
Guest Post: I Must Advocate for Improved Quality of Life for Cancer Survivors
Guest Post by Virgie Townsend Advocate, Caregiver, and NCCS CPAT MemberI am the mother and caregiver for my son who was diagnosed with biphenotypic leukemia in March of 2011. Being there for my son gave me a first hand look at what cancer survivors go through. I think most of us ...

Highlights from the 2016 CPAT Symposium and Hill Day
In June, over 50 patient advocates gathered in Washington, D.C. to take part in the NCCS 2016 Cancer Policy & Advocacy Team (CPAT) Symposium and Hill Day. Days One and Two Attendees heard and participated in a number of informational presentations, including “Current Issues in Cancer Care: The Economics of ...

CPAT Webinar Available Online: “A Conversation Around Shared Decision-Making and A Patient Revolution—and The Role of the PACT Act”
“Let me introduce you to Maria Lisa. Maria Lisa is a patient from Peru, like I am, and she lives in Alaska. I would like to spend a few seconds here looking closely at her face and her situation. …Maria Lisa looks overwhelmed and tired. This is in part because ...

WCOE: Medicare’s 50th Anniversary, ASCO Post Talks #CPAT15 and #PACTACt, and Helping Patients and Doctors Talk About Death
What Caught Our Eye (WCOE) Each week, we recap the cancer policy articles, studies, and stories that caught our attention. Helping Patients and Doctors Talk About Death https://t.co/H0jFvolViO— NCCS - National Coalition for Cancer Survivorship (@CancerAdvocacy) July 27, 2015 Join us today, at 10:30 am ET for the Medicare and ...

Medicare Proposal to Cover Advance Care Planning Conversations Marks an Important Step toward Patient-Centered Care
Last week the Centers for Medicare & Medicaid Services (CMS) announced plans to support Medicare beneficiaries by reimbursing doctors for advance care planning beginning in January 2016. The proposed codes would reimburse for discussions about an individual’s wishes, should he or she becomes too ill to make decisions, and for ...

WCOE: Shared Decision-Making, Medicare Plans to Pay Doctors to Talk About End-of-Life Care, and Patient Advocate Meets with Congressional Representative
What Caught Our Eye (WCOE) Each week, we recap the cancer policy articles, studies, and stories that caught our attention. Patients should learn ALL treatment options. @nprnews: Knowing How Doctors Die Can Change End-Of-Life Discussions https://t.co/If5z8vn6bC— Shelley Fuld Nasso (@sfuldnasso) July 7, 2015 "Death panel" was an unfortunate misnomer and we should ...

WCOE: Supreme Court Ruling Breathes Life Into Affordable Care Act, Patient Advocates in DC for #CPAT15 Visit the Hill to Show Support for PACT Act, Sponsored by Congresswoman Lois Capps and Congressman Charles Boustany
What Caught Our Eye (WCOE) Each week, we recap the cancer policy articles, studies, and stories that caught our attention. Supreme Court decision is good news for cancer patients who need help purchasing health insurance. #SCOTUS #KingvBurwell— Shelley Fuld Nasso (@sfuldnasso) June 25, 2015 Check out this blog post about yesterday's #PACTAct ...

The New Medicare Oncology Care Model Will Improve Quality of Care for Cancer Patients
The National Coalition for Cancer Survivorship (NCCS) applauds the release by the Centers for Medicare and Medicaid Services (CMS) of the Oncology Care Model, a multi-payer program with the goal of providing cancer patients with higher quality, better coordinated care, at a lower cost. The Oncology Care Model builds on ...

Ellen Stovall Presents the Patient Perspective on Overtreatment at the ASCO Quality Care Symposium in Boston
On October 17th, NCCS Senior Health Policy Advisor Ellen Stovall will be presenting the patient perspective on overtreatment at the ASCO Quality Care Symposium in Boston. Ellen will be discussing the Choosing Wisely® campaign, an initiative of the ABIM Foundation intended to help physicians and patients engage in conversations to ...

Addressing the Gaps in Treatment Planning and Coordination with the PACT Act (H.R. 2477)
Recently we were reminded of the importance of the Planning Actively for Cancer Treatment (PACT) Act, H.R. 2477 as we participated in the Lymphoma Research Foundation’s (LRF) Lymphoma Education and Advocacy Partners (LEAP) webinar focused on survivorship and care coordination. NCCS has identified the PACT Act as one of our ...