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Twenty Years Later Blog Series: Introducing the Seventh Principle of the Imperatives for Quality Cancer Care

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The seventh principle in the Imperatives for Quality Cancer Care states, “Long-term survivors should have access to specialized follow-up clinics that focus on health promotion, disease prevention, rehabilitation, and identification of physiologic and psychological problems. Communication with the primary care physician must be maintained.” Over the last 20 years, survivorship clinics have emerged to address […]

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WCOE: Susan Gubar Giving Thoughts of Thanks, Discovering Patients’ Wishes, JAMA Study on Advance Care Planning, and More

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Living With Cancer: Curses and Blessings https://t.co/1JPw42OYPC via @nytimeswell — NCCS – National Coalition for Cancer Survivorship (@CancerAdvocacy) July 17, 2015 "The real test for physicians is being willing to meet the challenge of discovering our patient’s true wishes" https://t.co/xfXgeUmODq — Shelley Fuld Nasso (@sfuldnasso) July 17, 2015 See study in @JAMAOnc https://t.co/hsqg7hHU8E on advance […]

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Medicare Proposal to Cover Advance Care Planning Conversations Marks an Important Step toward Patient-Centered Care

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Last week the Centers for Medicare & Medicaid Services (CMS) announced plans to support Medicare beneficiaries by reimbursing doctors for advance care planning beginning in January 2016. The proposed codes would reimburse for discussions about an individual’s wishes, should he or she becomes too ill to make decisions, and for the completion of an advance […]

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WCOE: Shared Decision-Making, Medicare Plans to Pay Doctors to Talk About End-of-Life Care, and Patient Advocate Meets with Congressional Representative

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Patients should learn ALL treatment options. @nprnews: Knowing How Doctors Die Can Change End-Of-Life Discussions https://t.co/If5z8vn6bC — Shelley Fuld Nasso (@sfuldnasso) July 7, 2015 "Death panel" was an unfortunate misnomer and we should not perpetuate it. Patients deserve advanced care planning. https://t.co/7c8R63jb7D — Shelley Fuld Nasso (@sfuldnasso) July 9, 2015 "Shared decision-making is a relationship […]

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Discussing “Good” and “Hard” Deaths: Columnist Ellen Goodman’s Opinion Piece “How to Talk About Dying”

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In a recent opinion post in The New York Times, columnist Ellen Goodman writes intimately about the loss of her parents. Decades after the death of her father, Goodman felt wholly unprepared for the decisions that needed to be made  as her mother’s health declined, assuming—like many caregivers and loved ones do—that death would be […]

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Advocates from Across the US Discuss Key Survivorship Issues at Cancer Policy Advocate Training

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Last week, advocates from across the country came together for the NCCS Cancer Policy Advocate Training (CPAT). Participants spent two days being trained on the most pressing policy issues affecting cancer survivorship care in the United States. The program agenda focused on the needs of cancer survivors from diagnosis to treatment and through long-term survivorship […]

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Link to: Survivorship Champions

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Survivorship Champions is a program for all clinicians and researchers, both oncology and primary care, who are interested in improving survivorship care and primary care’s role in caring for cancer survivors.

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Link to: Cancer Policy and Advocacy Team (CPAT)

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The NCCS Cancer Policy & Advocacy Team (CPAT) is a program for survivors and caregivers to learn about pressing policy issues that affect quality cancer care in order to be engaged as advocates in public policy around the needs of cancer survivors.

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