Tag Archive for: patient tools

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Coronavirus and Cancer Resources for Survivors

Cancer survivors have expressed concerns and questions about COVID-19, the coronavirus, and how they may be at higher risk due to their cancer history. Here are some resources about COVID-19 generally, and its impact for cancer survivors specifically. NCCS is seeking answers from public health experts on the coronavirus and its impact on cancer patients and survivors. Please leave a comment [...]
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Introducing PatientTrueTalk.com – A Way for Advocates to Directly Help the Newly Diagnosed

Patient True Talk is the only patient-to-patient registry where patients and/or their caregivers can create profiles with as much information as they feel comfortable sharing, and find matching profiles based on algorithms created by some of the country’s top clinical oncologists. Patients/caregivers can also search along their diagnosis/treatment parameters, refining their search based on the results provided. They can then send secure messages [...]
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NCCS Webinar Video: “Understanding Fear of Cancer Recurrence”

Those with a cancer experience are all too familiar with the anxiety that many experience wondering and waiting if and how cancer…
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What Caught Our Eye: ACA Uncertainty, Coping Post-Treatment, Biden’s New Research Charity, Survivorship Care Plans

A new study by the Associated Press-NORC Center for Public Affairs Research found that only 16% of Americans feel the ACA should be repealed immediately. | Last weekend, Republican members of Congress gathered in Philadelphia, PA for a party retreat to address some of the most pressing topics. However, one topic remains without consensus is how they will approach the repeal and replacement of the Affordable Care Act.
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Guest Blog: Example of a Case Impacted by the Help-Hurt Tool

Ms. M is an 81-year-old woman with Stage IV Pancreatic Cancer. She had remained in great health until her recent diagnosis, after…
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Guest Blog: Improving How Doctors and Patients Have Difficult Conversations

Having cancer is terrifying. Period. Often, well-intended doctors find themselves unable to mitigate this panic. As humans we are…
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WCOE: Effects of Financial Toxicity, Patient Database Helps Researchers Nationally, New CLRC Handbook for Survivors, Metastatic Cancer and Employment

What Caught Our Eye (WCOE) Each week, we recap the cancer policy articles, studies, and stories that caught our attention. https://twitter.com/CancerAdvocacy/status/700043345758912518 https://twitter.com/letlifehappen/status/699677662197907456 https://twitter.com/CancerAdvocacy/status/700029898950340608 https://twitter.com/CancerAdvocacy/status/700353043158691840 https://twitter.com/AACR/status/699991745149345792 More…
20years

Twenty Years Later Blog Series: Introducing the Tenth Principle of the Imperatives for Quality Cancer Care

This month, as part of our 20 Years Later blog series, we are revisiting the tenth principle of the 1995 NCCS publication Imperatives…
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Video Post: Dr. Bob Carlson and Joan McClure Discuss the National Comprehensive Cancer Network Guidelines

The National Comprehensive Cancer Network (NCCN) is a non-profit organization, created by an alliance of 26 leading cancer centers…
20years

Guest Post by Dr. Patricia Ganz: What Cancer Patients and Their Families Can Do to Coordinate Post-Treatment Care

Twenty years later, the 9th Principle of the NCCS Imperatives for Quality Cancer Care could not be more relevant. Increasingly,…
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WCOE: Hunting for Health Care Procedures, Surging Costs of Cancer Care, Getting to Doctors Appointments, Logistic Toxicity, and A Beautiful Piece by Oliver Sacks

What Caught Our Eye (WCOE) Each week, we recap the cancer policy articles, studies, and stories that caught our attention. h…

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Link to: Survivorship Champions

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Survivorship Champions is a program for all clinicians and researchers, both oncology and primary care, who are interested in improving survivorship care and primary care’s role in caring for cancer survivors.

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Link to: Cancer Policy and Advocacy Team (CPAT)

Join CPAT

The NCCS Cancer Policy & Advocacy Team (CPAT) is a program for survivors and caregivers to learn about pressing policy issues that affect quality cancer care in order to be engaged as advocates in public policy around the needs of cancer survivors.

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Link to: Survivor Stories

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NCCS represents the millions of Americans who share a common experience – living with, through and beyond a cancer diagnosis. By sharing your story of how you have been touched by cancer, you are supporting the national cancer survivorship movement.

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