Tag Archive for: Susan Gubar

WCOE: Bi-Partisan Bill Overhauls How Doctors Get Paid, Psychological Effects of Chemo, and the Art of Concealing Cancer

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SGR: Bipartisan Senate ends flawed Medicare payment formula https://t.co/9KQkuIFqDr — Alec Stone (@ONSAlec) April 15, 2015 What Is the ‘Doc Fix’? https://t.co/M4Iy0rh8K7 via @WSJPolitics — NCCS – National Coalition for Cancer Survivorship (@CancerAdvocacy) April 15, 2015 Living With Cancer: In and Out of the Closet https://t.co/dd3GxpPVVV via @nytimeswell — NCCS – National Coalition for Cancer […]

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Guest Video: Dr. Susan Gubar Discusses the Financial Burdens of Cancer Care

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This video post is part of the 2015 Cancer Policy Matters “The Imperatives for Quality Cancer Care: 20 Years Later” blog series. The third principle from the Imperatives for Quality Cancer Care states, “Standards of cancer care should be driven by the quality of care, not only by the cost of care, and should include participation in […]

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WCOE: NPR Series Leading to “Emperor of All Maladies,” Clinical Trials, and the Health Care Payment Learning and Action Network

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Living With Cancer: Clinical Trials Looking for Patients https://t.co/sfZ0epUeme — NYTimes Well (@nytimeswell) March 26, 2015 Via @nprnews: "Professional Patient" Dixie Josephson has been going through treatment for #ovariancancer for 15 yrs https://t.co/c5ToN8gabv — NCCS – National Coalition for Cancer Survivorship (@CancerAdvocacy) March 25, 2015 LIVE: @SecBurwell joins President Obama to kick off the Health […]

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Revisiting the Second Principle of the Imperatives for Quality Cancer Care—Treating the Whole Person

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This month, as part of the 20 Years Later series, we are revisiting the second principle of the Imperatives for Quality Cancer Care: Access, Advocacy, and Accountability. The second principle states, “Quality cancer care should be available in a health care system whose standards and guidelines are developed in consideration of treating the whole person […]

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Speaking to the Needs of Patients Living with Advanced Cancers and Honoring Cancer Stories with Cancerversary

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Recently, NCCS had the honor of celebrating the work and advocacy of two amazing individuals. Susan Gubar, the author of The New York Times blog “Living with Cancer,” received the Natalie Davis Spingarn Writer’s Award, and Lillie Shockney was awarded the Catherine Logan Award for Service to Survivorship. We encourage those interested in survivorship issues […]

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WCOE: Brittany Maynard’s Death with Dignity, Election Results and the ACA, and Susan Gubar’s “Not Talking About Medical Mistakes”

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Brittany Maynard, a 29-year-old woman with brain cancer who became an advocate for the “death with dignity” movement took her life this week. Marcia Angell wrote about “The Brittany Maynard effect: How she is changing the debate on assisted dying” in The Washington Post, as did Sarah Kliff in “Brittany Maynard and the debate about […]

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WCOE: Making Hard Choices and the Impact of Price Transparency

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In “Living with Cancer: Difficult Choices,” another installment in her series in The New York Times, Susan Gubar writes about the difficulty of deciding between treatment options when there is no obvious answer. Even patients who have a strong understanding of their disease may lack the expertise to evaluate different options, particularly when the options […]

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WCOE: Patient-Centered Care, “The Fault in Our Stars” and Genetic Data

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Three articles caught our eye at NCCS this week.  The one that raises the most questions for us in terms of policy development is from our friend, Amy Abernathy, appearing as a blog post for the June 10th issue of The Hill. Her argument in support of patient-centered care is something we have advocated for […]

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NCCS Senior Health Policy Advisor Ellen Stovall Responds to Susan Gubar’s “The Cost of Trials”

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Susan Gubar’s voice as a woman living with ovarian cancer (The New York Times Well Blog, March 20, 2014) clearly describes the dilemma of how to manage some of the most distressing features facing people who want to participate in a cancer clinical trial—namely access to these trials and the matters associated with payment for the patient […]

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