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The United States House of Representatives’ Energy and Commerce Committee released a Call to Action and announced the 21st Century Cures initiative to analyze the discovery, development, and delivery of cures and propose policy solutions. Over the course of the initiative, which officially launched on June 1, 2014, the committee will issue a series of […]
We have recently added another valuable survivorship resource to our Influential Publications, strengthening the evidence base for our advocacy efforts on behalf of all individuals impacted by cancer. “The Law of Intended Consequences: Did the Americans with Disabilities Act Amendments Act Make It Easier for Cancer Survivors to Prove Disability Status?” (reprinted from the New York […]
This week NCCS CEO Shelley Fuld Nasso and Senior Health Policy Advisor Ellen Stovall presented in separate sessions at the Seventh Biennial Cancer Survivorship Research Conference. Shelley discussed the ways NCCS is working to foster the adoption of cancer care planning, including tools to prepare patients for the conversation, delivery and payment reforms to encourage […]
A diagnosis of childhood cancer is devastating and impacts families for many years. While we have seen progress in survival for some types of childhood cancer, it remains the number one cause of death by disease for children in our country. Moreover, of the nearly 380,000 survivors of childhood cancer now living in the U.S., […]
An op-ed authored by NCCS CEO Shelley Fuld Nasso and published in the Santa Barbara Independent today championed hospice care, the Medicare Care Choices Program, and cancer care planning for Medicare beneficiaries. Citing the common view that seeking hospice care is equivalent to “giving up,” Fuld Nasso notes that a flaw in the current system […]
Three articles caught our eye at NCCS this week. The one that raises the most questions for us in terms of policy development is from our friend, Amy Abernathy, appearing as a blog post for the June 10th issue of The Hill. Her argument in support of patient-centered care is something we have advocated for […]
Cancer Policy Matters Guest Post by Tanisha Carino, Executive Vice President, Avalere Health The Affordable Care Act provides an unprecedented opportunity for millions to gain coverage through the exchange marketplace by enrolling in a qualified health plan (QHP) that covers essential health benefits and limits financial exposure to excessive out-of-pocket costs. More than 8 million […]
A recent episode of Take Care, a health care-focused radio show produced by NPR affiliate WRVO, featured an interview with Dr. Patricia Ganz, a medical oncologist and director of the UCLA LIVESTRONG Cancer Survivorship Center of Excellence. In the interview, Dr. Ganz describes a number of issues that can plague cancer survivors after active treatment […]
I am happy to be back in the office, after spending five days in Chicago at the American Society of Clinical Oncology (ASCO) Annual Meeting. It was ASCO’s 50th anniversary, and this year was the highest attendance, with 33,000 people from around the globe. It’s an exciting and exhausting five days, with scientific sessions that […]
Last week we noted two recent articles addressing palliative and end of life care issues, including an article written from the first-hand experience of Amy Berman, who is both a nurse and an individual living with cancer. In Amy Berman’s recent post on the Health Affairs Blog, she describes palliative care as the “best friend of the seriously ill.” […]
Survivorship Champions is a program for all clinicians and researchers, both oncology and primary care, who are interested in improving survivorship care and primary care’s role in caring for cancer survivors.
The NCCS Cancer Policy & Advocacy Team (CPAT) is a program for survivors and caregivers to learn about pressing policy issues that affect quality cancer care in order to be engaged as advocates in public policy around the needs of cancer survivors.
NCCS represents the millions of Americans who share a common experience – living with, through and beyond a cancer diagnosis. By sharing your story of how you have been touched by cancer, you are supporting the national cancer survivorship movement.
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Founder
Northeast Regional Cancer Institute
“Perhaps one of the most impactful collaborations in Dr. Brereton’s extraordinary career remains his early work and long friendship with Ellen Stovall. Through him, and in turn through the thousands of lives he has touched, Ellen’s work continues, and her mission lives on.”
—Karen M. Saunders
President, Northeast Regional Cancer Institute