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Take Action: The Alliance for Childhood Cancer “2014 Childhood Cancer Action Days”

June 20, 2014/in Cancer News, Cancer Policy Blog, NCCS News NCCS News /by actualize

A diagnosis of childhood cancer is devastating and impacts families for many years. While we have seen progress in survival for some types of childhood cancer, it remains the number one cause of death by disease for children in our country. Moreover, of the nearly 380,000 survivors of childhood cancer now living in the U.S., most experience significant and distressing symptoms and conditions – sometimes appearing years after their treatment ends in the form of late effects resulting from their life-saving treatments, causing health challenges that last their lifetime.

As an advocate for all cancer survivors, NCCS is a member of the Alliance for Childhood Cancer — a forum of national patient advocacy groups and medical and scientific organizations which works collaboratively to advance research and policies to prevent cancer, and improve public education, and the diagnosis, treatment, supportive care and survivorship of children and adolescents with cancer. We will be participating in the 2014 Childhood Cancer Action Days on June 23rd and 24th, an event that includes issues and advocacy training and Capitol Hill visits with members of Congress and their staff. The Alliance goal is to provide the childhood cancer community – parents, children, and others – with the opportunity to visit their legislators and advocate for the important childhood cancer issues currently before Congress.

There are many ways for you to help. Check out this blog post from the American Childhood Cancer Organization or this post from Children’s Cause for Cancer Advocacy for more information and details about getting involved.

Tags: Cancer Survivorship, childhood cancer
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  • About
    • Our Mission
    • Our History
    • Our Leadership
      • Policy Advisors
    • Employment
    • Partnerships
    • Financial Information
  • Policy
    • Quality Cancer Care
    • Access to Care
    • Health Equity
    • Redefining Functional Status (RFS)
    • 2020 State of Cancer Survivorship Survey
    • Cancer Care Planning and Communications Act (CCPCA)
  • Get Involved
    • What is Advocacy?
    • Cancer Policy and Advocacy Team (CPAT)
    • Elevating Survivorship
    • Survivor Stories
    • Cancerversary
    • State Based Cancer Advocacy
  • Resources
    • COVID-19 Resources for Cancer Survivors
    • Survivorship Checklist
    • Cancer Survival Toolbox
    • Telehealth
    • Publications
      • Talking With Your Doctor
      • Self Advocacy
      • Employment Rights
      • Remaining Hopeful
    • Cancer Convos Podcast
    • Taking Charge of Your Care
    • Care Planning for Cancer Survivors
    • Tools For Care Providers
    • Order Our Resources
  • News
  • Events
    • From Shadows to Life: A Biography of the Cancer Survivorship Movement
    • Ellen L. Stovall Award
      • 2020 Stovall Awards
      • Honorees
      • Sponsors
      • Committees
      • Reception
      • Nominations
    • Cancer Policy Roundtable
      • Fall 2020 Cancer Policy Roundtable
      • Spring 2020 Cancer Policy Roundtable
    • Cancer Policy and Advocacy Team (CPAT) Symposium 2020
    • Webinars
  • Contact Us

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Harmar Brereton, MD

Founder
Northeast Regional Cancer Institute

 

“Perhaps one of the most impactful collaborations in Dr. Brereton’s extraordinary career remains his early work and long friendship with Ellen Stovall. Through him, and in turn through the thousands of lives he has touched, Ellen’s work continues, and her mission lives on.”

—Karen M. Saunders
President, Northeast Regional Cancer Institute