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Cancer Nation (Formerly NCCS)
  • About

        • About Us

        • Cancer Nation is the oldest cancer survivor-led non-profit organization in America. We advocate for quality cancer care for all touched by cancer.

        • About Cancer Nation

        • Our Mission
        • What is Advocacy?Learn about the different types of cancer advocacy, from personal advocacy to public interest advocacy.
        • Our HistoryRead how Cancer Nation’s leaders coined the term “cancer survivor,” and established the nation’s first survivor-led non-profit organization.
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    • Cancer Nation News Blog
    • Advocate SpotlightEach month, Cancer Nation highlights a cancer survivorship advocate, sharing their story and the work they do in their communities.
    • Policy CommentsRead Cancer Nation’s comments to Congress, HHS, and other federal policymakers in Washington, DC on proposed rules and legislation.
    • Issue StatementsRead Cancer Nation statements on pressing issues and developments in Washington affecting cancer survivors and their families.
    • Newsletter: Cancer Nation News
  • Policy

        • Policy

        • Public policy is government action, in the form of legislation, regulation, funding, and other actions. Public policy affects people with cancer and the cancer care system in many ways.

        • Our Policy Priorities

        • Quality Cancer CareQuality cancer care is essential for patients. Learn how Cancer Nation and others define quality.
        • Access to CareCancer Nation believes cancer care and clinical trials should be affordable and accessible to everyone.
        • Health EquityThe cancer experience is not the same for everyone. Cancer Nation works on policy efforts to reduce disparities in outcomes.

        • Current Issues

        • Protecting Access to Medicaid for Cancer Survivors
        • Comprehensive Cancer Survivorship Act (CCSA)The CCSA is a large comprehensive bill introduced in Congress that aims to improve quality of care in all stages of a diagnosis.
        • Cancer Care Planning and Communications Act (CCPCA)CCPCA is a bill that would provide a billable Medicare service code for cancer care planning.
        • DIEP Flap AccessCancer Nation advocates for protection of access to DIEP Flap Breast Reconstruction Surgery for all breast cancer survivors.
        • Policy CommentsRead Cancer Nation’s comments to Congress, HHS, and other federal policymakers in Washington, DC on proposed rules and legislation.
        • Issue StatementsRead Cancer Nation statements on pressing issues and developments in Washington affecting cancer survivors and their families.
        • Quality Measurement Research
  • Get Involved

        • Get Involved

        • Whether you’re new to cancer advocacy or already have experience as an advocate, there are numerous ways you can get involved with Cancer Nation.

        • Join Cancer Nation

        • Cancer Nation AdvocatesA program that brings together individuals who care about cancer care to learn how policy shapes our health care system—and how we can improve it together.
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        • Advocacy OpportunitiesThis page provides a list of upcoming events, webinars, conferences, and advocacy campaigns from Cancer Nation and other leading cancer organizations.

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        • Cancer Nation conducts an annual State of Survivorship Survey, in partnership with Edge Research, to explore the cancer patient and survivor journey. This study captures a range of perspectives to better understand how Cancer Nation can support its mission to advocate for quality cancer care for all.

        • Reports by Year

        • 2025 Survey Report
        • 2024 Survey Report
        • 2023 Survey ReportThe 2023 Survey explored the caregiver experience for the first time, and features new data on the effect of cancer treatment on employment.
        • 2022 Survey ReportThe 2022 Survey found significant disparities in cancer care that impact people of color, young adults, women, and those with metastatic cancer, at higher rates.
        • 2021 Survey ReportThe 2021 Survey demonstrated that when patients receive quality care, have excellent support, and have financial resources, they are more likely to have positive outcomes.
        • 2020 Survey ReportIn the 2020 Survey, survivors reported that their care team is not helpful at addressing some common side effects of their cancer such as fatigue, anxiety, and depression.
  • Survivorship Checklist

        • Cancer Survivorship Checklist

        • The Cancer Survivorship Checklist is designed to be a simple, straightforward tool patients and caregivers can use as a guide for information critical to their care wherever they are on the cancer care continuum.

        • Start Your Cancer Survivorship Checklist
        • Survivorship Checklist Guide for Clinicians

        • Resources for Cancer Survivors

        • Survivorship ResourcesA collection of resources that provide information about navigating the cancer journey.
        • Cancer RehabilitationA supportive health care service that helps improve a person’s functioning during and after cancer treatment.
        • Integrative OncologyA field that combines traditional cancer treatments with therapies that support a person’s natural healing ability.
        • Palliative CareSpecialized medical care for people living with a serious illness that provides relief from the symptoms and stress to improve their quality of life.
        • Cognitive HealingA resource to support cognitive functioning after cancer treatment. Includes cognitive training strategies and tools for both adults and children.
  • Resources

        • Resources

        • Cancer Nation provides a wide variety of resources for patients, caregivers, and health care professionals.

        • Resources for Survivors and Caregivers

        • Health Insurance & Open Enrollment
        • Cancer Survival ToolboxA free, award-winning audio program created by leading cancer organizations to help people better meet & understand the challenges of their illness.
        • Ina® The Intelligent Nutrition Assistant
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        • Order Our Resources

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News

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NCCS Comments on Medicare Access and CHIP Reauthorization Act of 2015 (MACRA) Proposed Rule

June 30, 2016
NCCS submitted comments to the Centers for Medicare and Medicaid Services (CMS) on the proposed rule on the Medicare Access and CHIP…
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NCCS Joins Letter to Reagan-Udall Foundation Regarding the Expanded Access Navigator Program

June 21, 2016
NCCS joined with patient advocacy organizations in the Cancer Leadership Council (CLC) in submitting comments to the Reagan-Udall Foundation…
Read more
https://canceradvocacy.org/wp-content/uploads/2014/07/Fotolia_23428619_S-e1461260836640.jpg 515 1030 actualizedevs https://canceradvocacy.org/wp-content/uploads/CancerNation_Logo_40Yrs_Stacked_TwoColor-scaled.png actualizedevs2016-06-21 17:19:482016-06-21 17:19:48NCCS Joins Letter to Reagan-Udall Foundation Regarding the Expanded Access Navigator Program
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News You Didn’t Hear From ASCO’s Annual Meeting

June 6, 2016
We are nearing the end of the 2016 ASCO Annual Meeting in Chicago and looking forward to Vice President Joe Biden's address on the…
Read more
0 0 actualizedevs https://canceradvocacy.org/wp-content/uploads/CancerNation_Logo_40Yrs_Stacked_TwoColor-scaled.png actualizedevs2016-06-06 15:08:372016-06-06 15:08:37News You Didn’t Hear From ASCO’s Annual Meeting
The Role of the PACT Act

CPAT Webinar Available Online: “A Conversation Around Shared Decision-Making and A Patient Revolution—and The Role of the PACT Act”

June 2, 2016
“Let me introduce you to Maria Lisa.  Maria Lisa is a patient from Peru, like I am, and she lives in Alaska.  I would like to…
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https://canceradvocacy.org/wp-content/uploads/The-Role-of-the-PACT-Act.jpg 515 1030 actualizedevs https://canceradvocacy.org/wp-content/uploads/CancerNation_Logo_40Yrs_Stacked_TwoColor-scaled.png actualizedevs2016-06-02 14:35:042020-12-01 11:49:30CPAT Webinar Available Online: “A Conversation Around Shared Decision-Making and A Patient Revolution—and The Role of the PACT Act”
importance of advancing survivorship

Guest Post: Important To Weigh In On Survivorship Issues For Moonshot

May 11, 2016
“For the loved ones we’ve all lost, for the family we can still save, let’s make America the country that cures cancer once and…
Read more
https://canceradvocacy.org/wp-content/uploads/Survivorship-Issues-For-Moonshot.jpg 515 1030 actualizedevs https://canceradvocacy.org/wp-content/uploads/CancerNation_Logo_40Yrs_Stacked_TwoColor-scaled.png actualizedevs2016-05-11 18:00:582022-02-03 13:56:22Guest Post: Important To Weigh In On Survivorship Issues For Moonshot
The Role of the PACT Act

Join the NCCS Cancer Policy & Advocacy Team: Empowering Those Touched by Cancer to Change Cancer Care

May 11, 2016
If you have ever wanted to use your cancer journey—either as a survivor or as a caregiver—to make a difference, you are invited…
Read more
https://canceradvocacy.org/wp-content/uploads/The-Role-of-the-PACT-Act.jpg 515 1030 actualizedevs https://canceradvocacy.org/wp-content/uploads/CancerNation_Logo_40Yrs_Stacked_TwoColor-scaled.png actualizedevs2016-05-11 11:05:292020-12-01 11:54:52Join the NCCS Cancer Policy & Advocacy Team: Empowering Those Touched by Cancer to Change Cancer Care
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A Voice for Cancer Survivors in the PDUFA Stakeholder Meetings

May 11, 2016
In 1992, Congress passed the first Prescription Drug User Fee Act (PDUFA), a law that allows the Food and Drug Administration (FDA)…
Read more
https://canceradvocacy.org/wp-content/uploads/2014/07/Fotolia_23428619_S-e1461260836640.jpg 515 1030 actualizedevs https://canceradvocacy.org/wp-content/uploads/CancerNation_Logo_40Yrs_Stacked_TwoColor-scaled.png actualizedevs2016-05-11 10:40:102021-02-16 10:23:38A Voice for Cancer Survivors in the PDUFA Stakeholder Meetings
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NCCS Joins Patient Advocates in Proposing Alternative Approach to CMS’ Part B Drug Payment Demonstration

May 10, 2016
NCCS joined with patient advocacy organizations in the Cancer Leadership Council (CLC) in submitting comments to the Centers for Medicare…
Read more
https://canceradvocacy.org/wp-content/uploads/2014/07/Fotolia_23428619_S-e1461260836640.jpg 515 1030 actualizedevs https://canceradvocacy.org/wp-content/uploads/CancerNation_Logo_40Yrs_Stacked_TwoColor-scaled.png actualizedevs2016-05-10 16:19:002016-05-10 16:19:00NCCS Joins Patient Advocates in Proposing Alternative Approach to CMS’ Part B Drug Payment Demonstration
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News

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Latest News

Joslyn Trovati Advocate Spotlight Blog Banner

There Is No Right or Wrong Way to Grieve: Joslyn Trovati on Grief, Survivorship, and Whole Person Cancer Care

August 26, 2026
Joslyn Trovati is an oncology therapist and young adult cancer survivor who advocates for grief support and Whole Person Cancer Care. Read her story.
Read more
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Group of researchers working in a lab

Cancer Nation Joins Amicus Brief in Suit Over Vaccine Recommendations

July 24, 2026
Last week, Cancer Nation joined leading patient advocacy and public health organizations in supporting an amicus (or friend-of-the-court)…
Read more
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a graphic with a text headline reading "Cancer Nation Announces New Leadership Academy Cohort", underneath are Headshots of all 12 2026 cancer Nation Ambassadors side-by-side

Meet the 2026 Cancer Nation Leadership Academy Ambassadors

July 15, 2026
We are proud to welcome the 2026 Cancer Nation Leadership Academy cohort. Following a competitive application process, 12 survivors,…
Read more
https://canceradvocacy.org/wp-content/uploads/Leadership-Academy-Announcement-1200-600-2.jpg 600 1200 Elleni https://canceradvocacy.org/wp-content/uploads/CancerNation_Logo_40Yrs_Stacked_TwoColor-scaled.png Elleni2026-07-15 15:41:172026-07-15 16:53:13Meet the 2026 Cancer Nation Leadership Academy Ambassadors

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  • About
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Harmar Brereton, MD

Founder
Northeast Regional Cancer Institute

 

“Perhaps one of the most impactful collaborations in Dr. Brereton’s extraordinary career remains his early work and long friendship with Ellen Stovall. Through him, and in turn through the thousands of lives he has touched, Ellen’s work continues, and her mission lives on.”

—Karen M. Saunders
President, Northeast Regional Cancer Institute