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The Affordable Care Act (ACA) is making great strides in ensuring that, “People with cancer have the right to a system of universal health care in which access is not precluded because of preexisting conditions, genetic or other risks factors, or employment status.” Post by Lisa Gray as part of the “Imperatives for Quality Cancer Care: […]
New IOM Report: Sharing Clinical Trial Data: Maximizing Benefits, Minimizing Risks https://t.co/neRjKfx8ma #datasharing — NASEM Health (@NASEM_Health) January 14, 2015 "Cancer survivors plagued by lack of personal control" https://t.co/9tRPQrbdzs via @reuters "a wish to return to 'normal'" — NCCS – National Coalition for Cancer Survivorship (@CancerAdvocacy) January 14, 2015 Doing More for Patients Often Does […]
The Food and Drug Administration Safety and Innovation Act (FDASIA) authorized a patient-focused drug development program, and in the years since enactment, the U.S. Food and Drug Administration (FDA) has implemented certain initiatives of the patient-focused program. In recent weeks, FDA has requested feedback regarding patient-focused activities to date and recommendations about future efforts and […]
Charles Ornstein, Lena Groeger and Ryann Grochowski Jones from ProPublica analyzed changes in plans under the Affordable Care Act (“Big Changes in Fine Print of Some 2015 Obamacare Plans”), and ProPublica developed an app that allows consumers in 34 states to compare premiums, deductibles, and other costs under 2014 and 2015 plans. If consumers choose […]
This week, several articles caught our eye: Amy Berman shared her own experience “Choosing Wisely” when she opted for a single dose of radiation therapy to alleviate pain from bone metastases, instead of a course of 10 treatments. The Kaiser Family Foundation reported that 89% of uninsured individuals polled are not aware that the next open […]
This week, in an article by science and medicine reporter Matthew Herper titled “A Drug Regrew a Little Girl’s Missing Bones. How Much Should That Cost?” from Forbes caught our eye. Evie Elsaesser was born with a rare, life-threatening genetic disease causing low levels of hypophophatasia— a chemical important for bone hardening—in her blood. Although […]
In a series entitled, “When Unapproved Drugs Are the Only Hope,” Meg Tirrell of CNBC takes an in-depth look into the complicated issue of patient access to drugs that have not yet been approved by the FDA, also known as “compassionate use” or expanded access programs (EAPs). She presents the story of 15-year-old Nathalie Traller, […]
On Wednesday, as part of the Merkin Series on Innovation in Care Delivery, the Brookings Institute held an event in their new MEDTalk format titled, Reinventing Patient-Centered Cancer Care. The MEDTalk event follows the popular TED Talk format, and it was designed to feature several short presentations that considered the challenges of delivering oncology care while enhancing the patient experience, […]
The United States House of Representatives’ Energy and Commerce Committee released a Call to Action and announced the 21st Century Cures initiative to analyze the discovery, development, and delivery of cures and propose policy solutions. Over the course of the initiative, which officially launched on June 1, 2014, the committee will issue a series of […]
Susan Gubar’s voice as a woman living with ovarian cancer (The New York Times Well Blog, March 20, 2014) clearly describes the dilemma of how to manage some of the most distressing features facing people who want to participate in a cancer clinical trial—namely access to these trials and the matters associated with payment for the patient […]
Survivorship Champions is a program for all clinicians and researchers, both oncology and primary care, who are interested in improving survivorship care and primary care’s role in caring for cancer survivors.
The NCCS Cancer Policy & Advocacy Team (CPAT) is a program for survivors and caregivers to learn about pressing policy issues that affect quality cancer care in order to be engaged as advocates in public policy around the needs of cancer survivors.
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Founder
Northeast Regional Cancer Institute
“Perhaps one of the most impactful collaborations in Dr. Brereton’s extraordinary career remains his early work and long friendship with Ellen Stovall. Through him, and in turn through the thousands of lives he has touched, Ellen’s work continues, and her mission lives on.”
—Karen M. Saunders
President, Northeast Regional Cancer Institute