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Twenty years ago NCCS defined quality cancer care to include a full spectrum of necessary services for cancer patients. These included primary and secondary prevention, early detection, initial treatment, supportive therapies to manage pain, nausea, fatigue, and infections, long-term follow-up, psychosocial services, palliative care, hospice care, and bereavement counseling. This principle, and all of the […]
In another excellent piece in the The New Yorker entitled “Overkill,” Dr. Atul Gawande writes about what he calls an “avalanche” of unnecessary care Americans are receiving. With his characteristic mix of hard data, policy analysis, and personal stories, he describes the harms of overtreatment, to both individuals and the health care system. He writes, […]
Susan Gubar's Living With Cancer: Becoming a Caregiver https://t.co/OaEHabDNs0 via @nytimeswell — NCCS – National Coalition for Cancer Survivorship (@CancerAdvocacy) May 8, 2015 A cancer survivor designs the cards she wishes she’d received from friends and family: https://t.co/bKV9SFdVoV via @slate — NCCS – National Coalition for Cancer Survivorship (@CancerAdvocacy) May 8, 2015 It’s Not Just […]
The fourth principle in the Imperatives for Quality Cancer Care states, “All people diagnosed with cancer should have access to and coverage for services provided by a multidisciplinary team of care providers across the full continuum of care. Health care plans should be held accountable for timely referral to appropriate specialists when symptoms of cancer […]
Over the weekend, I had the pleasure of attending and presenting at Stupid Cancer CancerCon in Denver, Colorado. Stupid Cancer is the largest US-based charity that comprehensively addresses young adult cancer through advocacy, research, support, outreach, awareness, mobile health, and social media. CancerCon is their yearly conference and social networking event for the young adult […]
The National Coalition for Cancer Survivorship is hosting a free webinar titled, “Patient-Care Team Communication: How Can the Survivor Prepare to Manage a Lifetime of Care?” on Wednesday, April 29 from 3:00pm-4:30pm EDT as part of our Cancer Policy Advocate Training (CPAT) program. The CPAT program aims to train patient advocates on pressing cancer policy issues. […]
This month, as part of the 20 Years Later series, we are revisiting the fourth principle of the Imperatives for Quality Cancer Care: Access, Advocacy, and Accountability. Transcript: The fourth principle in the Imperatives for Quality Cancer Care states, “All people diagnosed with cancer should have access to and coverage for services provided by a multidisciplinary […]
Dr. Walter F. Baile moderated a panel at the Spring 2015 Cancer Policy Roundtable that included many perspectives on how cancer patients and oncology professionals can collaborate in decision-making that will improve care planning and coordination. Following the panel, Dr. Baile sat down with us to discuss this issue further. In defining shared decision-making as […]
Marlene King was diagnosed with Ductal Carcinoma in Situ (DCIS) in 2008 at the age of 48, and she elected to have a lumpectomy, chemotherapy and radiation. After treatments the cancer seemed to be in remission. In 2011, the cancer returned and she decided it would be best to have to a double mastectomy and reconstructive surgery. However, one […]
This past weekend Kelsey Nepote of NCCS was honored to present a session on patient advocacy at the Stupid Cancer 2015 CancerCon event in Denver. As the largest oncology conference of its kind for the young adult cancer movement, CancerCon brought out hundreds of survivors at different points in the continuum of care, as well as caregivers and loved […]
Survivorship Champions is a program for all clinicians and researchers, both oncology and primary care, who are interested in improving survivorship care and primary care’s role in caring for cancer survivors.
The NCCS Cancer Policy & Advocacy Team (CPAT) is a program for survivors and caregivers to learn about pressing policy issues that affect quality cancer care in order to be engaged as advocates in public policy around the needs of cancer survivors.
NCCS represents the millions of Americans who share a common experience – living with, through and beyond a cancer diagnosis. By sharing your story of how you have been touched by cancer, you are supporting the national cancer survivorship movement.
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Founder
Northeast Regional Cancer Institute
“Perhaps one of the most impactful collaborations in Dr. Brereton’s extraordinary career remains his early work and long friendship with Ellen Stovall. Through him, and in turn through the thousands of lives he has touched, Ellen’s work continues, and her mission lives on.”
—Karen M. Saunders
President, Northeast Regional Cancer Institute