Tag Archive for: clinical trials

NCCS Statement on Nomination of Dr. Scott Gottlieb for FDA Commissioner

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NCCS applauds the nomination of Dr. Scott Gottlieb for commissioner of the FDA. Dr. Gottlieb’s experience as a physician, a policymaker, and a patient uniquely qualifies him to lead the FDA at this important time. The agency confronts a rich pipeline of new products for cancer and other illnesses, and these products raise complicated scientific and clinical issues. FDA must also implement the provisions of the 21st Century Cures […]

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What Caught Our Eye: High-Risk Pools, “Trumpcare,” Childhood Cancer Survivors, Medicaid Spending, Trump’s FDA Deregulation

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What Caught Our Eye (WCOE), March 3, 2017 What Caught Our Eye is our week-in-review blog series, where we recap the cancer policy articles, studies, and stories that caught our attention. Affordable Care Act “States Be Warned: High-Risk Pools Offer Little Help At A High Cost” Do high-risk pools offer little help at a high […]

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What Caught Our Eye: GOP ACA Talking Points Analysis, Right to Try Op-Ed, “Worry, Scan, Treat, Repeat”

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Kaiser Health News’ Julie Rovner analyzes key Republican talking points on the ACA. One concern consumers have is high out-of-pocket costs. But, Rovner writes, “Republicans’ most popular proposals for replacing current individual insurance plans — cutting back on required benefits and giving more people access to tax-preferred health savings accounts — would likely increase […]

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Ask Your Oncologist About Clinical Drug Trials

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If you had asked me in December 2012 if I would ever participate in a clinical drug trial, my answer would have been a resounding, “No.” The very word “trial” scared me off; I didn’t want to be a guinea pig, a test subject. I wanted proven medicine.

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Webinar Video: “Cancer Moonshot – Symptom Management and Funding”

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This week, NCCS hosted the latest CPAT webinar, Cancer Moonshot: Symptom Management and Funding. The featured presenters were Deborah K. Mayer, PhD, RN, AOCN, FAAN; and MK Holohan, JD. Dr. Mayer is the Director of Cancer Survivorship at the UNC Lineberger Cancer Center and a member of the Cancer Moonshot Blue Ribbon Panel. Ms. Holohan […]

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NCCS Comments on the FDA’s PDUFA Proposed Commitment Letter

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NCCS submitted comments to the Food and Drug Administration (FDA) on the letter representing the agreement between FDA and regulated industry on goals for the re-authorization of the Prescription Drug User Fee Act (PDUFA VI). NCCS participated in the PDUFA stakeholder meetings held over the last year, and we support the role […]

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WCOE: Traveling for Treatment, Bipartisan Cancer Policy, Some Tumors Evade Targeted Therapy, Treatment vs Hype, Clinical Trials Info

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What Caught Our Eye (WCOE) Each week, we recap the cancer policy articles, studies, and stories that caught our attention. From @cure_magazine On the Road to Recovery: Traveling for #Cancer Treatment https://t.co/TFFijL2dpT #survivorship — NCCS – National Coalition for Cancer Survivorship (@CancerAdvocacy) March 9, 2016 Via @RollCall: #Cancer Experiences Could Help Forge Bipartisan Policy https://t.co/aBxTEO1UiX […]

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WCOE: NCCS Moonshot Op-Ed, ACA Enrollment Deadline, Susan Gubar, BRCA Gene and Family, Poor Treatment Outcomes for Minorities

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What Caught Our Eye (WCOE) Each week, we recap the cancer policy articles, studies, and stories that caught our attention. NCCS CEO @sfuldnasso op-ed in @TheHill on #CancerMoonshot: Three questions @VP Biden's team needs to answer. https://t.co/3NAGYoyfHQ — NCCS – National Coalition for Cancer Survivorship (@CancerAdvocacy) January 28, 2016 Still need health ins. for 2016? […]

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WCOE: Current Status of State Medicaid Expansion, Diversity of Clinical Trials, ACA Enrollment Deadline Extended

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What Caught Our Eye (WCOE) Each week, we recap the cancer policy articles, studies, and stories that caught our attention. UPDATED #MedicaidExpansion map: Includes status changes for #Virginia & #Utah https://t.co/03PuV7IlHO pic.twitter.com/bAtfVjd1vs — KFF (Kaiser Family Foundation) (@KFF) December 17, 2015 Via @NPR: Clinical Trials Still Don't Reflect The Diversity Of America https://t.co/wfziapU5Xu — NCCS […]

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Dr. Julia Rowland Discusses the Importance of Psychosocial Care: Engagement and Dialogue

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This post is part of our 20 Years Later blog series which examines progress in advancing the principles in the 1995 NCCS publication Imperatives for Quality Cancer Care: Access, Advocacy, Action, and Accountability(Imperatives). The eleventh principle states that “Psychosocial research is integral to comprehensive cancer care and, as such, psychosocial outcome measures should be included in all future clinical […]

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