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Coronavirus and Cancer Resources for Survivors

Cancer survivors have expressed concerns and questions about COVID-19, the coronavirus, and how they may be at higher risk due to their cancer history. Here are some resources about COVID-19 generally, and its impact for cancer survivors specifically. NCCS is seeking answers from public health experts on the coronavirus and its impact on cancer patients and survivors. Please leave a comment [...]
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NCCS Submits Comments on CMS Proposed ACA Market Stabilization Rule

NCCS submitted comments to the Centers for Medicare and Medicaid Services (CMS) on the proposed rule that is intended to “help stabilize…
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ACA Update | February 24, 2017: The Leaked Draft ACA Replacement Bill

A draft reconciliation bill that outlines the GOP Obamacare replacement was leaked by Politico earlier today. The 106-page draft bill confirms many of our concerns that a Republican replacement plan will be catastrophic for cancer patients. Sarah Kliff from Vox.com outlines what this bill would do and what it would mean for sick individuals. [...]
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What Caught Our Eye: ACA Support at All-Time High, Kasich: ACA Repeal is ‘Very Bad Idea,’ Cancer’s Financial Burden, and Your Cancer Genome

What Caught Our Eye is our week-in-review blog series. Ohio Gov. John Kasich says he won't "sit silent" and watch the Affordable Care Act's Medicaid expansion get "ripped out" as Republicans work to repeal the law. | High-risk pools are at the center of most of the Republican plans to replace the ACA.
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What Caught Our Eye: GOP ACA Talking Points Analysis, Right to Try Op-Ed, “Worry, Scan, Treat, Repeat”

Kaiser Health News’ Julie Rovner analyzes key Republican talking points on the ACA. One concern consumers have is high out-of-pocket costs. But, Rovner writes, “Republicans’ most popular proposals for replacing current individual insurance plans — cutting back on required benefits and giving more people access to tax-preferred health savings accounts — would likely increase [...]
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ACA Update | February 17, 2017: GOP Outlines Replacement, Congress Goes Home for District Work Period

On Thursday, House Speaker Paul Ryan (R-WI) announced that Republicans plan to introduce repeal and replace legislation the week of February 27. This followed a Republican caucus meeting where the elements of the legislation were outlined. The Hill summarized the plan saying, “the GOP bill will include tax credits, an expansion of Health Savings Accounts, money for [...]
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Mommy, Where’s Your Hair? (And Other Questions I Faced as a Parent with Cancer)

It’s one thing to have cancer, and quite another to have children witness it. At age 37, I was diagnosed with Stage IV inflammatory breast cancer; I had a large tumor in my left breast, and the cancer had spread to lymph nodes and a rib. And I had a 14-month-old son and a 4-year-old daughter. Parenting with cancer is sadly not an uncommon phenomenon; [...]
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ACA Update | February 13, 2017: More of the Same from Congressional Republicans

The Brookings Institute released a report entitled, “Five-State Study of ACA Marketplace Competition.” The study authors conducted on-the-ground interviews and research in five states, California, Florida, Michigan, North Carolina, and Texas, to see what is and what isn’t working. Our take away is this: of course the ACA is not perfect. But in the states that fully embraced and implemented the law, [...]
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What Caught Our Eye: ACA Analysis/Debate, Doc/Patient Communication, Universal Cancer Care, Financial Toxicity, Palliative Care Pain Studies

As the repeal and replace debate continues in Washington, the Brookings Institution spearheaded a study to look at what is and isn’t working with the Affordable Care Act. Their look at five states who implemented the ACA in various ways is informative to help inform where we go from here.
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What Caught Our Eye: ACA Uncertainty, Coping Post-Treatment, Biden’s New Research Charity, Survivorship Care Plans

A new study by the Associated Press-NORC Center for Public Affairs Research found that only 16% of Americans feel the ACA should be repealed immediately. | Last weekend, Republican members of Congress gathered in Philadelphia, PA for a party retreat to address some of the most pressing topics. However, one topic remains without consensus is how they will approach the repeal and replacement of the Affordable Care Act.
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ACA Update | February 3, 2017: Inadequate Replacement Plans

There remains no consensus among Republicans around a replacement plan for the ACA. In fact, more replacement proposals were presented, and after NCCS analyzed these proposals, we found that they do not come close to the level of protections the ACA provides currently and are therefore not adequate for cancer survivors.

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Link to: Survivorship Champions

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Survivorship Champions is a program for all clinicians and researchers, both oncology and primary care, who are interested in improving survivorship care and primary care’s role in caring for cancer survivors.

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Link to: Cancer Policy and Advocacy Team (CPAT)

Join CPAT

The NCCS Cancer Policy & Advocacy Team (CPAT) is a program for survivors and caregivers to learn about pressing policy issues that affect quality cancer care in order to be engaged as advocates in public policy around the needs of cancer survivors.

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Link to: Survivor Stories

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NCCS represents the millions of Americans who share a common experience – living with, through and beyond a cancer diagnosis. By sharing your story of how you have been touched by cancer, you are supporting the national cancer survivorship movement.

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