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Having cancer is terrifying. Period. Often, well-intended doctors find themselves unable to mitigate this panic. As humans we are challenged with this disease as old as our chromosomes, struck at the core of our identity, of our body, of our sense of self. We are removed from work, from a normal agenda, from our families, […]
NCCS submitted comments to the Centers for Medicare and Medicaid Services (CMS) on the proposed rule on the Medicare Access and CHIP Reauthorization Act of 2015 (MACRA). Our comments focus on the role of consumers in identification, development, and endorsement of quality measures. As health care delivery and payment transition from a volume-based system, it […]
NCCS joined with patient advocacy organizations in the Cancer Leadership Council (CLC) in submitting comments to the Reagan-Udall Foundation regarding the Draft Project Proposal for the Expanded Access Navigator for Individual Patient Access. In our letter, we commend the revisions to guidance documents, FDA educational materials, and the FDA website related to expanded access and […]
We are nearing the end of the 2016 ASCO Annual Meeting in Chicago and looking forward to Vice President Joe Biden’s address on the National Cancer Moonshot Initiative this afternoon. The ASCO Annual Meeting provides updates on treatment advances and is followed by patients, physicians, biotech companies, and investors. Immuno-oncology is once again the hot […]
“Let me introduce you to Maria Lisa. Maria Lisa is a patient from Peru, like I am, and she lives in Alaska. I would like to spend a few seconds here looking closely at her face and her situation. …Maria Lisa looks overwhelmed and tired. This is in part because Maria Lisa lives with multiple […]
“For the loved ones we’ve all lost, for the family we can still save, let’s make America the country that cures cancer once and for all.” With these words, President Obama launched his vision for the National Cancer Moonshot Initiative during his 2016 State of the Union address, which Vice President Joe Biden is leading. […]
If you have ever wanted to use your cancer journey—either as a survivor or as a caregiver—to make a difference, you are invited to join the NCCS Cancer Policy & Advocacy Team (CPAT)! Driven by the energy and experiences of the CPAT Steering Committee, CPAT provides cancer survivors and caregivers with tools and training that […]
In 1992, Congress passed the first Prescription Drug User Fee Act (PDUFA), a law that allows the Food and Drug Administration (FDA) to collect fees from drug companies that apply to the FDA for approval to market their drugs for specific medical conditions, e.g., a chemotherapy drug for ALK-positive lung cancer. All drugs that treat […]
NCCS joined with patient advocacy organizations in the Cancer Leadership Council (CLC) in submitting comments to the Centers for Medicare and Medicaid Services (CMS) on its proposed Part B drug payment demonstration project. Over many years, the CLC has advocated reforms in Medicare reimbursement for cancer care, to support the delivery of evidence-based care that […]
The Centers for Medicare and Medicaid Services (CMS) announced that they are postponing the release of their Hospital Compare Star Ratings. This is an unfortunate delay, as these ratings will serve as a valuable tool for cancer survivors and their families to have the information necessary to make informed decisions about where they receive care. […]
Survivorship Champions is a program for all clinicians and researchers, both oncology and primary care, who are interested in improving survivorship care and primary care’s role in caring for cancer survivors.
The NCCS Cancer Policy & Advocacy Team (CPAT) is a program for survivors and caregivers to learn about pressing policy issues that affect quality cancer care in order to be engaged as advocates in public policy around the needs of cancer survivors.
NCCS represents the millions of Americans who share a common experience – living with, through and beyond a cancer diagnosis. By sharing your story of how you have been touched by cancer, you are supporting the national cancer survivorship movement.
Together we can improve cancer care for survivors! Sign up to be the first to know about cancer policy issues and ways to take action
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Founder
Northeast Regional Cancer Institute
“Perhaps one of the most impactful collaborations in Dr. Brereton’s extraordinary career remains his early work and long friendship with Ellen Stovall. Through him, and in turn through the thousands of lives he has touched, Ellen’s work continues, and her mission lives on.”
—Karen M. Saunders
President, Northeast Regional Cancer Institute