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This week, in an article by science and medicine reporter Matthew Herper titled “A Drug Regrew a Little Girl’s Missing Bones. How Much Should That Cost?” from Forbes caught our eye. Evie Elsaesser was born with a rare, life-threatening genetic disease causing low levels of hypophophatasia— a chemical important for bone hardening—in her blood. Although […]
On October 17th, NCCS Senior Health Policy Advisor Ellen Stovall will be presenting the patient perspective on overtreatment at the ASCO Quality Care Symposium in Boston. Ellen will be discussing the Choosing Wisely® campaign, an initiative of the ABIM Foundation intended to help physicians and patients engage in conversations to reduce overuse of tests and […]
What caught our eye this week was extensive coverage of Dr. Atul Gawande’s new book, Being Mortal: Medicine and what Matters in the End. In it, he examines end-of-life care in our country, and he weaves in personal stories from his own family and his patients, as well as interviews of hundreds of patients, families, […]
We have a lot of bad incentives built into our system, says @sfuldnasso at #T3Cancer — ThinkWellPoint (@ThinkWellPoint) “We need truth telling so patients understand the full influences on their care” Shelley Fuld Nasso @CancerAdvocacy #T3Cancer — CancerSupportCm (@CancerSupportCm) We need to ask patients what’s important to them in order to match their goals & […]
Two new free mobile apps help people facing cancer to better manage the disease by learning how to deal with certain symptoms, and coordinate their care after cancer treatment has ended. Self-Care During Cancer Treatment is an app provided by Empowerment and Action for Cancer Care, an alliance between WellPoint and Genentech. This app provides […]
As a cancer survivor and nurse educator, I am always interested in how we can advocate for the care of cancer patients and recommend policy changes. Recently, I had the occasion to experience the impact a nurse navigator can have in assisting patients. Patient navigation is a program designed to provide patients with a map […]
Are we finally ready to address the repeated recommendations in these series of reports and to make it possible for our healthcare system, providers of care, and our religious leaders to be more ready to assist people in making difficult decisions about how to die well? One of the articles that caught our eye this […]
Click here to view all of NCCS’ policy comments. Recently, NCCS submitted comments to the Center for Medicare and Medicaid Innovation on its proposed Oncology Care Model (OCM), an episode-based payment model that emphasizes care planning and coordination and cancer care system transformation. The OCM represents an important step forward in encouraging patient-centered cancer care, […]
There are as many questions as there are differences of opinion about what constitutes the best evidence when it comes to appropriate cancer screening and then appropriate treatment once a diagnosis of cancer is made. Patients who read about current research findings face the dilemma of sorting through these differences of opinion and considering how […]
Recently, NCCS joined colleagues in the Cancer Leadership Council (CLC) in submitting comments to the Centers for Medicare and Medicaid Services (CMS) on the 2015 Physician Fee Schedule, which governs payments to physicians for services provided to Medicare patients. NCCS and the CLC have applauded efforts by CMS to strengthen care planning and coordination through […]
Survivorship Champions is a program for all clinicians and researchers, both oncology and primary care, who are interested in improving survivorship care and primary care’s role in caring for cancer survivors.
The NCCS Cancer Policy & Advocacy Team (CPAT) is a program for survivors and caregivers to learn about pressing policy issues that affect quality cancer care in order to be engaged as advocates in public policy around the needs of cancer survivors.
NCCS represents the millions of Americans who share a common experience – living with, through and beyond a cancer diagnosis. By sharing your story of how you have been touched by cancer, you are supporting the national cancer survivorship movement.
Together we can improve cancer care for survivors! Sign up to be the first to know about cancer policy issues and ways to take action
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Founder
Northeast Regional Cancer Institute
“Perhaps one of the most impactful collaborations in Dr. Brereton’s extraordinary career remains his early work and long friendship with Ellen Stovall. Through him, and in turn through the thousands of lives he has touched, Ellen’s work continues, and her mission lives on.”
—Karen M. Saunders
President, Northeast Regional Cancer Institute