NCCS joined the Alliance for Childhood Cancer in submitting comments to the Food and Drug Administration (FDA) following the January 2014 public workshop on complex issues in developing drug and biological products for rare diseases. The Alliance encouraged the FDA to consider the issues specific to pediatric cancers that may ...

A recent edition of the Journal of Clinical Oncology (JCO) has attracted our attention for the disturbing statistics it revealed about the issues related to the acceleration of aging among adult survivors of childhood cancer. For 27 years, the National Coalition for Cancer Survivorship (NCCS) has focused on patient-centered policy ...

President Obama announced that the month of September will officially be known as National Childhood Cancer Awareness Month. The proclamation, released on August 30th, applauds the advancements that have been made in recent decades while noting that pediatric cancer remains the leading cause of death by disease for American children ...

NCCS is a member of the Alliance for Childhood Cancer and joined with the Alliance to support the introduction of the Carolyn Pryce Conquer Childhood Cancer Reauthorization Act. This legislation would make important progress to expand child, adolescent, and young adult cancer research, improve the tracking of cancer incidences, and ...

The December 27, 2012, New England Journal of Medicine includes an important research article on the impact of drug shortages on children with cancer.  The study, conducted by Drs. Monika Metzger, Amy Billett, and Michael Link, evaluated the impact of shortages of mechlorethamine for treatment of intermediate-risk Hodgkin’s lymphoma in ...

A crucial medicine to treat childhood leukemia is in such short supply that hospitals across the country may exhaust their stores within the next two weeks, leaving hundreds and perhaps thousands of children at risk of dying from a largely curable disease, federal officials and cancer doctors say. “This is ...

Four decades ago, President Nixon signed a law that would change the way cancer research was funded in an effort to develop better treatments and cure more patients. Health correspondent Betty Ann Bowser explores the positive developments pediatric cancer research has realized in the last 40 years. "This is way ...

Patient Protection and Affordable Care Act The Honorable Kathleen Sebelius Secretary Department of Health and Human Services 200 Independence Avenue, SW Washington, DC 20201 RE: OCIIO- 4150-IFC Dear Secretary Sebelius: The National Coalition for Cancer Survivorship (NCCS) appreciates this opportunity to comment on the interim final rules related to coverage ...

NCCS volunteer and Super Advocate, Jasan Zimmerman, is featured in a CNN Health article about childhood cancer survivors. The article references a new study in the Journal of the American Medical Association that finds that survivors of childhood cancer are at increased risk of dying of second cancers and circulatory diseases 25 years ...