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Cancer Nation (Formerly NCCS)
  • About

        • About Us

        • Cancer Nation is the oldest cancer survivor-led non-profit organization in America. We advocate for quality cancer care for all touched by cancer.

        • About Cancer Nation

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        • What is Advocacy?Learn about the different types of cancer advocacy, from personal advocacy to public interest advocacy.
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    • Policy CommentsRead Cancer Nation’s comments to Congress, HHS, and other federal policymakers in Washington, DC on proposed rules and legislation.
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        • Public policy is government action, in the form of legislation, regulation, funding, and other actions. Public policy affects people with cancer and the cancer care system in many ways.

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        • Quality Cancer CareQuality cancer care is essential for patients. Learn how Cancer Nation and others define quality.
        • Access to CareCancer Nation believes cancer care and clinical trials should be affordable and accessible to everyone.
        • Health EquityThe cancer experience is not the same for everyone. Cancer Nation works on policy efforts to reduce disparities in outcomes.

        • Current Issues

        • Protecting Access to Medicaid for Cancer Survivors
        • Comprehensive Cancer Survivorship Act (CCSA)The CCSA is a large comprehensive bill introduced in Congress that aims to improve quality of care in all stages of a diagnosis.
        • Cancer Care Planning and Communications Act (CCPCA)CCPCA is a bill that would provide a billable Medicare service code for cancer care planning.
        • DIEP Flap AccessCancer Nation advocates for protection of access to DIEP Flap Breast Reconstruction Surgery for all breast cancer survivors.
        • Policy CommentsRead Cancer Nation’s comments to Congress, HHS, and other federal policymakers in Washington, DC on proposed rules and legislation.
        • Issue StatementsRead Cancer Nation statements on pressing issues and developments in Washington affecting cancer survivors and their families.
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        • Whether you’re new to cancer advocacy or already have experience as an advocate, there are numerous ways you can get involved with Cancer Nation.

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        • Cancer Nation conducts an annual Cancer Nation Survivorship Survey, in partnership with Edge Research, to explore the cancer patient and survivor journey. This study captures a range of perspectives to better understand how Cancer Nation can support its mission to advocate for quality cancer care for all.

        • Surveys by Year

        • Clinician Perspective (2026)
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        • 2023 Survivorship SurveyThe 2023 Survey explored the caregiver experience for the first time, and features new data on the effect of cancer treatment on employment.
        • 2022 Survivorship SurveyThe 2022 Survey found significant disparities in cancer care that impact people of color, young adults, women, and those with metastatic cancer, at higher rates.
        • 2021 Survivorship SurveyThe 2021 Survey demonstrated that when patients receive quality care, have excellent support, and have financial resources, they are more likely to have positive outcomes.
        • 2020 Survivorship SurveyIn the 2020 Survey, survivors reported that their care team is not helpful at addressing some common side effects of their cancer such as fatigue, anxiety, and depression.
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        • The Cancer Survivorship Checklist is designed to be a simple, straightforward tool patients and caregivers can use as a guide for information critical to their care wherever they are on the cancer care continuum.

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        • Survivorship ResourcesA collection of resources that provide information about navigating the cancer journey.
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        • Integrative OncologyA field that combines traditional cancer treatments with therapies that support a person’s natural healing ability.
        • Palliative CareSpecialized medical care for people living with a serious illness that provides relief from the symptoms and stress to improve their quality of life.
        • Cognitive HealingA resource to support cognitive functioning after cancer treatment. Includes cognitive training strategies and tools for both adults and children.
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        • Cancer Nation provides a wide variety of resources for patients, caregivers, and health care professionals.

        • Resources for Survivors and Caregivers

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News

NCCS Advocate Spotlight: Sanna Ali, MSN, CRNP

Championing Survivorship: Nurse Practitioner Sanna Ali’s Dedication to a Career in Cancer Survivorship

July 12, 2023
Sanna Ali is a dedicated Nurse Practitioner currently pursuing her PhD in Nursing at The George Washington University. Sanna started…
Read more
https://canceradvocacy.org/wp-content/uploads/Sanna-Ali-Advocate-Spotlight-Web-feat.jpg 600 1200 NCCS Staff https://canceradvocacy.org/wp-content/uploads/CancerNation_Logo_40Yrs_Stacked_TwoColor-scaled.png NCCS Staff2023-07-12 13:28:512023-07-12 13:30:46Championing Survivorship: Nurse Practitioner Sanna Ali’s Dedication to a Career in Cancer Survivorship
Lisa Rice blog post

NCCS Board Member in STAT News Op-Ed: CMS must protect access to the ‘gold standard of breast reconstruction’

June 30, 2023
STAT News recently published an op-ed by NCCS Board Vice Chair Lisa D. T. Rice on the threat to access of DIEP flap breast reconstruction…
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https://canceradvocacy.org/wp-content/uploads/Lisa-Rice-DIEP-Flap-post.jpg 600 1200 NCCS Staff https://canceradvocacy.org/wp-content/uploads/CancerNation_Logo_40Yrs_Stacked_TwoColor-scaled.png NCCS Staff2023-06-30 10:38:532023-10-13 16:40:22NCCS Board Member in STAT News Op-Ed: CMS must protect access to the ‘gold standard of breast reconstruction’
CCSA Re-Introduced

NCCS Applauds the Re-Introduction of the Comprehensive Cancer Survivorship Act (CCSA)

June 23, 2023
On Friday, Representatives Debbie Wasserman Schultz (D-FL-25), Brian Fitzpatrick (R-PA-1), and Mark DeSaulnier (D-CA-10) and Senators…
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https://canceradvocacy.org/wp-content/uploads/CCSA-Re-Introduced.png 600 1200 NCCS Staff https://canceradvocacy.org/wp-content/uploads/CancerNation_Logo_40Yrs_Stacked_TwoColor-scaled.png NCCS Staff2023-06-23 13:39:552026-05-29 16:03:53NCCS Applauds the Re-Introduction of the Comprehensive Cancer Survivorship Act (CCSA)
Sarah Cohn advocate spotlight

Arsenic and Advocacy: Sarah Cohn’s Experience with Rare Leukemia Spurs Action

June 14, 2023
Diagnosed with a rare form of leukemia called acute promyelocytic leukemia (APL), Sarah Cohn's cancer diagnosis at the age of 30 took…
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https://canceradvocacy.org/wp-content/uploads/Sarah-Cohn-Advocate-Spotlight-Blog-Banner.png 600 1200 NCCS Staff https://canceradvocacy.org/wp-content/uploads/CancerNation_Logo_40Yrs_Stacked_TwoColor-scaled.png NCCS Staff2023-06-14 13:41:082023-06-14 18:24:18Arsenic and Advocacy: Sarah Cohn’s Experience with Rare Leukemia Spurs Action
NCCS Letter to HHS

NCCS Urges CMS to Preserve Access to DIEP Flap Breast Reconstruction

June 1, 2023
Today, the Centers for Medicare and Medicaid Services (CMS) hosted a public meeting, in which they sought input on its decision to…
Read more
https://canceradvocacy.org/wp-content/uploads/HHS-Humphrey-bldg-1200-1030x515-1.jpg 515 1030 Kara Kenan https://canceradvocacy.org/wp-content/uploads/CancerNation_Logo_40Yrs_Stacked_TwoColor-scaled.png Kara Kenan2023-06-01 16:53:292023-10-13 16:40:32NCCS Urges CMS to Preserve Access to DIEP Flap Breast Reconstruction
Atrium Health Wake Forest Baptist update POST

Webinar – Survivorship at Atrium Health Wake Forest Baptist Comprehensive Cancer Center: Creating a Practical Workflow

May 12, 2023
The National Coalition for Cancer Survivorship (NCCS) hosted a Survivorship Champions webinar about survivorship care implementation,…
Read more
https://canceradvocacy.org/wp-content/uploads/Atrium-Health-Wake-Forest-Baptist-update-POST.jpg 600 1200 NCCS Staff https://canceradvocacy.org/wp-content/uploads/CancerNation_Logo_40Yrs_Stacked_TwoColor-scaled.png NCCS Staff2023-05-12 12:42:192025-05-05 12:53:48Webinar – Survivorship at Atrium Health Wake Forest Baptist Comprehensive Cancer Center: Creating a Practical Workflow
Sandra Finestone Advocate Spotlight Blog Banner

Sandra Finestone, PsyD: Be Bold and Don’t Hesitate – A 30-year Survivor’s Advice on Advocacy

May 8, 2023
Advocate Spotlight: Sandra Finestone, PsyD A cancer diagnosis can be overwhelming and life-changing, but for Sandra Finestone, it…
Read more
https://canceradvocacy.org/wp-content/uploads/Sandra-Finestone-Advocate-Spotlight-Blog-Banner.png 600 1200 NCCS Staff https://canceradvocacy.org/wp-content/uploads/CancerNation_Logo_40Yrs_Stacked_TwoColor-scaled.png NCCS Staff2023-05-08 13:42:472023-05-11 10:49:23Sandra Finestone, PsyD: Be Bold and Don’t Hesitate – A 30-year Survivor’s Advice on Advocacy
Blog Webpage Banner

Accessing COVID-19 Resources After the Public Health Emergency Ends

May 4, 2023
The COVID-19 public health emergency (PHE), which has been in effect since early 2020, will end on May 11, 2023. The federal government…
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https://canceradvocacy.org/wp-content/uploads/Blog-Webpage-Banner-3.png 600 1200 Kara Kenan https://canceradvocacy.org/wp-content/uploads/CancerNation_Logo_40Yrs_Stacked_TwoColor-scaled.png Kara Kenan2023-05-04 17:52:452023-05-04 17:52:45Accessing COVID-19 Resources After the Public Health Emergency Ends
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News

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Latest News

a photo of a medical professional and patient discussing a care plan

New Research Links Survivorship Care Plans to Longer Lives. So Why Do So Few Survivors Get One?

October 22, 2026
We have said it for years: when treatment ends, survivors need a plan. A written record of the care we received. A roadmap for what…
Read more
https://canceradvocacy.org/wp-content/uploads/doctor-patient-care-plan.jpg 675 1200 NCCS Staff https://canceradvocacy.org/wp-content/uploads/CancerNation_Logo_40Yrs_Stacked_TwoColor-scaled.png NCCS Staff2026-10-22 12:38:192026-10-22 13:35:52New Research Links Survivorship Care Plans to Longer Lives. So Why Do So Few Survivors Get One?

Ringing the Bell Is Not the Finish Line: Desa-Rhea Jefferson on What Cancer Survivors Need Next

September 24, 2026
Desa-Rhea Jefferson survived liver cancer at 3 and thyroid cancer as an adult. She says ringing the bell is a starting point, not a finish line. Read more.
Read more
https://canceradvocacy.org/wp-content/uploads/Desa-Rhea-Jefferson_-Advocate-Spotlight-Blog-Banner.png 600 1200 Elleni https://canceradvocacy.org/wp-content/uploads/CancerNation_Logo_40Yrs_Stacked_TwoColor-scaled.png Elleni2026-09-24 11:10:172026-09-24 11:10:17Ringing the Bell Is Not the Finish Line: Desa-Rhea Jefferson on What Cancer Survivors Need Next
Image with Orchid background. Text reads: Cancer Nation Stovall Awards | 2026 Honorees | Patient Advocate Award - Erin Geddis Cummings, MSW, LCSW | Health Care Professional Award - Bradley J. Zebrack, PHD, MSW, MPH

Cancer Nation to Recognize Erin Cummings and Bradley J. Zebrack with 2026 Ellen L. Stovall Award

September 17, 2026
Cancer Nation is proud to announce the recipients of the 2026 Ellen L. Stovall Award for Innovation in Patient-Centered Cancer Care: …
Read more
https://canceradvocacy.org/wp-content/uploads/Stovall-Award-Honorees-2026-web-featured.jpg 675 1200 NCCS Staff https://canceradvocacy.org/wp-content/uploads/CancerNation_Logo_40Yrs_Stacked_TwoColor-scaled.png NCCS Staff2026-09-17 13:55:462026-09-22 13:46:42Cancer Nation to Recognize Erin Cummings and Bradley J. Zebrack with 2026 Ellen L. Stovall Award

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Harmar Brereton, MD

Founder
Northeast Regional Cancer Institute

 

“Perhaps one of the most impactful collaborations in Dr. Brereton’s extraordinary career remains his early work and long friendship with Ellen Stovall. Through him, and in turn through the thousands of lives he has touched, Ellen’s work continues, and her mission lives on.”

—Karen M. Saunders
President, Northeast Regional Cancer Institute