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Posts

WCOE: No Action on ACA Stabilization Bill; ‘Black Cancer Matters’; Risks of At-Home Genetic Testing; Hospital Payment Reform; and More

March 23, 2018/in Cancer News, Cancer Policy Blog Access to Care, Affordable Care Act, Disparities in Outcomes, Drug Pricing, Financial Toxicity, Health Equity, Payment Reform, Quality Cancer Care NCCS News /by actualize

What Caught Our Eye (WCOE), is our week-in-review blog series. “Health insurers say the GOP-led Congress’ inaction on ACA stabilization legislation is sure to hurt consumers” Bruce Japsen, Forbes.com — After months of negotiating around an ACA stabilization package that was set to be included in this week’s spending bill, no agreement was made and the stabilization provisions were left out of the spending package all together. […]

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https://canceradvocacy.org/wp-content/uploads/2017/01/NCCS-Starburst-250px.png 250 250 actualize https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png actualize2018-03-23 15:52:342018-03-23 15:52:34WCOE: No Action on ACA Stabilization Bill; ‘Black Cancer Matters’; Risks of At-Home Genetic Testing; Hospital Payment Reform; and More

What Caught Our Eye: Multiple Proposals Continue to Weaken ACA Patient Protections; Breast Cancer Cost Survey; Editing Genes to Treat Cancer

February 23, 2018/in Cancer News, Cancer Policy Blog Access to Care, Affordable Care Act, Financial Toxicity, Health Equity, Pre-Existing Conditions NCCS News /by actualize

What Caught Our Eye is our week-in-review blog series — “Understanding Short-Term Limited Duration Health Insurance” — Karen Pollitz, Kaiser Family Foundation — The Health and Human Services Department published new rules Tuesday that expand access to short term health plans that exclude patients with preexisting conditions and don’t cover basic services like prescription drugs.

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https://canceradvocacy.org/wp-content/uploads/2017/01/NCCS-Starburst-250px.png 250 250 actualize https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png actualize2018-02-23 16:33:082018-02-23 16:33:08What Caught Our Eye: Multiple Proposals Continue to Weaken ACA Patient Protections; Breast Cancer Cost Survey; Editing Genes to Treat Cancer

What Caught Our Eye: A New GOP Health Plan, Looming Uncertainty for Insurers, Sharing Genetic Cancer Risks with Children, and More

April 21, 2017/in Cancer News, Cancer Policy Blog Access to Care, Affordable Care Act, Health Care Coverage NCCS News /by actualize

Trumpcare is back. And worse than ever. — Via Vox.com — “House Republicans are floating a new amendment to their health care bill — one that would likely cause even more Americans to lose coverage than the last version. Leaders of the staunchly conservative Freedom Caucus and the more moderate Tuesday Group have reportedly hashed out a proposal that would let some states ditch key Obamacare policies, such as the […]

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https://canceradvocacy.org/wp-content/uploads/2017/01/NCCS-Starburst-250px.png 250 250 actualize https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png actualize2017-04-21 15:00:262021-09-29 07:20:29What Caught Our Eye: A New GOP Health Plan, Looming Uncertainty for Insurers, Sharing Genetic Cancer Risks with Children, and More

What Caught Our Eye: ACA Support at All-Time High, Kasich: ACA Repeal is ‘Very Bad Idea,’ Cancer’s Financial Burden, and Your Cancer Genome

February 24, 2017/in Cancer News, Cancer Policy Blog Access to Care, Affordable Care Act, Care Planning, Financial Toxicity, Health Equity, Quality Cancer Care NCCS News /by actualize

What Caught Our Eye is our week-in-review blog series. Ohio Gov. John Kasich says he won’t “sit silent” and watch the Affordable Care Act’s Medicaid expansion get “ripped out” as Republicans work to repeal the law. | High-risk pools are at the center of most of the Republican plans to replace the ACA.

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https://canceradvocacy.org/wp-content/uploads/2017/01/NCCS-Starburst-250px.png 250 250 actualize https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png actualize2017-02-24 15:04:512020-10-22 07:52:27What Caught Our Eye: ACA Support at All-Time High, Kasich: ACA Repeal is ‘Very Bad Idea,’ Cancer’s Financial Burden, and Your Cancer Genome

WCOE: Genetic Testing for Cancer Survivors, Survivorship as a ‘Chronic Condition,’ Post-Treatment Neuropathy, Moonshot Funding

February 5, 2016/in Cancer News, Cancer Policy Blog Quality Cancer Care, Survivorship Care NCCS News /by actualize

What Caught Our Eye (WCOE) Each week, we recap the cancer policy articles, studies, and stories that caught our attention. Insurer's approval of genetic testing for some cancers raises questions https://t.co/zxk1j3y7EG via @usatoday — NCCS – National Coalition for Cancer Survivorship (@CancerAdvocacy) February 3, 2016 Important question: Is Cancer Survivorship a 'Complex Chronic Condition'? https://t.co/KxBYz3kAaS […]

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Video Post: Dr. Keith Flaherty Discusses Genetics of Cancer, Targeted Therapies, and Clinical Trials

October 19, 2015/in Cancer News, Cancer Policy Blog Access to Care, Clinical Guidelines, Clinical Trials, Quality Cancer Care NCCS News /by actualize

Dr. Keith T. Flaherty gave the keynote talk at our 2015 Spring Cancer Policy Roundtable where he addressed the issues of the genetics of cancer and personalization in cancer treatment. Dr. Flaherty later joined us to further discuss these topics and the need for understanding the biologic basis of an individual patient’s cancer.  While we […]

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NCCS Policy Comments: FDA’s Framework for Regulatory Oversight of Laboratory Developed Tests (LDTs)

February 2, 2015/in Cancer News, Cancer Policy Blog, FDA, Policy Comments Clinical Guidelines, Quality Cancer Care NCCS News, Policy Comments /by actualize

NCCS submitted comments to the Food and Drug Administration (FDA) on the Draft Guidance: Framework for Regulatory Oversight of Laboratory Developed Tests (LDTs).  We support the FDA’s efforts to develop a strong regulatory framework for LDTs and commend the agency for the open and transparent process it has pursued in developing the framework and receiving […]

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The Genetic Information Nondiscrimination Act (GINA)

January 31, 2015/in Cancer News, Cancer Policy Blog Quality Cancer Care, Survivorship Care NCCS News /by actualize

This post is part of a special blog series: “The Imperatives for Quality Cancer Care: 20 Years Later.” Read more from this series. The first imperative states, “People with cancer have the right to a system of universal health care. This access should not be precluded because of preexisting conditions, genetic or other risk factors, […]

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Balancing Patient Protections and Innovation: NCCS Applauds FDA Action to Regulate Laboratory-Developed Tests

July 31, 2014/in Cancer News, Cancer Policy Blog, FDA, Policy Comments Quality Cancer Care, Survivorship Care NCCS News, Policy Comments /by actualize

The National Coalition for Cancer Survivorship (NCCS) commends the Food and Drug Administration (FDA) for taking critical steps to ensure that the promise of personalized cancer medicine is realized and that cancer patients can rest assured that they are receiving treatments consistent with their diagnoses. Today, FDA notified Congress that it will issue a draft […]

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WCOE: Patient-Centered Care, “The Fault in Our Stars” and Genetic Data

June 13, 2014/in Cancer News, Cancer Policy Blog Care Coordination, Care Planning, Payment Reform, Quality Cancer Care NCCS News /by actualize

Three articles caught our eye at NCCS this week.  The one that raises the most questions for us in terms of policy development is from our friend, Amy Abernathy, appearing as a blog post for the June 10th issue of The Hill. Her argument in support of patient-centered care is something we have advocated for […]

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Latest News

NCCS Advocate Spotlight: Sharon Rivera Sanchez - Triple Negative Breast Cancer Survivor Finds Passion in Fitness and Advocacy

Sharon Rivera-Sanchez: Triple Negative Breast Cancer Survivor Finds Passion in Fitness and Advocacy

January 12, 2023
As a Triple Negative Breast Cancer survivor, Sharon turned her personal experience into a passion for advocacy and giving back to the community. When she received her diagnosis in May 2015, she remembers being in a state of shock and grief. She said, “You have to allow yourself time to breathe and grieve.”
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Rep. Debbie Wasserman Schultz introduces Comprehensive Cancer Survivorship Act at December 14, 2022 press conference.

NCCS Celebrates Launch of Comprehensive Cancer Survivorship Act

December 14, 2022
Representative Debbie Wasserman Schultz (FL-23), a champion for cancer survivors and a survivor herself, held a press conference today…
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https://canceradvocacy.org/wp-content/uploads/CCSA-Blog-Featured-Image-1200-×-600-px-1.png 600 1200 Kara Kenan https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png Kara Kenan2022-12-14 16:03:462022-12-14 16:03:46NCCS Celebrates Launch of Comprehensive Cancer Survivorship Act
Alique Topalian, PhD, MPH Advocate Spotlight

Alique Topalian: Childhood Cancer and the Frightening Realities of the Survivorship Journey

December 7, 2022
Alique was first diagnosed with Acute Myeloid Leukemia (AML) at the age of four. Her mother, Michele, knew something was wrong because “the light in her eyes was gone”. After being told by doctors that there was nothing wrong, her family was relentless until new blood work uncovered blast cells.
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  • About
    • Our Mission
    • Our History
    • The 1986 Club
    • Our Team
      • Policy Advisors
    • Employment
    • Partnerships
    • Financial Information
  • Policy
    • Quality Cancer Care
    • Access to Care
    • Health Equity
    • Redefining Functional Status (RFS)
    • 2022 State of Cancer Survivorship Survey
    • 2021 State of Cancer Survivorship Survey
    • 2020 State of Cancer Survivorship Survey
    • Cancer Care Planning and Communications Act (CCPCA)
  • Get Involved
    • What is Advocacy?
    • Cancer Policy and Advocacy Team (CPAT)
    • Survivorship Champions
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Harmar Brereton, MD

Founder
Northeast Regional Cancer Institute

 

“Perhaps one of the most impactful collaborations in Dr. Brereton’s extraordinary career remains his early work and long friendship with Ellen Stovall. Through him, and in turn through the thousands of lives he has touched, Ellen’s work continues, and her mission lives on.”

—Karen M. Saunders
President, Northeast Regional Cancer Institute