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Cancer Nation (Formerly NCCS)
  • About

        • About Us

        • Cancer Nation is the oldest cancer survivor-led non-profit organization in America. We advocate for quality cancer care for all touched by cancer.

        • About Cancer Nation

        • Our Mission
        • What is Advocacy?Learn about the different types of cancer advocacy, from personal advocacy to public interest advocacy.
        • Our HistoryRead how Cancer Nation’s leaders coined the term “cancer survivor,” and established the nation’s first survivor-led non-profit organization.
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        • Make A GiftSupport our mission of quality cancer care for all with a gift to Cancer Nation.
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    • Cancer Nation News Blog
    • Advocate SpotlightEach month, Cancer Nation highlights a cancer survivorship advocate, sharing their story and the work they do in their communities.
    • Policy CommentsRead Cancer Nation’s comments to Congress, HHS, and other federal policymakers in Washington, DC on proposed rules and legislation.
    • Issue StatementsRead Cancer Nation statements on pressing issues and developments in Washington affecting cancer survivors and their families.
    • Newsletter: Cancer Nation News
  • Policy

        • Policy

        • Public policy is government action, in the form of legislation, regulation, funding, and other actions. Public policy affects people with cancer and the cancer care system in many ways.

        • Our Policy Priorities

        • Quality Cancer CareQuality cancer care is essential for patients. Learn how Cancer Nation and others define quality.
        • Access to CareCancer Nation believes cancer care and clinical trials should be affordable and accessible to everyone.
        • Health EquityThe cancer experience is not the same for everyone. Cancer Nation works on policy efforts to reduce disparities in outcomes.

        • Current Issues

        • Protecting Access to Medicaid for Cancer Survivors
        • Comprehensive Cancer Survivorship Act (CCSA)The CCSA is a large comprehensive bill introduced in Congress that aims to improve quality of care in all stages of a diagnosis.
        • Cancer Care Planning and Communications Act (CCPCA)CCPCA is a bill that would provide a billable Medicare service code for cancer care planning.
        • DIEP Flap AccessCancer Nation advocates for protection of access to DIEP Flap Breast Reconstruction Surgery for all breast cancer survivors.
        • Policy CommentsRead Cancer Nation’s comments to Congress, HHS, and other federal policymakers in Washington, DC on proposed rules and legislation.
        • Issue StatementsRead Cancer Nation statements on pressing issues and developments in Washington affecting cancer survivors and their families.
        • Quality Measurement Research
  • Get Involved

        • Get Involved

        • Whether you’re new to cancer advocacy or already have experience as an advocate, there are numerous ways you can get involved with Cancer Nation.

        • Join Cancer Nation

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        • Advocacy OpportunitiesThis page provides a list of upcoming events, webinars, conferences, and advocacy campaigns from Cancer Nation and other leading cancer organizations.

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        • Cancer Nation conducts an annual State of Survivorship Survey, in partnership with Edge Research, to explore the cancer patient and survivor journey. This study captures a range of perspectives to better understand how Cancer Nation can support its mission to advocate for quality cancer care for all.

        • Reports by Year

        • 2025 Survey Report
        • 2024 Survey Report
        • 2023 Survey ReportThe 2023 Survey explored the caregiver experience for the first time, and features new data on the effect of cancer treatment on employment.
        • 2022 Survey ReportThe 2022 Survey found significant disparities in cancer care that impact people of color, young adults, women, and those with metastatic cancer, at higher rates.
        • 2021 Survey ReportThe 2021 Survey demonstrated that when patients receive quality care, have excellent support, and have financial resources, they are more likely to have positive outcomes.
        • 2020 Survey ReportIn the 2020 Survey, survivors reported that their care team is not helpful at addressing some common side effects of their cancer such as fatigue, anxiety, and depression.
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        • Cancer Survivorship Checklist

        • The Cancer Survivorship Checklist is designed to be a simple, straightforward tool patients and caregivers can use as a guide for information critical to their care wherever they are on the cancer care continuum.

        • Start Your Cancer Survivorship Checklist
        • Survivorship Checklist Guide for Clinicians

        • Resources for Cancer Survivors

        • Survivorship ResourcesA collection of resources that provide information about navigating the cancer journey.
        • Cancer RehabilitationA supportive health care service that helps improve a person’s functioning during and after cancer treatment.
        • Integrative OncologyA field that combines traditional cancer treatments with therapies that support a person’s natural healing ability.
        • Palliative CareSpecialized medical care for people living with a serious illness that provides relief from the symptoms and stress to improve their quality of life.
        • Cognitive HealingA resource to support cognitive functioning after cancer treatment. Includes cognitive training strategies and tools for both adults and children.
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        • Resources

        • Cancer Nation provides a wide variety of resources for patients, caregivers, and health care professionals.

        • Resources for Survivors and Caregivers

        • Health Insurance & Open Enrollment
        • Cancer Survival ToolboxA free, award-winning audio program created by leading cancer organizations to help people better meet & understand the challenges of their illness.
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News

20years

Guest Post by Amy Abernethy of Flatiron Health: Long-Term Medical Data Collection Improves Care Quality, Outcomes

August 27, 2015
I once had a patient named Janet. Janet was a curly redhead emergency department nurse. She was vibrant, sweet, and vivacious,…
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NCCS Responds to Draft ASCO Conceptual Framework to Assess the Value of Cancer Treatment Options

August 22, 2015
NCCS recently submitted comments to the American Society for Clinical Oncology (ASCO) on its proposed value framework. In June, ASCO…
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https://canceradvocacy.org/wp-content/uploads/2014/07/Fotolia_23428619_S-e1461260836640.jpg 515 1030 actualizedevs https://canceradvocacy.org/wp-content/uploads/CancerNation_Logo_40Yrs_Stacked_TwoColor-scaled.png actualizedevs2015-08-22 10:41:222015-08-22 10:41:22NCCS Responds to Draft ASCO Conceptual Framework to Assess the Value of Cancer Treatment Options
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WCOE: How To Know Whether to Believe a Health Study, Cancer Statistics, Minority Access To Care, President Carter’s Cancer, and More

August 21, 2015
What Caught Our Eye (WCOE) Each week, we recap the cancer policy articles, studies, and stories that caught our attention. …
Read more
https://canceradvocacy.org/wp-content/uploads/2012/12/NCCS_Starburst_Thumbnail.jpg 125 125 actualizedevs https://canceradvocacy.org/wp-content/uploads/CancerNation_Logo_40Yrs_Stacked_TwoColor-scaled.png actualizedevs2015-08-21 16:03:032015-08-21 16:03:03WCOE: How To Know Whether to Believe a Health Study, Cancer Statistics, Minority Access To Care, President Carter’s Cancer, and More
20years

Twenty Years Later Blog Series: Introducing the Eighth Principle of the Imperatives for Quality Cancer Care

August 15, 2015
Over the course of 2015, NCCS and a diverse group of guest contributors will revisit the Imperatives for Quality Cancer Care as published…
Read more
https://canceradvocacy.org/wp-content/uploads/2015/01/20years.gif 500 500 actualizedevs https://canceradvocacy.org/wp-content/uploads/CancerNation_Logo_40Yrs_Stacked_TwoColor-scaled.png actualizedevs2015-08-15 16:12:542015-08-15 16:12:54Twenty Years Later Blog Series: Introducing the Eighth Principle of the Imperatives for Quality Cancer Care
Cancer Survivors and Caregivers

Logistic Toxicity and Administrative Burdens for Cancer Survivors and Caregivers

August 15, 2015
There are many types of toxicities cancer patients face in their treatment. We hear most about the physical toxicities of treatment…
Read more
https://canceradvocacy.org/wp-content/uploads/Cancer-Survivors-and-Caregivers.jpg 515 1030 actualizedevs https://canceradvocacy.org/wp-content/uploads/CancerNation_Logo_40Yrs_Stacked_TwoColor-scaled.png actualizedevs2015-08-15 14:09:432020-12-01 13:32:27Logistic Toxicity and Administrative Burdens for Cancer Survivors and Caregivers
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WCOE: Hunting for Health Care Procedures, Surging Costs of Cancer Care, Getting to Doctors Appointments, Logistic Toxicity, and A Beautiful Piece by Oliver Sacks

August 14, 2015
What Caught Our Eye (WCOE) Each week, we recap the cancer policy articles, studies, and stories that caught our attention. h…
Read more
https://canceradvocacy.org/wp-content/uploads/2012/12/NCCS_Starburst_Thumbnail.jpg 125 125 actualizedevs https://canceradvocacy.org/wp-content/uploads/CancerNation_Logo_40Yrs_Stacked_TwoColor-scaled.png actualizedevs2015-08-14 10:12:412015-08-14 10:12:41WCOE: Hunting for Health Care Procedures, Surging Costs of Cancer Care, Getting to Doctors Appointments, Logistic Toxicity, and A Beautiful Piece by Oliver Sacks
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WCOE: ACA’s Out-Of-Pocket Maximums, Susan Gubar on Cancer and Loneliness, Pre-hab: Rehab Before Treatment, and Death with Dignity Advocacy

August 7, 2015
What Caught Our Eye (WCOE) Each week, we recap the cancer policy articles, studies, and stories that caught our attention. …
Read more
https://canceradvocacy.org/wp-content/uploads/2012/12/NCCS_Starburst_Thumbnail.jpg 125 125 actualizedevs https://canceradvocacy.org/wp-content/uploads/CancerNation_Logo_40Yrs_Stacked_TwoColor-scaled.png actualizedevs2015-08-07 11:41:332015-08-07 11:41:33WCOE: ACA’s Out-Of-Pocket Maximums, Susan Gubar on Cancer and Loneliness, Pre-hab: Rehab Before Treatment, and Death with Dignity Advocacy
20years

Guest Post: Developing Clinical Solutions to Improve Survivorship Care: The Value of Partnership

July 31, 2015
We are living in an exciting and dynamic time for cancer care, witnessing not only tremendous innovations in treatment that have…
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Latest News

Joslyn Trovati Advocate Spotlight Blog Banner

There Is No Right or Wrong Way to Grieve: Joslyn Trovati on Grief, Survivorship, and Whole Person Cancer Care

August 26, 2026
Joslyn Trovati is an oncology therapist and young adult cancer survivor who advocates for grief support and Whole Person Cancer Care. Read her story.
Read more
https://canceradvocacy.org/wp-content/uploads/Joslyn-Trovati_-Advocate-Spotlight-Blog-Banner.png 600 1200 Elleni https://canceradvocacy.org/wp-content/uploads/CancerNation_Logo_40Yrs_Stacked_TwoColor-scaled.png Elleni2026-08-26 14:41:152026-08-26 14:41:15There Is No Right or Wrong Way to Grieve: Joslyn Trovati on Grief, Survivorship, and Whole Person Cancer Care
Group of researchers working in a lab

Cancer Nation Joins Amicus Brief in Suit Over Vaccine Recommendations

July 24, 2026
Last week, Cancer Nation joined leading patient advocacy and public health organizations in supporting an amicus (or friend-of-the-court)…
Read more
https://canceradvocacy.org/wp-content/uploads/Research-Group-Stock-Photo.jpg 600 1200 Elleni https://canceradvocacy.org/wp-content/uploads/CancerNation_Logo_40Yrs_Stacked_TwoColor-scaled.png Elleni2026-07-24 14:30:482026-07-24 14:33:17Cancer Nation Joins Amicus Brief in Suit Over Vaccine Recommendations
a graphic with a text headline reading "Cancer Nation Announces New Leadership Academy Cohort", underneath are Headshots of all 12 2026 cancer Nation Ambassadors side-by-side

Meet the 2026 Cancer Nation Leadership Academy Ambassadors

July 15, 2026
We are proud to welcome the 2026 Cancer Nation Leadership Academy cohort. Following a competitive application process, 12 survivors,…
Read more
https://canceradvocacy.org/wp-content/uploads/Leadership-Academy-Announcement-1200-600-2.jpg 600 1200 Elleni https://canceradvocacy.org/wp-content/uploads/CancerNation_Logo_40Yrs_Stacked_TwoColor-scaled.png Elleni2026-07-15 15:41:172026-07-15 16:53:13Meet the 2026 Cancer Nation Leadership Academy Ambassadors

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Harmar Brereton, MD

Founder
Northeast Regional Cancer Institute

 

“Perhaps one of the most impactful collaborations in Dr. Brereton’s extraordinary career remains his early work and long friendship with Ellen Stovall. Through him, and in turn through the thousands of lives he has touched, Ellen’s work continues, and her mission lives on.”

—Karen M. Saunders
President, Northeast Regional Cancer Institute