Tag Archive for: cancer care

WCOE: New IOM Report, Control Issues, Tempting Treatment Options, and Patients ‘Right to Try’ New Drugs

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New IOM Report: Sharing Clinical Trial Data: Maximizing Benefits, Minimizing Risks https://t.co/neRjKfx8ma #datasharing — NASEM Health (@NASEM_Health) January 14, 2015 "Cancer survivors plagued by lack of personal control" https://t.co/9tRPQrbdzs via @reuters "a wish to return to 'normal'" — NCCS – National Coalition for Cancer Survivorship (@CancerAdvocacy) January 14, 2015 Doing More for Patients Often Does […]

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WCOE: FDA News, Medical Debt, the ACA, and Honoring Jessie Gruman

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Why The FDA Panel's Nod To Sandoz's Filgrastim (Zarzio) Is Good News For Patients, by @ElaineSchattner – https://t.co/Dle8xM2G9I — Elaine Schattner MD, MA (@ESchattner) January 8, 2015 NEW Policy Insight: High cost sharing can contribute to medical debt. Transparency can help consumers avoid it: https://t.co/p4uh62kkVd — KFF (Kaiser Family Foundation) (@KFF) January 8, 2015 Amid […]

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The National Coalition for Cancer Survivorship Establishes the Jessie Gruman Patient Engagement Award

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For more than twenty years, the National Coalition for Cancer Survivorship (NCCS) had the privilege of adapting our friend and colleague, Jessie Gruman’s important work into the development of the cancer policy work that we engage in. Jessie’s vision of patient engagement was always ahead of its time, and her books and blogs and participation […]

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WCOE: Warlike Metaphors, a Report out of the San Antonio Breast Cancer Symposium, Discussing Costs, and Other News

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The stories that caught our eye this week included an article that points out the use of warlike metaphors to describe one’s experience of cancer as one that may prevent patients from seeking aggressive treatment.  Prior research has concluded that warlike metaphors may lead one to feel like a failure or guilty that they didn’t fight […]

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WCOE: Cost of Cancer Care, Adopting a Shorter Course of Treatment for Some Breast Cancer Patients, and Lung Cancer Screening

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In “The Punishing Cost of Cancer Care,” Dr. Mikkael Sekeres describes the difficult conversations he has with patients regarding the cost of cancer treatments and how reviewing the economic risks of treatment is now a standard part of his informed consent process. In the vignette he provides, one patient considers whether the cost of treatment outweighs the potential […]

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WCOE: Comparing Health Plans, Motivating Change in Clinical Practice, the Sunshine Act, and Clinical Trials Protocols

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Charles Ornstein, Lena Groeger and Ryann Grochowski Jones from ProPublica analyzed changes in plans under the Affordable Care Act (“Big Changes in Fine Print of Some 2015 Obamacare Plans”), and ProPublica developed an app that allows consumers in 34 states to compare premiums, deductibles, and other costs under 2014 and 2015 plans. If consumers choose […]

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Guest Blog: Fighting Cancer Means Fighting for Cancer Data

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The second most common cause of death, cancer touches all of us. According to the Institute of Medicine, the numbers are only projected to increase and care costs are skyrocketing.Yet despite its toll, it’s virtually impossible to answer the question, “Who provides high quality cancer care?” This hinders patients, providers, payers, policymakers, and others to […]

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NCCS Responds to Two Recent Articles Covering the Complexities of Transparency and Shared Decision-Making Issues

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Two stories in last week’s New York Times illustrate the complexities of the changing healthcare marketplace.  They both describe discrete issues that beleaguer and hinder the transparency and shared decision-making that we at the National Coalition for Cancer Survivorship (NCCS) call for when patients need to make an informed decision about their care.  We comment […]

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Guest Post by Peter Bach: Lung Cancer Awareness Month Brings a Long-Awaited Nod to Lung Cancer Screening

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Guest post by Peter Bach, MD, MAPP, Director of Memorial Sloan Kettering’s Center for Health Policy and Outcomes.   Every November is lung cancer awareness month, but this November is on track to being a pretty special one.  Lung cancer physicians and public health professionals breathed a collective sigh of relief when Medicare gave a […]

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WCOE: The Burden of Caregiving, Financial Incentives, Unnecessary Services for Medicare Beneficiaries, and Medicaid Reform

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In “Seeing the ‘Invisible Patient,’”Jane Gross addresses the burden of caregiving and how often caregivers’ health, both physical and mental, is overlooked. Ms. Gross refers to an article published in the Journal of the American Medical Association (JAMA) that provides recommendations for lessening the burden and provides a list of questions that doctors and other health […]

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