Tag Archive for: childhood cancer

Health Care Roundup: CMS Halts ACA Risk Payments, Slashes Navigator Funding; Long-Term Outcomes for Young Survivors; Drug Pricing; More

/in , , , , , ,

CMS Halts ACA Risk-Adjustment Payments and Cuts Funding for Health Coverage Navigators — This week, the Centers for Medicare and Medicaid Services (CMS) announced two new actions that could harm the Affordable Care Act (ACA) marketplaces and enrollment. Last Saturday, CMS announced that it would halt the risk-adjustment program, including $10 billion in payments due to insurers for costs incurred last year. […]

Read more

Health Care Roundup: Association Health Plans and ACA Repeal; Benefits of Exercise for Childhood Survivors; NIH Grant System; and More

/in , , , , ,

Association Health Plans Rule Finalized – The association health plans (AHP) rule was finalized by the Labor Department as the Trump administration continues its efforts to strike down the Affordable Care Act (ACA) through regulatory action. While marketed as a way for small businesses and trade groups to sell cheaper coverage, the rule allows plans NOT to cover the ACA’s 10 “essential health benefits.” NCCS joined with the Cancer Leadership Council […]

Read more

NCCS Statement on the Passage of the STAR Childhood Cancer Act and the Right to Try Act

/in , , ,

Silver Spring, MD – The National Coalition for Cancer Survivorship issued the following statement regarding passage of both the Childhood Cancer Survivorship, Treatment, Access, and Research (STAR) Act (S. 292) and the Trickett Wendler, Frank Mongiello, Jordan McLinn, and Matthew Bellina Right to Try Act (S. 204). Both are now headed to the President’s desk […]

Read more

Health Care Roundup: 2018 Cancer Status Report; Childhood Cancer STAR Act Passes; “When a Rural Hospital Shuts Down;” and More

/in , , ,

HEALTH CARE HIGHLIGHTS – Annual Cancer Status Report Released – On Tuesday, the Annual Report to the Nation on the Status of Cancer was released. This report is a collaborative effort of NCI, CDC, ACS, and NAACCR. The report includes mortality data through 2015. It shows that, from 1999 to 2015, overall cancer death rates decreased by 1.8 percent per year among men and by 1.4 percent per year among women. […]

Read more

ACA Update Jan 19, 2018 | Funding for CHIP and Community Health Centers Hangs in the Balance as Gov’t Shutdown Looms

/in , ,

The federal government will shut down tonight at midnight if Congress doesn’t pass a spending bill before then. The Children’s Health Insurance Program (CHIP) was up for reauthorization four months ago, but because of budget disagreements between Democrats and Republicans on how to pay for the program, they have yet to come to an agreement. The House passed a continuing resolution, a short-term spending bill, that would fund […]

Read more

ACA Update Jan 12, 2018 | Trump Admin Moves to Allow Medicaid Work Requirements; CHIP Extension Would Save Gov’t Billions

/in , , ,

Earlier this week, NCCS’ CEO Shelley Fuld Nasso and Public Policy Manager Lindsay Houff hosted a Facebook Live health care policy update. They discussed legislative priorities for 2018 that impact cancer survivors and how you can help us advocate. On Thursday, the Trump administration released a 10-page memo outlining directions about how states can change Medicaid to include work requirements. Jane Perkins, legal director […]

Read more

What Caught Our Eye: ACA Open Enrollment Info, Tax Bill Eliminates Medical Expense Deduction, A Young Med Student’s Lymphoma Story

/in , ,

What Caught Our Eye (WCOE) is our week-in-review blog series, where we recap the cancer policy articles, studies, and stories that caught our attention. Affordable Care Act – It’s Open Enrollment Season! Do You Know Your Health Insurance? – It’s officially “open enrollment season” and that means millions of Americans are about to dive into an alphabet soup of insurance choices. To help with this problem, Merck collaborated with health literacy […]

Read more

What Caught Our Eye: Cassidy-Graham Repeal Plan; Bipartisan ACA Hearings; Financial Issues for Childhood Survivors; IBM’s Watson Not Living Up to Expectations; and More

/in , , , ,

What Caught Our Eye (WCOE), September 8, 2017 | What Caught Our Eye is our week-in-review blog series, where we recap the cancer policy articles, studies, and stories that caught our attention. | “Cassidy-Graham: the Obamacare repeal plan McCain is supporting, explained” — The senator who cast the final vote to kill Obamacare repeal is unexpectedly helping to revive that effort from the dead. Sen. John McCain told the Hill Wednesday that he would support a plan […]

Read more

What Caught Our Eye 8/4: GOP Governors Look to Cut Medicaid, Young Cancer Survivors Struggle Socially, Right to Try, FDA Funding, & More

/in , , , , , ,

What Caught Our Eye is our week-in-review blog series, where we recap the cancer policy articles, studies, and stories that caught our attention. “Republicans in Congress Bypass Trump to Shore Up Health Law” – Via New York Times — Congressional Republicans moved on Tuesday to defuse President Trump’s threat to cut off critical payments to health insurance companies, maneuvering around the president toward bipartisan legislation […]

Read more

Young Adult Cancer Survivors Worry What the AHCA Would Mean for Them

/in , , , , , ,

Last month, I had the honor of speaking at CancerCon, an incredible gathering of 650 adolescent and young adult (AYA) cancer survivors, their caregivers, and health care providers and advocates from across the country. Along with Kelsey Nepote, NCCS Advocacy Manager, and Kate Houghton, CEO of Critical Mass, we presented “From Patient to Advocate – Using Your Voice to Make Change.” We talked about the journey from […]

Read more

Take Action

Link to: Survivorship Champions

Become a Survivorship Champion

Survivorship Champions is a program for all clinicians and researchers, both oncology and primary care, who are interested in improving survivorship care and primary care’s role in caring for cancer survivors.

Learn More and Join »
Link to: Cancer Policy and Advocacy Team (CPAT)

Join CPAT

The NCCS Cancer Policy & Advocacy Team (CPAT) is a program for survivors and caregivers to learn about pressing policy issues that affect quality cancer care in order to be engaged as advocates in public policy around the needs of cancer survivors.

Learn More and Join »
Link to: Survivor Stories

Share Your Story

NCCS represents the millions of Americans who share a common experience – living with, through and beyond a cancer diagnosis. By sharing your story of how you have been touched by cancer, you are supporting the national cancer survivorship movement.

Share Your Story »

STAY CONNECTED

Together we can improve cancer care for survivors! Sign up to be the first to know about cancer policy issues and ways to take action

  • This field is for validation purposes and should be left unchanged.

National Coalition for Cancer Survivorship
8455 Colesville Road  |  Suite 930  |  Silver Spring, MD 20910
877-NCCS-YES  |  info@canceradvocacy.org
Privacy Policy  |  Terms and Conditions

Copyright © 1995-2023 by the National Coalition for Cancer Survivorship
National Coalition for Cancer Survivorship, NCCS, Cancer Survival Toolbox, and related Logos are registered in the United States as trademarks of the National Coalition for Cancer Survivorship.