• Facebook
  • Twitter
  • Youtube
  • Instagram
  • LinkedIn
  • Rss
  • Store
  • Donate
NCCS - National Coalition for Cancer Survivorship
  • About
        • About Us

        • NCCS is the oldest cancer survivor-led non-profit organization in America. We advocate for quality cancer care for all touched by cancer.

        • About NCCS

        • Our Mission
        • What is Advocacy?Learn about the different types of cancer advocacy, from personal advocacy to public interest advocacy.
        • Our HistoryRead how NCCS’s leaders coined the term “cancer survivor,” and established the nation’s first survivor-led non-profit organization.
        • Our Team
        • Financial Information
        • Employment
        • Contact Us
        • Support Our Mission

        • Make A GiftSupport our mission of quality cancer care for all with a gift to NCCS.
        • The 1986 ClubMake a monthly commitment to support NCCS, empower cancer survivors, and advance public policy.
        • Ways to GiveLearn about other ways you can contribute to NCCS such as planned giving, employer matches, shopping online, and more.
        • Partnerships
  • News
    • NCCS News
    • Advocate SpotlightEach month, NCCS highlights a cancer survivorship advocate, sharing their story and the work they do in their communities.
    • Policy CommentsRead NCCS’s comments to Congress, HHS, and other federal policymakers in Washington, DC on proposed rules and legislation.
    • Issue StatementsRead NCCS statements on pressing issues and developments in Washington affecting cancer survivors and their families.
  • Policy
        • Policy

        • Public policy is government action, in the form of legislation, regulation, funding, and other actions. Public policy affects people with cancer and the cancer care system in many ways.

        • Our Policy Priorities

        • Quality Cancer CareQuality cancer care is essential for patients. Learn how NCCS and others define quality.
        • Access to CareNCCS believes cancer care and clinical trials should be affordable and accessible to everyone.
        • Health EquityThe cancer experience is not the same for everyone. NCCS works on policy efforts to reduce disparities in outcomes.
        • Current Issues

        • Comprehensive Cancer Survivorship Act (CCSA)The CCSA is a large comprehensive bill introduced in Congress that aims to improve quality of care in all stages of a diagnosis.
        • Cancer Care Planning and Communications Act (CCPCA)CCPCA is a bill that would provide a billable Medicare service code for cancer care planning.
        • DIEP Flap AccessNCCS advocates for protection of access to DIEP Flap Breast Reconstruction Surgery for all breast cancer survivors.
        • Policy CommentsRead NCCS’s comments to Congress, HHS, and other federal policymakers in Washington, DC on proposed rules and legislation.
        • Issue StatementsRead NCCS statements on pressing issues and developments in Washington affecting cancer survivors and their families.
        • Quality Measurement Research
  • Get Involved
        • Get Involved

        • Whether you’re new to cancer advocacy or already have experience as an advocate, there are numerous ways you can get involved with NCCS.

        • Join NCCS

        • Cancer Policy and Advocacy Team (CPAT)CPAT is a program for survivors and caregivers to learn about pressing issues that affect quality cancer care, in order to be engaged as advocates in public policy.
        • Elevating SurvivorshipA patient-led initiative — NCCS mentors advocates (Elevate Ambassadors) to fill vital gaps in survivorship care in their community.
        • Survivorship ChampionsAn NCCS program for clinicians and researchers who are interested in improving care for cancer survivors.
        • Advocacy OpportunitiesThis page provides a list of upcoming events, webinars, conferences, and advocacy campaigns from NCCS and other leading cancer organizations.
        • Connect with Us

        • Subscribe to NCCS Updates
        • Follow NCCS on Social Media
        • Survivor Stories
        • Cancerversary
        • Support NCCS

        • Make A Gift
        • Ways to Give
        • The 1986 Club
  • Survivorship Survey
        • State of Cancer Survivorship

        • NCCS conducts an annual State of Survivorship Survey, in partnership with Edge Research, to delve into the cancer patient and survivor journey. This study captures a range of perspectives to better understand how NCCS can support its mission to advocate for quality cancer care for all.

        • Reports by Year

        • 2023 Survey ReportThe 2023 Survey explored the caregiver experience for the first time, and features new data on the effect of cancer treatment on employment.
        • 2022 Survey ReportThe 2022 Survey found significant disparities in cancer care that impact people of color, young adults, women, and those with metastatic cancer, at higher rates.
        • 2021 Survey ReportThe 2021 Survey demonstrated that when patients receive quality care, have excellent support, and have financial resources, they are more likely to have positive outcomes.
        • 2020 Survey ReportIn the 2020 Survey, survivors reported that their care team is not helpful at addressing some common side effects of their cancer such as fatigue, anxiety, and depression.
  • Survivorship Checklist
        • Cancer Survivorship Checklist

        • The Cancer Survivorship Checklist is designed to be a simple, straightforward tool patients and caregivers can use as a guide for information critical to their care wherever they are on the cancer care continuum.

        • Start Your Cancer Survivorship Checklist
        • Survivorship Checklist Guide for Clinicians
        • Resources for Cancer Survivors

        • Survivorship ResourcesA collection of resources that provide information about navigating the cancer journey.
        • Cancer RehabilitationA supportive health care service that helps improve a person’s functioning during and after cancer treatment.
        • Integrative OncologyA field that combines traditional cancer treatments with therapies that support a person’s natural healing ability.
  • Resources
        • Resources

        • NCCS provides a wide variety of resources for both patients and caregivers.

        • Resources for Survivors and Caregivers

        • Cancer Survival ToolboxA free, award-winning audio program created by leading cancer organizations to help people better meet & understand the challenges of their illness.
        • Telehealth
        • Care Planning for Cancer Survivors
        • Remaining Hopeful
        • Self Advocacy
        • Talking With Your Doctor
        • Taking Charge of Your Care
        • Order Our Resources
        • Resources for Health Care Professionals

        • Tools For Care Providers
        • Telehealth Project
        • Survivorship Champions Webinars
        • Survivorship Checklist Guide for Clinicians
  • Events
    • Ellen L. Stovall Award
      • 2023 Winners
      • Awardees
      • Reception and Sponsorship
      • Committees
      • Nominations
    • Cancer Policy Roundtable (CPR)
      • Spring 2023 CPR
      • Fall 2022 CPR
      • Spring 2022 CPR
    • 2023 Survivorship Survey
    • Webinars
  • 0

Your generous year-end donation will be matched $1 for $1    DONATE

Tag Archive for: cancer care

ASCO Announces CancerLinQ, an Initiative to Transform Cancer Care

June 6, 2012/in Cancer News NCCS News

ASCO is embarking on CancerLinQ, a multi-phase initiative that promises to change the way cancer is understood and treated.  This “rapid learning system” will harness technological advances to connect oncology practices, measure quality and performance, and provide physicians with decision support in real time. Cancer science and information technology are advancing rapidly, but the way […]

Read more
https://canceradvocacy.org/wp-content/uploads/American-Society-of-Clinical-Oncology.jpg 545 1030 actualize https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png actualize2012-06-06 16:56:202020-11-30 14:00:36ASCO Announces CancerLinQ, an Initiative to Transform Cancer Care

There’s a medical app for that—or not

June 2, 2012/in Cancer News NCCS News

Mobile software is part of the most important movement in health care. Will government regulators suffocate it? Even the most ideologically opposed politicians agree: Health care is choking on paperwork, and medicine is prone to errors of handwriting, lost information and guesswork. That’s why the promotion of health information technology is one of the only […]

Read more
https://canceradvocacy.org/wp-content/uploads/wsj-logo.jpg 545 1030 actualize https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png actualize2012-06-02 16:58:532020-11-30 14:01:06There’s a medical app for that—or not

Focus on quality of life may cut health-care costs

April 18, 2012/in Cancer News NCCS News

A new focus on patient well being and quality-of-life issues could improve health-care outcomes and reduce costs, as WSJ explains in today’s special report on innovation in health care. Well-being and quality of life may seem like fairly vague concepts for doctors, compared to say, blood-pressure readings and cholesterol levels. But researchers are finding links […]

Read more
https://canceradvocacy.org/wp-content/uploads/wsj-logo.jpg 545 1030 actualize https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png actualize2012-04-18 09:14:012020-11-30 14:04:50Focus on quality of life may cut health-care costs

The challenges facing young people with cancer

April 6, 2012/in Cancer News NCCS News

Being diagnosed with cancer at any age is a terrifying thing, but for young people, a cancer diagnosis can mean falling into a unique treatment limbo. Young adults are often faced with receiving treatment among children in pediatric wards, or with elderly patients in more traditional oncology wards – and neither option addresses the specific […]

Read more
https://canceradvocacy.org/wp-content/uploads/The-challenges-facing-young-people-with-cancer.jpg 545 1030 actualize https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png actualize2012-04-06 09:18:222020-11-30 14:26:39The challenges facing young people with cancer

Beating the odds

March 13, 2012/in Cancer News NCCS News

I have to admit it. Even today, I find interpreting statistics for patients very difficult; not because I don’t understand the concept of relative and absolute risks, hazard or odds ratios, or survival rates. It’s because in the end, they do not apply at an individual level. Too often in the course of a conversation […]

Read more
https://canceradvocacy.org/wp-content/uploads/American-Society-of-Clinical-Oncology.jpg 545 1030 actualize https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png actualize2012-03-13 09:45:562020-11-30 14:33:07Beating the odds

Sebelius says leukemia-drug shortage will be resolved within two weeks

February 16, 2012/in Cancer News NCCS News

Federal health officials said there will be enough supply of a children’s leukemia drug released in the next couple of weeks to alleviate a shortage. The drug, methotrexate, is used to treat children with acute lymphocytic leukemia, a type of blood cancer. Hospitals across the country are running low on the drug and some reported […]

Read more
https://canceradvocacy.org/wp-content/uploads/2014/06/FacebookProfile3.png 280 280 actualize https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png actualize2012-02-16 09:54:362012-02-16 09:54:36Sebelius says leukemia-drug shortage will be resolved within two weeks

Making sense of cancer screening updates

December 21, 2011/in Cancer News Quality Cancer Care, Survivorship Care NCCS News

As experts alter course on guidelines for cancer screenings such as mammograms and the prostate-specific antigen test, the general public is understandably confused. Women at age 40 wonder if they should have a mammogram to look for breast cancer or wait until 50, as one U.S. organization suggests. Men of an age when prostate cancer […]

Read more
https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png 0 0 actualize https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png actualize2011-12-21 10:40:462011-12-21 10:40:46Making sense of cancer screening updates

Drug scarcity’s dire cost, and some ways to cope

December 14, 2011/in Cancer News NCCS News

When Jenny Morrill, who has been battling ovarian cancer since 2007, went to the hospital for her scheduled chemotherapy treatment in June, the nurse greeted her with both good news and bad. “She said, ‘The good news is that you’re doing really well on this drug Doxil. The bad news is that we have no […]

Read more
https://canceradvocacy.org/wp-content/uploads/2014/06/FacebookProfile3.png 280 280 actualize https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png actualize2011-12-14 10:53:232011-12-14 10:53:23Drug scarcity’s dire cost, and some ways to cope

When care is worth it, even if end is death

December 14, 2011/in Cancer News Palliative Care, Quality Cancer Care NCCS News

An essay by Peter Bach, M.D. Twenty years ago, I helped save a man’s life. I met him in the emergency room of the hospital, just a year after I finished medical school. His cardiac monitor, the first thing I noticed, showed fast and irregular beats with bursts of a messy, wavy rhythm called ventricular […]

Read more
https://canceradvocacy.org/wp-content/uploads/2014/06/FacebookProfile3.png 280 280 actualize https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png actualize2011-12-14 10:51:432011-12-14 10:51:43When care is worth it, even if end is death
Page 44 of 44«‹424344

Latest News

Advocate Spotlight: Mary Glen, with photo of Mary.

The Not-So-Good Cancer: Mary Glen’s Inspiring Advocacy Journey

November 8, 2023
Advocate Spotlight: Mary Glen Mary Glen was serving as an active-duty Army officer, deployed to South Korea in August 2020. Just…
Read more
https://canceradvocacy.org/wp-content/uploads/Mary-Glen-Advocate-Spotlight-Blog-Banner.jpg 600 1200 NCCS Staff https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png NCCS Staff2023-11-08 11:55:412023-11-08 11:55:41The Not-So-Good Cancer: Mary Glen’s Inspiring Advocacy Journey
Mary McCabe and Phuong Gallagher, Stovall Award winners, with NCCS CEO Shelley Fuld Nasso

NCCS Presents 8th Annual Ellen L. Stovall Awards to Phuong Gallagher and Mary McCabe, RN for Their Innovation and Dedication to Cancer Survivors

October 30, 2023
FOR IMMEDIATE RELEASE  October 30, 2023 Washington, D.C. – The National Coalition for Cancer Survivorship (NCCS) presented the…
Read more
https://canceradvocacy.org/wp-content/uploads/Mary-McCabe-Shelley-Fuld-Nasso-Phuong-Gallagher-Stovall-Awards-2023-web.jpg 628 1200 Kara Kenan https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png Kara Kenan2023-10-30 09:31:232023-10-30 12:35:48NCCS Presents 8th Annual Ellen L. Stovall Awards to Phuong Gallagher and Mary McCabe, RN for Their Innovation and Dedication to Cancer Survivors
picture of National Institutes of Health building in Bethesda, MD

NCCS, Cancer Leadership Council Express Strong Support for NIH Director Nominee Monica Bertagnolli

October 18, 2023
The National Coalition for Cancer Survivorship (NCCS) strongly supports the nomination of Dr. Monica Bertagnolli to be the Director…
Read more
https://canceradvocacy.org/wp-content/uploads/National-Institutes-of-Health-NIH-1200px.jpg 628 1200 NCCS Staff https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png NCCS Staff2023-10-18 11:54:422023-10-18 11:57:58NCCS, Cancer Leadership Council Express Strong Support for NIH Director Nominee Monica Bertagnolli

Take Action

Link to: Survivorship Champions

Become a Survivorship Champion

Survivorship Champions is a program for all clinicians and researchers, both oncology and primary care, who are interested in improving survivorship care and primary care’s role in caring for cancer survivors.

Learn More and Join »
Link to: Cancer Policy and Advocacy Team (CPAT)

Join CPAT

The NCCS Cancer Policy & Advocacy Team (CPAT) is a program for survivors and caregivers to learn about pressing policy issues that affect quality cancer care in order to be engaged as advocates in public policy around the needs of cancer survivors.

Learn More and Join »
Link to: Survivor Stories

Share Your Story

NCCS represents the millions of Americans who share a common experience – living with, through and beyond a cancer diagnosis. By sharing your story of how you have been touched by cancer, you are supporting the national cancer survivorship movement.

Share Your Story »

STAY CONNECTED

Together we can improve cancer care for survivors! Sign up to be the first to know about cancer policy issues and ways to take action

  • This field is for validation purposes and should be left unchanged.

  • About
    • Our Mission
    • What is Advocacy?
    • Our History
    • Our Team
    • Financial Information
    • Employment
    • Contact Us
    • Make A Gift
    • The 1986 Club
    • Ways to Give
    • Partnerships
  • News
    • NCCS News
    • Advocate Spotlight
    • Policy Comments
    • Issue Statements
  • Policy
    • Quality Cancer Care
    • Access to Care
    • Health Equity
    • Comprehensive Cancer Survivorship Act (CCSA)
    • Cancer Care Planning and Communications Act (CCPCA)
    • DIEP Flap Access
    • Policy Comments
    • Issue Statements
    • Quality Measurement Research
  • Get Involved
    • Cancer Policy and Advocacy Team (CPAT)
    • Survivorship Champions
    • Elevating Survivorship
    • Advocacy Opportunities
    • Subscribe to NCCS Updates
    • Follow NCCS on Social Media
    • Survivor Stories
    • Cancerversary
    • Make A Gift
    • The 1986 Club
    • Ways to Give
  • Survivorship Survey
    • 2023 Survey Report
    • 2022 Survey Report
    • 2021 Survey Report
    • 2020 Survey Report
  • Survivorship Checklist
    • Start Your Cancer Survivorship Checklist
    • Survivorship Resources
    • Cancer Rehabilitation
    • Integrative Oncology
    • Survivorship Checklist Guide for Clinicians
  • Resources
    • Cancer Survival Toolbox
    • Telehealth
    • Care Planning for Cancer Survivors
    • Remaining Hopeful
    • Self Advocacy
    • Talking With Your Doctor
    • Taking Charge of Your Care
    • Order Our Resources
    • Tools For Care Providers
    • Telehealth Project
    • Survivorship Champions Webinars
    • Survivorship Checklist Guide for Clinicians
  • Events
    • Ellen L. Stovall Award
      • 2023 Winners
      • Awardees
      • Reception and Sponsorship
      • Committees
      • Nominations
    • Cancer Policy Roundtable (CPR)
      • Spring 2023 CPR
      • Fall 2022 CPR
      • Spring 2022 CPR
    • 2023 Survivorship Survey
    • Webinars
  • Search
  • Cart

National Coalition for Cancer Survivorship
8455 Colesville Road  |  Suite 930  |  Silver Spring, MD 20910
877-NCCS-YES  |  info@canceradvocacy.org
Privacy Policy  |  Terms and Conditions

Copyright © 1995-2023 by the National Coalition for Cancer Survivorship
National Coalition for Cancer Survivorship, NCCS, Cancer Survival Toolbox, and related Logos are registered in the United States as trademarks of the National Coalition for Cancer Survivorship.

Scroll to top
Download the Survey Report

"*" indicates required fields

Fill out the form below, and we’ll send the survey report, detailed presentation, and infographic to your email.
Name*
I am a...*
Select any/all that apply.
Consent*
By downloading the survey materials, you will receive updates and information from NCCS via email, which you may unsubscribe from at any time. Your information will never be sold to any third parties.
This field is for validation purposes and should be left unchanged.

Download the Survey Report

"*" indicates required fields

Fill out the form below, and we’ll send the survey report, detailed presentation, and infographic to your email.
Name*
I am a...*
Select any/all that apply.
Consent*
By downloading the survey materials, you will receive updates and information from NCCS via email, which you may unsubscribe from at any time. Your information will never be sold to any third parties.
This field is for validation purposes and should be left unchanged.

Get Updates From NCCS

Be the first to hear about cancer policy and survivorship issues! Subscribe and receive the biweekly NCCS Health Care Roundup, invites to webinars and events, and more.

  • This field is for validation purposes and should be left unchanged.

Connect With Us

Twitter     Facebook     Instagram     LinkedIn     YouTube

Harmar Brereton, MD

Founder
Northeast Regional Cancer Institute

 

“Perhaps one of the most impactful collaborations in Dr. Brereton’s extraordinary career remains his early work and long friendship with Ellen Stovall. Through him, and in turn through the thousands of lives he has touched, Ellen’s work continues, and her mission lives on.”

—Karen M. Saunders
President, Northeast Regional Cancer Institute