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NCCS - National Coalition for Cancer Survivorship
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Posts

Guest Post: I Must Advocate for Improved Quality of Life for Cancer Survivors

December 2, 2016/in Cancer Policy Blog Care Planning, Quality Cancer Care, Shared Decision-Making NCCS News /by actualize

Guest Post by Virgie Townsend Advocate, Caregiver, and NCCS CPAT MemberI am the mother and caregiver for my son who was diagnosed with biphenotypic leukemia in March of 2011. Being there for my son gave me a first hand look at what cancer survivors go through. I think most of us have been touched by cancer […]

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Highlights from the 2016 CPAT Symposium and Hill Day

August 11, 2016/in Cancer Policy Blog, NCCS News Care Planning, Quality Cancer Care, Survivorship Care NCCS News /by actualize

In June, over 50 patient advocates gathered in Washington, D.C. to take part in the NCCS 2016 Cancer Policy & Advocacy Team (CPAT) Symposium and Hill Day. Days One and Two Attendees heard and participated in a number of informational presentations, including “Current Issues in Cancer Care: The Economics of the Cancer Care System,” “Communications […]

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https://canceradvocacy.org/wp-content/uploads/2016/07/CPAT-Members-Capitol-PACT-Act.jpg 667 1000 actualize https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png actualize2016-08-11 17:23:152021-03-08 10:23:13Highlights from the 2016 CPAT Symposium and Hill Day

CPAT Webinar Available Online: “A Conversation Around Shared Decision-Making and A Patient Revolution—and The Role of the PACT Act”

June 2, 2016/in Cancer Policy Blog NCCS News /by actualize

“Let me introduce you to Maria Lisa.  Maria Lisa is a patient from Peru, like I am, and she lives in Alaska.  I would like to spend a few seconds here looking closely at her face and her situation.  …Maria Lisa looks overwhelmed and tired.  This is in part because Maria Lisa lives with multiple […]

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https://canceradvocacy.org/wp-content/uploads/The-Role-of-the-PACT-Act.jpg 515 1030 actualize https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png actualize2016-06-02 14:35:042020-12-01 11:49:30CPAT Webinar Available Online: “A Conversation Around Shared Decision-Making and A Patient Revolution—and The Role of the PACT Act”

WCOE: Medicare’s 50th Anniversary, ASCO Post Talks #CPAT15 and #PACTACt, and Helping Patients and Doctors Talk About Death

July 31, 2015/in Cancer News, Cancer Policy Blog Access to Care, Health Care Coverage, Palliative Care, Quality Cancer Care NCCS News /by actualize

What Caught Our Eye (WCOE) Each week, we recap the cancer policy articles, studies, and stories that caught our attention. Helping Patients and Doctors Talk About Death https://t.co/H0jFvolViO — NCCS – National Coalition for Cancer Survivorship (@CancerAdvocacy) July 27, 2015 Join us today, at 10:30 am ET for the Medicare and Medicaid 50th celebration! #KeepingUSHealthy […]

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https://canceradvocacy.org/wp-content/uploads/2012/12/NCCS_Starburst_Thumbnail.jpg 125 125 actualize https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png actualize2015-07-31 10:11:102015-07-31 10:11:10WCOE: Medicare’s 50th Anniversary, ASCO Post Talks #CPAT15 and #PACTACt, and Helping Patients and Doctors Talk About Death

Medicare Proposal to Cover Advance Care Planning Conversations Marks an Important Step toward Patient-Centered Care

July 17, 2015/in Cancer News, Cancer Policy Blog Access to Care, Care Planning, Health Care Coverage, Palliative Care, Payment Reform, Quality Cancer Care NCCS News /by actualize

Last week the Centers for Medicare & Medicaid Services (CMS) announced plans to support Medicare beneficiaries by reimbursing doctors for advance care planning beginning in January 2016. The proposed codes would reimburse for discussions about an individual’s wishes, should he or she becomes too ill to make decisions, and for the completion of an advance […]

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WCOE: Shared Decision-Making, Medicare Plans to Pay Doctors to Talk About End-of-Life Care, and Patient Advocate Meets with Congressional Representative

July 10, 2015/in Cancer News, Cancer Policy Blog Access to Care, Health Care Coverage NCCS News /by actualize

Patients should learn ALL treatment options. @nprnews: Knowing How Doctors Die Can Change End-Of-Life Discussions https://t.co/If5z8vn6bC — Shelley Fuld Nasso (@sfuldnasso) July 7, 2015 "Death panel" was an unfortunate misnomer and we should not perpetuate it. Patients deserve advanced care planning. https://t.co/7c8R63jb7D — Shelley Fuld Nasso (@sfuldnasso) July 9, 2015 "Shared decision-making is a relationship […]

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https://canceradvocacy.org/wp-content/uploads/2012/12/NCCS_Starburst_Thumbnail.jpg 125 125 actualize https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png actualize2015-07-10 15:09:082015-07-10 15:09:08WCOE: Shared Decision-Making, Medicare Plans to Pay Doctors to Talk About End-of-Life Care, and Patient Advocate Meets with Congressional Representative

WCOE: Supreme Court Ruling Breathes Life Into Affordable Care Act, Patient Advocates in DC for #CPAT15 Visit the Hill to Show Support for PACT Act, Sponsored by Congresswoman Lois Capps and Congressman Charles Boustany

June 29, 2015/in Cancer News, Cancer Policy Blog Access to Care, Affordable Care Act, Care Planning, Health Care Coverage, Quality Cancer Care, Survivorship Care NCCS News /by actualize

  Supreme Court decision is good news for cancer patients who need help purchasing health insurance. #SCOTUS #KingvBurwell — Shelley Fuld Nasso (@sfuldnasso) June 25, 2015   Check out this blog post about yesterday's #PACTAct visits https://t.co/A3JCmpbwxs — NCCS – National Coalition for Cancer Survivorship (@CancerAdvocacy) June 25, 2015   Thank you @RepBoustany for your […]

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https://canceradvocacy.org/wp-content/uploads/2012/12/NCCS_Starburst_Thumbnail.jpg 125 125 actualize https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png actualize2015-06-29 15:02:042015-06-29 15:02:04WCOE: Supreme Court Ruling Breathes Life Into Affordable Care Act, Patient Advocates in DC for #CPAT15 Visit the Hill to Show Support for PACT Act, Sponsored by Congresswoman Lois Capps and Congressman Charles Boustany

The New Medicare Oncology Care Model Will Improve Quality of Care for Cancer Patients

February 12, 2015/in Cancer News, Cancer Policy Blog, NCCS News, Policy Comments Care Planning, Payment Reform, Quality Cancer Care, Survivorship Care NCCS News, Policy Comments /by actualize

The National Coalition for Cancer Survivorship (NCCS) applauds the release by the Centers for Medicare and Medicaid Services (CMS) of the Oncology Care Model, a multi-payer program with the goal of providing cancer patients with higher quality, better coordinated care, at a lower cost. The Oncology Care Model builds on the current fee-for-service system for […]

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https://canceradvocacy.org/wp-content/uploads/2012/12/NCCS_Starburst_Thumbnail.jpg 125 125 actualize https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png actualize2015-02-12 23:18:412015-02-12 23:18:41The New Medicare Oncology Care Model Will Improve Quality of Care for Cancer Patients

Ellen Stovall Presents the Patient Perspective on Overtreatment at the ASCO Quality Care Symposium in Boston

October 17, 2014/in Cancer News, Cancer Policy Blog, NCCS News Care Coordination, Care Planning, Payment Reform, Quality Cancer Care, Survivorship Care NCCS News /by actualize

On October 17th, NCCS Senior Health Policy Advisor Ellen Stovall will be presenting the patient perspective on overtreatment at the ASCO Quality Care Symposium in Boston. Ellen will be discussing the Choosing Wisely® campaign, an initiative of the ABIM Foundation intended to help physicians and patients engage in conversations to reduce overuse of tests and […]

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Addressing the Gaps in Treatment Planning and Coordination with the PACT Act (H.R. 2477)

August 12, 2014/in Cancer News, Cancer Policy Blog Access to Care, Care Coordination, Care Planning, Health Care Coverage, Quality Cancer Care, Survivorship Care NCCS News /by actualize

Recently we were reminded of the importance of the Planning Actively for Cancer Treatment (PACT) Act, H.R. 2477 as we participated in the Lymphoma Research Foundation’s (LRF) Lymphoma Education and Advocacy Partners (LEAP) webinar focused on survivorship and care coordination. NCCS has identified the PACT Act as one of our primary public policy priorities as […]

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Latest News

NCCS Advocate Spotlight: Sharon Rivera Sanchez - Triple Negative Breast Cancer Survivor Finds Passion in Fitness and Advocacy

Sharon Rivera-Sanchez: Triple Negative Breast Cancer Survivor Finds Passion in Fitness and Advocacy

January 12, 2023
As a Triple Negative Breast Cancer survivor, Sharon turned her personal experience into a passion for advocacy and giving back to the community. When she received her diagnosis in May 2015, she remembers being in a state of shock and grief. She said, “You have to allow yourself time to breathe and grieve.”
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https://canceradvocacy.org/wp-content/uploads/Advocate-Spotlight-Sharon-Rivera-Sanchez.jpg 600 1200 NCCS Staff https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png NCCS Staff2023-01-12 15:24:442023-01-12 15:24:44Sharon Rivera-Sanchez: Triple Negative Breast Cancer Survivor Finds Passion in Fitness and Advocacy
Rep. Debbie Wasserman Schultz introduces Comprehensive Cancer Survivorship Act at December 14, 2022 press conference.

NCCS Celebrates Launch of Comprehensive Cancer Survivorship Act

December 14, 2022
Representative Debbie Wasserman Schultz (FL-23), a champion for cancer survivors and a survivor herself, held a press conference today…
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https://canceradvocacy.org/wp-content/uploads/CCSA-Blog-Featured-Image-1200-×-600-px-1.png 600 1200 Kara Kenan https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png Kara Kenan2022-12-14 16:03:462022-12-14 16:03:46NCCS Celebrates Launch of Comprehensive Cancer Survivorship Act
Alique Topalian, PhD, MPH Advocate Spotlight

Alique Topalian: Childhood Cancer and the Frightening Realities of the Survivorship Journey

December 7, 2022
Alique was first diagnosed with Acute Myeloid Leukemia (AML) at the age of four. Her mother, Michele, knew something was wrong because “the light in her eyes was gone”. After being told by doctors that there was nothing wrong, her family was relentless until new blood work uncovered blast cells.
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https://canceradvocacy.org/wp-content/uploads/Alique-Topalian-Advocate-Spotlight.jpg 600 1200 NCCS Staff https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png NCCS Staff2022-12-07 11:46:562022-12-07 11:48:28Alique Topalian: Childhood Cancer and the Frightening Realities of the Survivorship Journey

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  • About
    • Our Mission
    • Our History
    • The 1986 Club
    • Our Team
      • Policy Advisors
    • Employment
    • Partnerships
    • Financial Information
  • Policy
    • Quality Cancer Care
    • Access to Care
    • Health Equity
    • Redefining Functional Status (RFS)
    • 2022 State of Cancer Survivorship Survey
    • 2021 State of Cancer Survivorship Survey
    • 2020 State of Cancer Survivorship Survey
    • Cancer Care Planning and Communications Act (CCPCA)
  • Get Involved
    • What is Advocacy?
    • Cancer Policy and Advocacy Team (CPAT)
    • Survivorship Champions
    • Subscribe to NCCS Updates
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    • Cancerversary
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Harmar Brereton, MD

Founder
Northeast Regional Cancer Institute

 

“Perhaps one of the most impactful collaborations in Dr. Brereton’s extraordinary career remains his early work and long friendship with Ellen Stovall. Through him, and in turn through the thousands of lives he has touched, Ellen’s work continues, and her mission lives on.”

—Karen M. Saunders
President, Northeast Regional Cancer Institute