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What Caught Our Eye (WCOE), Week of January 16, 2017 What Caught Our Eye is our week-in-review blog series, where we recap the cancer policy articles, studies, and stories that caught our attention. Affordable Care Act Despite recent claims, individual health insurance markets are becoming more stable, not less, according to the Center for Budget […]
Today we are re-launching our week-in-review What Caught Our Eye blog series, where we recap the cancer policy articles, studies, and stories that caught our attention. Two cancer survivors and friends of NCCS wrote an op-ed in STAT News: “ACA replacement must include affordable insurance for preexisting conditions.”
The National Coalition for Cancer Survivorship (NCCS) applauds Congress passing and President Obama signing the 21st Century Cures Act. Cancer survivors and others dealing with serious illness are encouraged to see Congress and the President end 2016 on a positive note by providing a boost in funding for important biomedical research priorities.
This week, NCCS hosted the latest CPAT webinar, Cancer Moonshot: Symptom Management and Funding. The featured presenters were Deborah K. Mayer, PhD, RN, AOCN, FAAN; and MK Holohan, JD. Dr. Mayer is the Director of Cancer Survivorship at the UNC Lineberger Cancer Center and a member of the Cancer Moonshot Blue Ribbon Panel. Ms. Holohan […]
NCCS submitted comments to the Food and Drug Administration (FDA) on the letter representing the agreement between FDA and regulated industry on goals for the re-authorization of the Prescription Drug User Fee Act (PDUFA VI). NCCS participated in the PDUFA stakeholder meetings held over the last year, and we support the role […]
NCCS joined with patient advocacy organizations in the Cancer Leadership Council (CLC) in submitting comments to the Reagan-Udall Foundation regarding the Draft Project Proposal for the Expanded Access Navigator for Individual Patient Access. In our letter, we commend the revisions to guidance documents, FDA educational materials, and the FDA website related to expanded access and […]
In 1992, Congress passed the first Prescription Drug User Fee Act (PDUFA), a law that allows the Food and Drug Administration (FDA) to collect fees from drug companies that apply to the FDA for approval to market their drugs for specific medical conditions, e.g., a chemotherapy drug for ALK-positive lung cancer. All drugs that treat […]
Last week we celebrated two individuals how have made cancer care better for survivors and their families—Dr. Richard Pazdur and Ellen Goodman. We were joined by survivors, advocates, researchers, innovators, and friends at our 2015 Focus on the Care reception in Washington, DC on Wednesday, October 21, 2015. In addition to our special attendees and […]
Last night survivors, advocates, researchers, innovators, and friends gathered at our 2015 Focus on the Care reception in celebration of two honorees who have used their unique talents to help the millions of people affected by cancer. We are grateful for all who attended to show their support for Dr. Richard Pazdur and Ellen Goodman—two […]
This month, as part of the 20 Years Later blog series, we are revisiting the fifth principle of the Imperatives for Quality Cancer Care: Access, Advocacy, and Accountability. This principle states: “People with cancer should be provided a range of benefits by all health care plans that includes primary and secondary prevention, early detection, initial […]
Survivorship Champions is a program for all clinicians and researchers, both oncology and primary care, who are interested in improving survivorship care and primary care’s role in caring for cancer survivors.
The NCCS Cancer Policy & Advocacy Team (CPAT) is a program for survivors and caregivers to learn about pressing policy issues that affect quality cancer care in order to be engaged as advocates in public policy around the needs of cancer survivors.
NCCS represents the millions of Americans who share a common experience – living with, through and beyond a cancer diagnosis. By sharing your story of how you have been touched by cancer, you are supporting the national cancer survivorship movement.
Together we can improve cancer care for survivors! Sign up to be the first to know about cancer policy issues and ways to take action
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Founder
Northeast Regional Cancer Institute
“Perhaps one of the most impactful collaborations in Dr. Brereton’s extraordinary career remains his early work and long friendship with Ellen Stovall. Through him, and in turn through the thousands of lives he has touched, Ellen’s work continues, and her mission lives on.”
—Karen M. Saunders
President, Northeast Regional Cancer Institute