer Coaching’ Ethics; Young Adult Cancer Advocates

September 21, 2018

NCCS and 30+ Patient Orgs Raise Concerns Over Senate Pre-Ex Bill — This week, NCCS and more than 30 other patient advocacy organizations submitted a letter to Senator Tillis (R-NC) detailing why his bill does not go far enough in protecting pre-existing conditions despite his intentions. The bill title, “Ensuring Coverage for Patients with Pre-Existing Conditions Act” (S.3388), is misleading and, if passed, would not provide adequate coverage [...]

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