Tag Archive for: childhood cancer

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Coronavirus and Cancer Resources for Survivors

Cancer survivors have expressed concerns and questions about COVID-19, the coronavirus, and how they may be at higher risk due to their cancer history. Here are some resources about COVID-19 generally, and its impact for cancer survivors specifically. NCCS is seeking answers from public health experts on the coronavirus and its impact on cancer patients and survivors. Please leave a comment [...]
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WCOE: Impact of Discussions About Financial Burdens, Cancer’s Toll in Rural America, Autoimmune Diseases and Childhood Cancer Survivors

What Caught Our Eye (WCOE) Each week, we recap the cancer policy articles, studies, and stories that caught our attention. …
20years

Guest Post by Dr. Melissa Hudson: How Has the Childhood Cancer Survivor Study Informed the Care of Children With Cancer?

Progress in survival for childhood malignancies is tempered by the sequelae of the cancer and its treatment. Compelling…
20years

Guest Post: “Coughing and Spluttering” — NCCS Co-Founder Susie Leigh Writes About Improving Care for Long-Term Survivors

The sixth principle of the Imperatives states, “People with histories of cancer have the right to continued medical follow-up with…
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NCCS Policy and Advocacy Manager Kelsey Nepote Attends and Presents at CancerCon: Takeaways and Steps for Moving Forward

Over the weekend, I had the pleasure of attending and presenting at Stupid Cancer CancerCon in Denver, Colorado. Stupid Cancer is the…
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NCCS Session at CancerCon 2015 Presents Two Types of Advocacy

This past weekend Kelsey Nepote of NCCS was honored to present a session on patient advocacy at the Stupid Cancer 2015 CancerCon event…
Access to Unapproved Therapies

Exploring Access to Unapproved Therapies

In a series entitled, “When Unapproved Drugs Are the Only Hope,” Meg Tirrell of CNBC takes an in-depth look into the complicated…
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WCOE: Pediatric Cancer Survivorship Challenges and an ACA Progress Report

A PBS Newshour segment, “Pediatric Cancer Survivors Face a Lifetime of Health Challenges,” discusses the late effects and potential…
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A New Addition to Our Policy Team: Kelsey Nepote’s First Assignment with Alliance for Childhood Cancer Action Days

On Monday of last week it was with great pleasure that I started in my new position at NCCS as Policy and Advocacy Manager. My…
Childhood Cancer Action Day

WCOE: Childhood Cancer Action Day, NCCS Provides Patient Perspective at IOM Workshop, and Pre-Hospice Program Report

In a blog post on The Hill, Stephen Crowley urged Congress to “step up” funding for pediatric cancer research, as more than…
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Take Action: The Alliance for Childhood Cancer “2014 Childhood Cancer Action Days”

A diagnosis of childhood cancer is devastating and impacts families for many years. While we have seen progress in survival for some…

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Link to: Survivorship Champions

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Survivorship Champions is a program for all clinicians and researchers, both oncology and primary care, who are interested in improving survivorship care and primary care’s role in caring for cancer survivors.

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Link to: Cancer Policy and Advocacy Team (CPAT)

Join CPAT

The NCCS Cancer Policy & Advocacy Team (CPAT) is a program for survivors and caregivers to learn about pressing policy issues that affect quality cancer care in order to be engaged as advocates in public policy around the needs of cancer survivors.

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Link to: Survivor Stories

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NCCS represents the millions of Americans who share a common experience – living with, through and beyond a cancer diagnosis. By sharing your story of how you have been touched by cancer, you are supporting the national cancer survivorship movement.

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