
NCCS Statement on the Passage of the STAR Childhood Cancer Act and the Right to Try Act
Silver Spring, MD – The National Coalition for Cancer Survivorship issued the following statement regarding passage of both the Childhood Cancer Survivorship, Treatment, Access, and Research (STAR) Act (S. 292) and the Trickett Wendler, Frank Mongiello, Jordan McLinn, and Matthew Bellina Right to Try Act (S. 204). Both are now ...

NCCS Joins Cancer Leadership Council to Oppose Right to Try Legislation in the House
The National Coalition for Cancer Survivorship joined with other organizations of the Cancer Leadership Council (CLC) in a letter to House leadership to oppose House consideration of the Trickett Wendler, Frank Mongiello, Jordan McLinn, and Matthew Bellina Right to Try Act (S. 204).The legislation passed the House on May 22 ...

ACA Update March 23, 2018 | Congress Passes Spending Bill, Leaves Out ACA Market Stabilization
The spending bill, known as the omnibus, passed – but the push for ACA stabilization was not included. Beginning last summer, Senators Alexander and Murray were working on a bipartisan package that would aim to stabilize the ACA through cost-sharing reduction payments, outreach funding and reinsurance funding. In early December, ...

NCCS Joins Letter Expressing “Serious Reservations” About “Right to Try” Legislation
NCCS joined with colleagues in the Cancer Leadership Council to express serious reservations about proposed “right to try” legislation that will remove the Food and Drug Administration (FDA) from the approval process for patient access to an investigational therapy outside a clinical trial. NCCS does not believe that right to ...

ACA Update Jan 19, 2018 | Funding for CHIP and Community Health Centers Hangs in the Balance as Gov’t Shutdown Looms
The federal government will shut down tonight at midnight if Congress doesn’t pass a spending bill before then. The Children’s Health Insurance Program (CHIP) was up for reauthorization four months ago, but because of budget disagreements between Democrats and Republicans on how to pay for the program, they have yet ...

NCCS Joins Letter to Congress Opposing Health Care Cuts in Tax Reform Legislation
NCCS and the 11 other member organizations of the Cancer Leadership Council sent a letter to Congress expressing "serious concerns about the potential negative impact of tax reform legislation currently under consideration on those living with cancer." Three areas of concern discussed in the letter are repeal of the Affordable ...

NCCS Joins AARP In Opposing Medical Expense Deduction Repeal
NCCS joined a letter, spearheaded by AARP and sent to all members of the House of Representatives, opposing the proposed elimination of the Medical Expense Deduction. The proposed repeal is included in the Tax Cuts and Jobs Act of 2017. A total of 37 organizations signed the letter. Read the ...

ACA Update | October 13, 2017 – Trump Administration Cuts Off Cost-Sharing Payments, Signs Executive Order to Undermine the ACA
After the actions President Trump took this week, there’s no question the Administration is actively working to undermine the Affordable Care Act (ACA). Yesterday, the President signed an Executive Order making sweeping changes to the ACA that would hurt patients and disrupt the ACA marketplace and he announced the Administration ...

NCCS Sends Letter to Sen. Hatch on Health Care Reform Priorities
(NCCS) sent a letter to Sen. Orrin Hatch (R-UT), Chairman of the Senate Finance Committee, in response to his office’s request for input from stakeholders regarding health care reform. “As the Senate continues to discuss health care reform, and in light of the destructive American Health Care Act passed by ...