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Recently we were reminded of the importance of the Planning Actively for Cancer Treatment (PACT) Act, H.R. 2477 as we participated in the Lymphoma Research Foundation’s (LRF) Lymphoma Education and Advocacy Partners (LEAP) webinar focused on survivorship and care coordination. NCCS has identified the PACT Act as one of our primary public policy priorities as […]
In “Living with Cancer: Difficult Choices,” another installment in her series in The New York Times, Susan Gubar writes about the difficulty of deciding between treatment options when there is no obvious answer. Even patients who have a strong understanding of their disease may lack the expertise to evaluate different options, particularly when the options […]
As avid followers of Susan Gubar’s series in The New York Times on living with cancer, we read her most recent installment, “Living with Cancer: A Tour of Hospice” with interest. She described her fear of the pain, anxiety, and dementia that can accompany dying and her desire to avoid excessive treatment at the end of life. […]
On Wednesday, as part of the Merkin Series on Innovation in Care Delivery, the Brookings Institute held an event in their new MEDTalk format titled, Reinventing Patient-Centered Cancer Care. The MEDTalk event follows the popular TED Talk format, and it was designed to feature several short presentations that considered the challenges of delivering oncology care while enhancing the patient experience, […]
A PBS Newshour segment, “Pediatric Cancer Survivors Face a Lifetime of Health Challenges,” discusses the late effects and potential secondary cancers that survivors of pediatric cancers face. The piece puts a human face on the challenges with its profiles of Laura Allaire, an adult survivor of pediatric cancer, and eleven-year-old Samantha Schwarz, who is being […]
This week NCCS CEO Shelley Fuld Nasso and Senior Health Policy Advisor Ellen Stovall presented in separate sessions at the Seventh Biennial Cancer Survivorship Research Conference. Shelley discussed the ways NCCS is working to foster the adoption of cancer care planning, including tools to prepare patients for the conversation, delivery and payment reforms to encourage […]
An op-ed authored by NCCS CEO Shelley Fuld Nasso and published in the Santa Barbara Independent today championed hospice care, the Medicare Care Choices Program, and cancer care planning for Medicare beneficiaries. Citing the common view that seeking hospice care is equivalent to “giving up,” Fuld Nasso notes that a flaw in the current system […]
Three articles caught our eye at NCCS this week. The one that raises the most questions for us in terms of policy development is from our friend, Amy Abernathy, appearing as a blog post for the June 10th issue of The Hill. Her argument in support of patient-centered care is something we have advocated for […]
A recent episode of Take Care, a health care-focused radio show produced by NPR affiliate WRVO, featured an interview with Dr. Patricia Ganz, a medical oncologist and director of the UCLA LIVESTRONG Cancer Survivorship Center of Excellence. In the interview, Dr. Ganz describes a number of issues that can plague cancer survivors after active treatment […]
Last week we noted two recent articles addressing palliative and end of life care issues, including an article written from the first-hand experience of Amy Berman, who is both a nurse and an individual living with cancer. In Amy Berman’s recent post on the Health Affairs Blog, she describes palliative care as the “best friend of the seriously ill.” […]
Survivorship Champions is a program for all clinicians and researchers, both oncology and primary care, who are interested in improving survivorship care and primary care’s role in caring for cancer survivors.
The NCCS Cancer Policy & Advocacy Team (CPAT) is a program for survivors and caregivers to learn about pressing policy issues that affect quality cancer care in order to be engaged as advocates in public policy around the needs of cancer survivors.
NCCS represents the millions of Americans who share a common experience – living with, through and beyond a cancer diagnosis. By sharing your story of how you have been touched by cancer, you are supporting the national cancer survivorship movement.
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Founder
Northeast Regional Cancer Institute
“Perhaps one of the most impactful collaborations in Dr. Brereton’s extraordinary career remains his early work and long friendship with Ellen Stovall. Through him, and in turn through the thousands of lives he has touched, Ellen’s work continues, and her mission lives on.”
—Karen M. Saunders
President, Northeast Regional Cancer Institute