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IT is conventional wisdom that end-of-life care is an increasingly huge proportion of health care spending. I’ve often heard it said that people spend more on health care in the year before they die than they do in the entire rest of their lives. If we don’t address these costs, the story goes, we can […]
In a New England Journal of Medicine January 3, 2013 article, Emily Oshima Lee and Dr. Ezekiel J. Emanuel discuss the potential for shared decision making to improve the quality of care patients receive and potentially reduce costs. The authors suggest that a provision of the Affordable Care Act (ACA) should be implemented fully to […]
The December 27, 2012, New England Journal of Medicine includes an important research article on the impact of drug shortages on children with cancer. The study, conducted by Drs. Monika Metzger, Amy Billett, and Michael Link, evaluated the impact of shortages of mechlorethamine for treatment of intermediate-risk Hodgkin’s lymphoma in children. The authors found that […]
The Honorable Kathleen Sebelius Secretary Department of Health and Human Services 200 Independence Avenue, S.W. Washington, D.C. 20201 Re: CMS-9980-P, Patient Protection and Affordable Care Act; Standards Related to Essential Health Benefits, Actuarial Value, and Accreditation Dear Secretary Sebelius: The National Coalition for Cancer Survivorship (NCCS) appreciates the opportunity to comment on the proposed rule […]
On December 26, 2012 the Cancer Leadership Council, a patient-centered forum of national advocacy organizations addressing public policy issues in cancer, filed comments on Essential Health Benefits. The National Coalition for Cancer Survivorship was one of 16 organizations representing cancer patients, physicians, researchers, and caregivers signing on to the comments. The comments on the proposed rule setting […]
When the diagnosis is cancer, many people understandably want to pull out all the stops to treat it. But some tests, treatments and procedures not only are unnecessary but also can be harmful. “Sometimes less really is more,” says Lowell E. Schnipper, chief of hematology-oncology at Beth Israel Deaconess Medical Center in Boston and clinical […]
On Tuesday, November 20, 2012, the Department of Health and Human Services released proposed rules on several key elements of the Affordable Care Act. The proposed rules address: 1) the operation of the health insurance exchanges and the definition of essential health benefits to be included in plans offered through the exchanges, 2) the implementation […]
When my husband learned he had advanced lung cancer, he didn’t even want to speak to an oncologist about chemotherapy. He saw no point in treatment that could not cure him and might make him feel worse. Not so, though, for a majority of patients diagnosed with cancers of the lung or colon that have spread […]
A recent study from the Ohio State University Comprehensive Cancer Center found that certain cancer types are disproportionately under-represented when researching survivorship. The study revealed that 40 percent of current research focuses on breast cancer survivors, with breast cancer survivors accounting for 22 percent of the entire survivor population. In contrast, prostate cancer survivors make […]
Breast Cancer Survivor Awarded Top Prize In 2012 Oncology On Canvas ℠ Art Competition INDIANAPOLIS, Nov. 12, 2012 /PRNewswire/ — Quilts are made for dozens of reasons – for warmth, decoration and remembrance – but for a college professor from Utah, quilting became a form of healing. It was something Judy Elsley, Ph.D., had enjoyed doing for years, but it […]
Survivorship Champions is a program for all clinicians and researchers, both oncology and primary care, who are interested in improving survivorship care and primary care’s role in caring for cancer survivors.
The NCCS Cancer Policy & Advocacy Team (CPAT) is a program for survivors and caregivers to learn about pressing policy issues that affect quality cancer care in order to be engaged as advocates in public policy around the needs of cancer survivors.
NCCS represents the millions of Americans who share a common experience – living with, through and beyond a cancer diagnosis. By sharing your story of how you have been touched by cancer, you are supporting the national cancer survivorship movement.
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Founder
Northeast Regional Cancer Institute
“Perhaps one of the most impactful collaborations in Dr. Brereton’s extraordinary career remains his early work and long friendship with Ellen Stovall. Through him, and in turn through the thousands of lives he has touched, Ellen’s work continues, and her mission lives on.”
—Karen M. Saunders
President, Northeast Regional Cancer Institute