Tag Archive for: FDA

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Coronavirus and Cancer Resources for Survivors

Cancer survivors have expressed concerns and questions about COVID-19, the coronavirus, and how they may be at higher risk due to their cancer history. Here are some resources about COVID-19 generally, and its impact for cancer survivors specifically. NCCS is seeking answers from public health experts on the coronavirus and its impact on cancer patients and survivors. Please leave a comment [...]
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WCOE: Replacing the SGR Formula, Patient Advocate Speaks at FDA, and Dr. Peter Ubel talks Patient Needs

https://twitter.com/CancerAdvocacy/status/585110117261189120 https://twitter.com/MBCNbuzz/status/584062316418834432 https://tw…
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WCOE: Pace of FDA Drug Approvals, Redesigning Insurance Exchanges, Shared Decision Making, and Thoughts on Data Collection

https://twitter.com/ResearchAmerica/status/570688447880556544 https://twitter.com/sfuldnasso/status/570389151532646401 https:/…
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NCCS Policy Comments: FDA’s Framework for Regulatory Oversight of Laboratory Developed Tests (LDTs)

NCCS submitted comments to the Food and Drug Administration (FDA) on the Draft Guidance: Framework for Regulatory Oversight of Laboratory…
20years

Announcing a New Blog Series: “The Imperatives for Quality Cancer Care” 20 Years Later

Read posts from the new blog series: "The Imperatives for Quality Cancer Care" 20 Years Later In 1995, NCCS published Imperatives…
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WCOE: New IOM Report, Control Issues, Tempting Treatment Options, and Patients ‘Right to Try’ New Drugs

https://twitter.com/theIOM/status/555428756106805249 https://twitter.com/CancerAdvocacy/status/555477303653044224 https://twit…
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WCOE: FDA News, Medical Debt, the ACA, and Honoring Jessie Gruman

https://twitter.com/ElaineSchattner/status/553203989940928512 https://twitter.com/KaiserFamFound/status/553214546643808256 htt…
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NCCS Policy Comments: Recommending Cancer Survivorship as a Topic for FDA Patient-Focused Drug Development Meetings

Last week, NCCS submitted comments to the U.S. Food and Drug Administration (FDA) regarding the series of patient-focused drug development…
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NCCS Offers Policy Comments: Strategies for Increasing Patient Participation in FDA Review Activities

The Food and Drug Administration Safety and Innovation Act (FDASIA) authorized a patient-focused drug development program, and in the…
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WCOE: Brittany Maynard’s Death with Dignity, Election Results and the ACA, and Susan Gubar’s “Not Talking About Medical Mistakes”

Brittany Maynard, a 29-year-old woman with brain cancer who became an advocate for the “death with dignity” movement took her…
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Incremental Improvements Are Not Enough

Two years ago, the world lost an extraordinary person, my dear friend Dr. Brent Whitworth. He was a few days shy of his 42nd birthday…

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Link to: Survivorship Champions

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Survivorship Champions is a program for all clinicians and researchers, both oncology and primary care, who are interested in improving survivorship care and primary care’s role in caring for cancer survivors.

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Link to: Cancer Policy and Advocacy Team (CPAT)

Join CPAT

The NCCS Cancer Policy & Advocacy Team (CPAT) is a program for survivors and caregivers to learn about pressing policy issues that affect quality cancer care in order to be engaged as advocates in public policy around the needs of cancer survivors.

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Link to: Survivor Stories

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NCCS represents the millions of Americans who share a common experience – living with, through and beyond a cancer diagnosis. By sharing your story of how you have been touched by cancer, you are supporting the national cancer survivorship movement.

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