WCOE: Impact of Discussions About Financial Burdens, Cancer’s Toll in Rural America, Autoimmune Diseases and Childhood Cancer Survivors
What Caught Our Eye (WCOE) Each week, we recap the cancer policy articles, studies, and stories that caught our attention. Patient-provider discussions about financial burdens has positive impact on treatment costs https://t.co/05o7iPnlGc— Oncology Nursing News (@OncNursingNews) November 13, 2015 Found too late: Cancer's devastating toll in rural America, https://t.co/GcbHl0E2CO pic.twitter.com/XidLxrIhEA— ...
Guest Post by Dr. Melissa Hudson: How Has the Childhood Cancer Survivor Study Informed the Care of Children With Cancer?
The eighth principle in the Imperatives for Quality Cancer Care states, "Systematic long-term follow-up should generate data that contribute to improvements in cancer therapies and decreases in morbidity." In this post, Dr. Melissa Hudson of St. Jude Children's Hospital describes the multitude of ways in which the Childhood Cancer Survivor ...
Guest Post: “Coughing and Spluttering” — NCCS Co-Founder Susie Leigh Writes About Improving Care for Long-Term Survivors
The sixth principle of the Imperatives states, “People with histories of cancer have the right to continued medical follow-up with basic standards of care that include the specific needs of long-term survivors.” NCCS has been on the forefront of incorporating care and survivorship care plans into cancer care. Providing her ...
NCCS Policy and Advocacy Manager Kelsey Nepote Attends and Presents at CancerCon: Takeaways and Steps for Moving Forward
Over the weekend, I had the pleasure of attending and presenting at Stupid Cancer CancerCon in Denver, Colorado. Stupid Cancer is the largest US-based charity that comprehensively addresses young adult cancer through advocacy, research, support, outreach, awareness, mobile health, and social media. CancerCon is their yearly conference and social networking ...
NCCS Session at CancerCon 2015 Presents Two Types of Advocacy
This past weekend Kelsey Nepote of NCCS was honored to present a session on patient advocacy at the Stupid Cancer 2015 CancerCon event in Denver. As the largest oncology conference of its kind for the young adult cancer movement, CancerCon brought out hundreds of survivors at different points in the continuum ...
Exploring Access to Unapproved Therapies
In a series entitled, “When Unapproved Drugs Are the Only Hope,” Meg Tirrell of CNBC takes an in-depth look into the complicated issue of patient access to drugs that have not yet been approved by the FDA, also known as “compassionate use” or expanded access programs (EAPs). She presents the ...
WCOE: Pediatric Cancer Survivorship Challenges and an ACA Progress Report
What Caught Our Eye (WCOE) Each week, we take a closer look at the cancer policy articles, studies, and stories that caught our attention. A PBS Newshour segment, “Pediatric Cancer Survivors Face a Lifetime of Health Challenges,” discusses the late effects and potential secondary cancers that survivors of pediatric cancers face ...
A New Addition to Our Policy Team: Kelsey Nepote’s First Assignment with Alliance for Childhood Cancer Action Days
On Monday of last week it was with great pleasure that I started in my new position at NCCS as Policy and Advocacy Manager. My first assignment was to attend the Alliance for Childhood Cancer Action Days, which NCCS first reported on in June. This two-day event had significant meaning ...
WCOE: Childhood Cancer Action Day, NCCS Provides Patient Perspective at IOM Workshop, and Pre-Hospice Program Report
What Caught Our Eye (WCOE) Each week, we take a closer look at the cancer policy articles, studies, and stories that caught our attention. It is unfortunate that our current system and incentives focus on volume, rather than patients’ health and well-being. In a blog post on The Hill, Stephen Crowley ...
Take Action: The Alliance for Childhood Cancer “2014 Childhood Cancer Action Days”
A diagnosis of childhood cancer is devastating and impacts families for many years. While we have seen progress in survival for some types of childhood cancer, it remains the number one cause of death by disease for children in our country. Moreover, of the nearly 380,000 survivors of childhood cancer ...
