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Guest Post by Virgie Townsend Advocate, Caregiver, and NCCS CPAT MemberI am the mother and caregiver for my son who was diagnosed with biphenotypic leukemia in March of 2011. Being there for my son gave me a first hand look at what cancer survivors go through. I think most of us have been touched by cancer […]
In June, over 50 patient advocates gathered in Washington, D.C. to take part in the NCCS 2016 Cancer Policy & Advocacy Team (CPAT) Symposium and Hill Day. Days One and Two Attendees heard and participated in a number of informational presentations, including “Current Issues in Cancer Care: The Economics of the Cancer Care System,” “Communications […]
“Let me introduce you to Maria Lisa. Maria Lisa is a patient from Peru, like I am, and she lives in Alaska. I would like to spend a few seconds here looking closely at her face and her situation. …Maria Lisa looks overwhelmed and tired. This is in part because Maria Lisa lives with multiple […]
What Caught Our Eye (WCOE) Each week, we recap the cancer policy articles, studies, and stories that caught our attention. Helping Patients and Doctors Talk About Death https://t.co/H0jFvolViO — NCCS – National Coalition for Cancer Survivorship (@CancerAdvocacy) July 27, 2015 Join us today, at 10:30 am ET for the Medicare and Medicaid 50th celebration! #KeepingUSHealthy […]
Last week the Centers for Medicare & Medicaid Services (CMS) announced plans to support Medicare beneficiaries by reimbursing doctors for advance care planning beginning in January 2016. The proposed codes would reimburse for discussions about an individual’s wishes, should he or she becomes too ill to make decisions, and for the completion of an advance […]
Patients should learn ALL treatment options. @nprnews: Knowing How Doctors Die Can Change End-Of-Life Discussions https://t.co/If5z8vn6bC — Shelley Fuld Nasso (@sfuldnasso) July 7, 2015 "Death panel" was an unfortunate misnomer and we should not perpetuate it. Patients deserve advanced care planning. https://t.co/7c8R63jb7D — Shelley Fuld Nasso (@sfuldnasso) July 9, 2015 "Shared decision-making is a relationship […]
Supreme Court decision is good news for cancer patients who need help purchasing health insurance. #SCOTUS #KingvBurwell — Shelley Fuld Nasso (@sfuldnasso) June 25, 2015 Check out this blog post about yesterday's #PACTAct visits https://t.co/A3JCmpbwxs — NCCS – National Coalition for Cancer Survivorship (@CancerAdvocacy) June 25, 2015 Thank you @RepBoustany for your […]
The National Coalition for Cancer Survivorship (NCCS) applauds the release by the Centers for Medicare and Medicaid Services (CMS) of the Oncology Care Model, a multi-payer program with the goal of providing cancer patients with higher quality, better coordinated care, at a lower cost. The Oncology Care Model builds on the current fee-for-service system for […]
On October 17th, NCCS Senior Health Policy Advisor Ellen Stovall will be presenting the patient perspective on overtreatment at the ASCO Quality Care Symposium in Boston. Ellen will be discussing the Choosing Wisely® campaign, an initiative of the ABIM Foundation intended to help physicians and patients engage in conversations to reduce overuse of tests and […]
Recently we were reminded of the importance of the Planning Actively for Cancer Treatment (PACT) Act, H.R. 2477 as we participated in the Lymphoma Research Foundation’s (LRF) Lymphoma Education and Advocacy Partners (LEAP) webinar focused on survivorship and care coordination. NCCS has identified the PACT Act as one of our primary public policy priorities as […]
Survivorship Champions is a program for all clinicians and researchers, both oncology and primary care, who are interested in improving survivorship care and primary care’s role in caring for cancer survivors.
The NCCS Cancer Policy & Advocacy Team (CPAT) is a program for survivors and caregivers to learn about pressing policy issues that affect quality cancer care in order to be engaged as advocates in public policy around the needs of cancer survivors.
NCCS represents the millions of Americans who share a common experience – living with, through and beyond a cancer diagnosis. By sharing your story of how you have been touched by cancer, you are supporting the national cancer survivorship movement.
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Founder
Northeast Regional Cancer Institute
“Perhaps one of the most impactful collaborations in Dr. Brereton’s extraordinary career remains his early work and long friendship with Ellen Stovall. Through him, and in turn through the thousands of lives he has touched, Ellen’s work continues, and her mission lives on.”
—Karen M. Saunders
President, Northeast Regional Cancer Institute