Entries by actualize

What Caught Our Eye: ACA Repeal Debate, the FDA’s Oncology Center of Excellence, and The Caregiver Space

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What Caught Our Eye (WCOE), Week of January 16, 2017 What Caught Our Eye is our week-in-review blog series, where we recap the cancer policy articles, studies, and stories that caught our attention. Affordable Care Act Despite recent claims, individual health insurance markets are becoming more stable, not less, according to the Center for Budget […]

What Caught Our Eye: ACA Repeal Debate, the Trump FDA Transition, and Cancer-Related Fatigue

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Today we are re-launching our week-in-review What Caught Our Eye blog series, where we recap the cancer policy articles, studies, and stories that caught our attention. Two cancer survivors and friends of NCCS wrote an op-ed in STAT News: “ACA replacement must include affordable insurance for preexisting conditions.”

CPAT Members’ Op-ed: ACA Replacement Must Include Affordable Insurance for Preexisting Conditions

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NCCS’ Cancer Policy & Advocacy Team (CPAT) members Jen Campisano and Ben Fishman wrote a powerful op-ed for STAT News. Both diagnosed with cancer in their early thirties, they each have endured well over a million dollars in surgeries, radiation, and chemotherapy to treat their illness. Without the preexisting conditions and lifetime limit protections in […]

So Many Reasons to Save the Affordable Care Act

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For six years now, the Affordable Care Act (ACA) continues to successfully improve health care in America. It provided coverage to 20 million people, allowed young adults to stay on their parents’ insurance until 26, emphasized preventative care, and sought to address inequalities in care, especially for women. For cancer patients and survivors, the impact […]

NCCS Joins Letter to Congressional Leaders Regarding the Affordable Care Act

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NCCS joined with patient advocacy organizations in the Cancer Leadership Council (CLC) in submitting a letter to Congressional leaders regarding the Affordable Care Act (ACA). In our letter, we urge Congress not to repeal the ACA until specific proposals are identified to replace the ACA. Representing cancer patients, caregivers, and numerous other stakeholders, the letter […]

NCCS Statement on Signing Into Law of 21st Century Cures Act

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The National Coalition for Cancer Survivorship (NCCS) applauds Congress passing and President Obama signing the 21st Century Cures Act. Cancer survivors and others dealing with serious illness are encouraged to see Congress and the President end 2016 on a positive note by providing a boost in funding for important biomedical research priorities.

Research Priorities for the Growing Population of Childhood Cancer Survivors

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In the aftermath of this year’s historic Presidential election, one fact remains unchanged: cancer continues to be a devastating array of diseases that has touched or will touch the lives of virtually every American. As a 25-year survivor of childhood cancer, I want to insure that the health challenges faced by patients like me are emphasized as research priorities for the coming years are established.

Guest Post: I Must Advocate for Improved Quality of Life for Cancer Survivors

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Guest Post by Virgie Townsend Advocate, Caregiver, and NCCS CPAT MemberI am the mother and caregiver for my son who was diagnosed with biphenotypic leukemia in March of 2011. Being there for my son gave me a first hand look at what cancer survivors go through. I think most of us have been touched by cancer […]

Share Your ACA Story

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We at NCCS are carefully monitoring the transition to the Trump administration and what it means for cancer survivors, patients, and families. We need YOUR help to identify stories of cancer survivors who have benefited from the ACA, so we can share these with policymakers and protect the important provisions of the ACA that help cancer survivors.

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Survivorship Champions is a program for all clinicians and researchers, both oncology and primary care, who are interested in improving survivorship care and primary care’s role in caring for cancer survivors.

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Link to: Cancer Policy and Advocacy Team (CPAT)

Join CPAT

The NCCS Cancer Policy & Advocacy Team (CPAT) is a program for survivors and caregivers to learn about pressing policy issues that affect quality cancer care in order to be engaged as advocates in public policy around the needs of cancer survivors.

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NCCS represents the millions of Americans who share a common experience – living with, through and beyond a cancer diagnosis. By sharing your story of how you have been touched by cancer, you are supporting the national cancer survivorship movement.

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