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WCOE: No Action on ACA Stabilization Bill; ‘Black Cancer Matters’; Risks of At-Home Genetic Testing; Hospital Payment Reform; and More

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What Caught Our Eye (WCOE), is our week-in-review blog series. “Health insurers say the GOP-led Congress’ inaction on ACA stabilization legislation is sure to hurt consumers” Bruce Japsen, Forbes.com — After months of negotiating around an ACA stabilization package that was set to be included in this week’s spending bill, no agreement was made and the stabilization provisions were left out of the spending package all together. […]

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What Caught Our Eye: Multiple Proposals Continue to Weaken ACA Patient Protections; Breast Cancer Cost Survey; Editing Genes to Treat Cancer

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What Caught Our Eye is our week-in-review blog series — “Understanding Short-Term Limited Duration Health Insurance” — Karen Pollitz, Kaiser Family Foundation — The Health and Human Services Department published new rules Tuesday that expand access to short term health plans that exclude patients with preexisting conditions and don’t cover basic services like prescription drugs.

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What Caught Our Eye: A New GOP Health Plan, Looming Uncertainty for Insurers, Sharing Genetic Cancer Risks with Children, and More

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Trumpcare is back. And worse than ever. — Via Vox.com — “House Republicans are floating a new amendment to their health care bill — one that would likely cause even more Americans to lose coverage than the last version. Leaders of the staunchly conservative Freedom Caucus and the more moderate Tuesday Group have reportedly hashed out a proposal that would let some states ditch key Obamacare policies, such as the […]

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What Caught Our Eye: ACA Support at All-Time High, Kasich: ACA Repeal is ‘Very Bad Idea,’ Cancer’s Financial Burden, and Your Cancer Genome

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What Caught Our Eye is our week-in-review blog series. Ohio Gov. John Kasich says he won’t “sit silent” and watch the Affordable Care Act’s Medicaid expansion get “ripped out” as Republicans work to repeal the law. | High-risk pools are at the center of most of the Republican plans to replace the ACA.

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WCOE: Genetic Testing for Cancer Survivors, Survivorship as a ‘Chronic Condition,’ Post-Treatment Neuropathy, Moonshot Funding

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What Caught Our Eye (WCOE) Each week, we recap the cancer policy articles, studies, and stories that caught our attention. Insurer's approval of genetic testing for some cancers raises questions https://t.co/zxk1j3y7EG via @usatoday — NCCS – National Coalition for Cancer Survivorship (@CancerAdvocacy) February 3, 2016 Important question: Is Cancer Survivorship a 'Complex Chronic Condition'? https://t.co/KxBYz3kAaS […]

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Video Post: Dr. Keith Flaherty Discusses Genetics of Cancer, Targeted Therapies, and Clinical Trials

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Dr. Keith T. Flaherty gave the keynote talk at our 2015 Spring Cancer Policy Roundtable where he addressed the issues of the genetics of cancer and personalization in cancer treatment. Dr. Flaherty later joined us to further discuss these topics and the need for understanding the biologic basis of an individual patient’s cancer.  While we […]

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NCCS Policy Comments: FDA’s Framework for Regulatory Oversight of Laboratory Developed Tests (LDTs)

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NCCS submitted comments to the Food and Drug Administration (FDA) on the Draft Guidance: Framework for Regulatory Oversight of Laboratory Developed Tests (LDTs).  We support the FDA’s efforts to develop a strong regulatory framework for LDTs and commend the agency for the open and transparent process it has pursued in developing the framework and receiving […]

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The Genetic Information Nondiscrimination Act (GINA)

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This post is part of a special blog series: “The Imperatives for Quality Cancer Care: 20 Years Later.” Read more from this series. The first imperative states, “People with cancer have the right to a system of universal health care. This access should not be precluded because of preexisting conditions, genetic or other risk factors, […]

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Balancing Patient Protections and Innovation: NCCS Applauds FDA Action to Regulate Laboratory-Developed Tests

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The National Coalition for Cancer Survivorship (NCCS) commends the Food and Drug Administration (FDA) for taking critical steps to ensure that the promise of personalized cancer medicine is realized and that cancer patients can rest assured that they are receiving treatments consistent with their diagnoses. Today, FDA notified Congress that it will issue a draft […]

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WCOE: Patient-Centered Care, “The Fault in Our Stars” and Genetic Data

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Three articles caught our eye at NCCS this week.  The one that raises the most questions for us in terms of policy development is from our friend, Amy Abernathy, appearing as a blog post for the June 10th issue of The Hill. Her argument in support of patient-centered care is something we have advocated for […]

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