NCCS Presents The State of Cancer Survivorship: 2024 Survey Results

The National Coalition for Cancer Survivorship (NCCS) conducts an annual State of Survivorship Survey, in partnership with Edge Research, to explore the cancer survivor journey. This study captures a range of perspectives to better understand how NCCS can support its mission to advocate for quality cancer care for everyone touched by cancer. The 2024 State of Survivorship report from NCCS offers detailed insights into the experiences of cancer patients, survivors, and caregivers in the U.S., based on national surveys conducted between August and September 2024. With more than 2,100 participants, this report examines key areas such as treatment decision-making, post-treatment care, clinical trial participation, side effects, and financial burdens.

On October 30, NCCS hosted a web briefing to present the findings from the 2024 survey. Pam Loeb, Principal of Edge Research, and Shelley Fuld Nasso discussed the results in detail and took questions from an audience of survivors, health care professionals, researchers, and more. In the presentation, they highlight both the alignment and differences between caregivers and patients in their decision-making and satisfaction with cancer care. Our 2024 survey also introduced new questions, exploring reasons for participating — or choosing not to participate — in clinical trials, seeking second opinions, and experiences with survivorship care plans, among other topics.

Watch the full briefing below or watch it on YouTube.

Briefing Topic Chapters
00:00 Introduction, Survey Objectives
05:03 Methodology & Who Responded
08:09 Patient/Caregiver Decision-Making
13:42 Second Opinions & Care Team Trust
18:02 Clinical Trials
21:21 Seeking Resources
23:50 Cancer Care Experiences
28:41 Side Effects
32:04 Financial Impacts
37:37 Work and School Impacts
40:37 Cancer Impacts on Caregivers
41:47 Post-Treatment Care Experience
47:23 Survivorship Care Plans
52:33 Q&A from Audience

Download the Survey Materials

NCCS has made the full 2024 State of Survivorship Survey presentation slide deck (containing more slides than are featured in this briefing), along with the executive summary available for download.

Download the 2024 Survey Materials.

See our previous survey reports here.

About the Speakers

Pam Loeb
Pam provides trusted counsel and custom marketing research for clients big and small. As a Principal at Edge, she works regularly with marquee brands to design studies and provide insights that drive their business. While Pam enjoys working with corporations on their branding, messaging, advertising, and new product development, she is also passionate about helping non-profits with their unique challenges. Over the last 20 years, she has managed hundreds of studies for NGOs and professional associations to improve their communications and public awareness efforts.

Shelley Fuld Nasso
As Chief Executive Officer, Shelley Fuld Nasso leads the public policy activities of NCCS at a time of rapid and fundamental health care system change. Prior to joining NCCS, Shelley served in leadership roles at Susan G. Komen, where she leveraged Komen’s grassroots network in Washington, D.C., and in state capitals. Shelley’s commitment to the work of NCCS is strongly tied to the experiences in the cancer care system of her dear friend, Dr. Brent Whitworth, a beloved physician who was diagnosed with stage IV cancer days before his 42nd birthday and who passed away 19 months later. Through Brent’s experiences, Shelley witnessed the strengths and flaws of the cancer care system and embraces the notion that policy change can make cancer care better for patients and caregivers.

About National Coalition for Cancer Survivorship (NCCS)
National Coalition for Cancer Survivorship is the nation’s oldest survivor-led cancer advocacy organization advocating for quality cancer care for all people touched by cancer. Established in 1986 by 23 leaders with expertise in cancer research, community-based support programs, cancer information services and cancer advocacy, NCCS represents the more than 18.1 million Americans with a history of cancer by:

• Working with legislators and policy makers to improve cancer patient and survivor quality of care and quality of life after diagnosis,
• Advocating for changes in how our nation researches, regulates, finances, and delivers quality cancer care
• Empowering cancer survivors through publications and programs which provide tools for self-advocacy, and
• Convening other cancer organizations to address nationwide public policy issues affecting cancer survivors.