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NCCS filed comments on the Food and Drug Administration’s Draft Guidance for Industry and Food and Drug Administration Staff: In Vitro Companion Diagnostic Devices on October 12, 2011. The Draft sets out a proposed framework for drug and test makers to use in developing targeted treatments and new tests to help identify patients most likely to benefit […]
Journey Forward has received the Wellsphere’s Health Impact Award for its extraordinary contributions to cancer survivors. The award acknowledges that the program has increased progress in areas such as health research, understanding, empathy, inspiration, awareness, accessibility, and networking. Journey Forward is an innovative nationwide program to promote the use of Survivorship Care Plans that will help […]
NCCS has revised and updated Teamwork: the Cancer Patient’s Guide to Talking with Your Doctor booklet to include a sample treatment plan with a map to appropriate questions for each component to ensure the patient remains an active team member and decision maker in their care. A treatment summary template and sample survivorship care plan have also […]
The National Coalition for Cancer Survivorship was selected by the Cardinal Health Foundation as one of 42 grant recipients to fund organizational programs that help U.S. hospitals, health systems and community health organizations improve the effectiveness, efficiency and excellence of patient care. The grant will help support NCCS’s efforts in using technology and mobile applications […]
NCCS has recently updated two of its long-standing publications: one that addresses employment rights as a cancer survivor and the other that helps cancer patients understand and define their health insurance options and rights. The organization has also recognized that during the final stage of survivorship, having important discussions and making deliberate decisions can help patients […]
NCCS, along with 11 other organizations sponsored an Institute of Medicine (IOM) consensus study: Improving the Quality of Cancer Care: Addressing the Challenges of an Aging Population. On May 21, 2012, the committee began to examine issues in the quality of cancer care with a specific focus on the demographic changes that will rapidly accelerate the […]
NCCS was recently invited to participate in a roundtable discussion on the potential role of Health Information Technology in cancer care and care coordination. Senior Health Policy Advisor Ellen Stovall attended the June 7th meeting organized by the National Cancer Institute at NIH, the eHealth Initiative, and Dr. Farzad Mostashari, the National Coordinator for Health […]
The National Coalition for Cancer Survivorship (NCCS), a national organization representing survivors of all types of cancer, commends the Supreme Court for affirming the constitutionality of the primary provisions of the Affordable Care Act. “Many cancer survivors struggle to get timely, high-quality care that they can afford, and the Affordable Care Act will help them […]
White House officials say they are confident the Supreme Court will uphold the health-care law, but they also are preparing for a range of outcomes, including pressing ahead with what remains of the law if the court strikes down only part of it. Republicans, meanwhile, are preparing a two-step approach if the court doesn’t void […]
Cancer is complicated. And being a survivor can be complicated, too — confounding, confronting, and confusing. Even starting with the word itself. It can be confusing to know exactly what is meant by cancer survivor. So for the first time in the 18 years of my own survival, I looked up the definition on the […]
Survivorship Champions is a program for all clinicians and researchers, both oncology and primary care, who are interested in improving survivorship care and primary care’s role in caring for cancer survivors.
The NCCS Cancer Policy & Advocacy Team (CPAT) is a program for survivors and caregivers to learn about pressing policy issues that affect quality cancer care in order to be engaged as advocates in public policy around the needs of cancer survivors.
NCCS represents the millions of Americans who share a common experience – living with, through and beyond a cancer diagnosis. By sharing your story of how you have been touched by cancer, you are supporting the national cancer survivorship movement.
Together we can improve cancer care for survivors! Sign up to be the first to know about cancer policy issues and ways to take action
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Founder
Northeast Regional Cancer Institute
“Perhaps one of the most impactful collaborations in Dr. Brereton’s extraordinary career remains his early work and long friendship with Ellen Stovall. Through him, and in turn through the thousands of lives he has touched, Ellen’s work continues, and her mission lives on.”
—Karen M. Saunders
President, Northeast Regional Cancer Institute