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Guest Post by Dr. Melissa Hudson: How Has the Childhood Cancer Survivor Study Informed the Care of Children With Cancer?

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Progress in survival for childhood malignancies is tempered by the sequelae of the cancer and its treatment. Compelling evidence supports that childhood cancer survivors are a highly vulnerable group with a substantial risk of adverse health-related and quality-of-life outcomes resulting from their curative cancer therapy, broadly called “late effects”. Observational studies of survivor health outcomes […]

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WCOE: Poll Finds Women Think Mammograms Should Be Done Annually, Why Your Doctor Won’t ‘Friend You,’ Hospice Use Patterns, Susan Gubar’s Latest

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What Caught Our Eye (WCOE) Each week, we recap the cancer policy articles, studies, and stories that caught our attention. Via @NPR: Poll Finds Most Women Believe Mammograms Should Be Done Annually https://t.co/RNAhxWn8LN — NCCS – National Coalition for Cancer Survivorship (@CancerAdvocacy) August 28, 2015 Via @NPR: Why Your Doctor Won't Friend You On Facebook […]

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Guest Post by Amy Abernethy of Flatiron Health: Long-Term Medical Data Collection Improves Care Quality, Outcomes

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I once had a patient named Janet. Janet was a curly redhead emergency department nurse. She was vibrant, sweet, and vivacious, had melanoma, and was passionate about her data (her “story” as she liked to call it) being used in ways that would impact the future of cancer care. But this isn’t as easy as […]

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NCCS Responds to Draft ASCO Conceptual Framework to Assess the Value of Cancer Treatment Options

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NCCS recently submitted comments to the American Society for Clinical Oncology (ASCO) on its proposed value framework. In June, ASCO published a draft of the framework, “A Conceptual Framework to Assess the Value of Cancer Treatment Options,” in the Journal of Clinical Oncology and solicited feedback from stakeholders. ASCO described the framework as “the basis […]

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WCOE: How To Know Whether to Believe a Health Study, Cancer Statistics, Minority Access To Care, President Carter’s Cancer, and More

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What Caught Our Eye (WCOE) Each week, we recap the cancer policy articles, studies, and stories that caught our attention. How to Know Whether to Believe a Health Study https://t.co/7gjJF2nTPb via @UpshotNYT #gyncsm via @SGO_org — Dee Sparacio (@womenofteal) August 18, 2015 Our recent issue brief explores racial & ethnic disparities in access to & […]

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Twenty Years Later Blog Series: Introducing the Eighth Principle of the Imperatives for Quality Cancer Care

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Over the course of 2015, NCCS and a diverse group of guest contributors will revisit the Imperatives for Quality Cancer Care as published in 1995 and evaluate progress made to date in achieving the principles proposed and ensuring that they guide the cancer care experience. The eighth principle of the Imperatives for Quality Cancer Care states, “Systematic long-term […]

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Logistic Toxicity and Administrative Burdens for Cancer Survivors and Caregivers

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There are many types of toxicities cancer patients face in their treatment. We hear most about the physical toxicities of treatment – nausea, pain, fatigue, heart damage, etc. Fortunately, the non-physical toxicities are getting more attention by physicians, policymakers, and patient advocates. Dr. Yousuf Zafar (@yzafar) has made the term “financial toxicity” – the crippling […]

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WCOE: Hunting for Health Care Procedures, Surging Costs of Cancer Care, Getting to Doctors Appointments, Logistic Toxicity, and A Beautiful Piece by Oliver Sacks

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What Caught Our Eye (WCOE) Each week, we recap the cancer policy articles, studies, and stories that caught our attention. Sites that are like #Priceline for #healthcare give consumers more power, but brings more responsibility to consumer: https://t.co/JkgQ8yLeYR — Peter Ubel (@peterubel) August 12, 2015 Lots written lately about the soaring cost of #cancer care, […]

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WCOE: ACA’s Out-Of-Pocket Maximums, Susan Gubar on Cancer and Loneliness, Pre-hab: Rehab Before Treatment, and Death with Dignity Advocacy

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What Caught Our Eye (WCOE) Each week, we recap the cancer policy articles, studies, and stories that caught our attention. #ACA out-of-pocket maximums create undue burden for some patients https://t.co/qpTJaUAHip #financialtoxicity — Yousuf Zafar, MD MHS (@yzafar) August 4, 2015 When cancer patients need help, they are often surprised to find that long-trusted friends have […]

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Link to: Cancer Policy and Advocacy Team (CPAT)

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The NCCS Cancer Policy & Advocacy Team (CPAT) is a program for survivors and caregivers to learn about pressing policy issues that affect quality cancer care in order to be engaged as advocates in public policy around the needs of cancer survivors.

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