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Today the National Coalition for Cancer Survivorship (NCCS) announces the appointment of a group of leaders in the oncology field to serve as Cancer Policy Advisors. The slate of advisors includes leading researchers, oncologists, scholars, payers, and cancer center and survivorship program directors, who will provide guidance to NCCS as it represents cancer patients and […]
Today, the Institute of Medicine (IOM) released its report, “Delivering High-Quality Cancer Care: Charting a New Course for a System in Crisis.” According to the IOM, the American cancer care system often is not patient-centered, does not provide well-coordinated care, and does not encourage evidence-based treatment decisions. NCCS is a sponsor of the IOM report, […]
NCCS submitted comments to the Centers for Medicare and Medicaid Services (CMS) on the proposed rule that addresses Medicare Part B payment policies for 2014. In its comments, NCCS commended CMS for its efforts to foster care management, including codes for transitional care management which were implemented in 2013. In the current proposed rule, CMS […]
President Obama announced that the month of September will officially be known as National Childhood Cancer Awareness Month. The proclamation, released on August 30th, applauds the advancements that have been made in recent decades while noting that pediatric cancer remains the leading cause of death by disease for American children under 15. All children deserve […]
NCCS submitted comments to the Food and Drug Administration (FDA) as a follow-up to the Lung Cancer Patient-Focused Drug Development public meeting on June 28, 2013. The patient-focused drug development program is an initiative mandated by the Food and Drug Administration Safety and Innovation Act (FDASIA) and is intended to provide the agency the advice of patients […]
NCCS joined its patient advocate colleagues in the Cancer Leadership Council in comments on a Food and Drug Administration (FDA) document that provides guidance about the use of certain “expedited programs” that may be employed in the review of therapies for serious conditions. The FDA has updated the guidance regarding fast track and priority review […]
The Institute of Medicine released a meeting summary today of a workshop that took place in February, “Partnering with Patients to Drive Shared Decisions, Better Value, and Care Improvements.” A short video capturing the key messages of the workshop, and including the voice of patients, has also been released. In an efficient health care system, […]
On June 13, 2013, the Supreme Court ruled in Association for Molecular Pathology v. Myriad Genetics that a human gene removed from the body and unchanged from its natural form cannot be patented. Cancer advocates greeted the ruling with enthusiasm and also hoped that the ruling would have the impact of creating more competition for […]
Jessie Gruman offers her fellow cancer survivors and their caregivers specific advice for improving the discussion that occurs between cancer patient and care team at the time of discharge from the hospital. Ms. Gruman shares the experience she had when she was discharged from the hospital after removal of her stomach, the treatment for gastric […]
With the online publication of an opinion piece in the Journal of the American Medical Association, Drs. Laura J. Esserman, Ian M. Thompson, and Brian Reid have triggered a medical, scientific, and policy debate about the definition of “cancer” and strategies for diagnosis and treating cancer. The authors wrote for a working group that was […]
Survivorship Champions is a program for all clinicians and researchers, both oncology and primary care, who are interested in improving survivorship care and primary care’s role in caring for cancer survivors.
The NCCS Cancer Policy & Advocacy Team (CPAT) is a program for survivors and caregivers to learn about pressing policy issues that affect quality cancer care in order to be engaged as advocates in public policy around the needs of cancer survivors.
NCCS represents the millions of Americans who share a common experience – living with, through and beyond a cancer diagnosis. By sharing your story of how you have been touched by cancer, you are supporting the national cancer survivorship movement.
Together we can improve cancer care for survivors! Sign up to be the first to know about cancer policy issues and ways to take action
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Founder
Northeast Regional Cancer Institute
“Perhaps one of the most impactful collaborations in Dr. Brereton’s extraordinary career remains his early work and long friendship with Ellen Stovall. Through him, and in turn through the thousands of lives he has touched, Ellen’s work continues, and her mission lives on.”
—Karen M. Saunders
President, Northeast Regional Cancer Institute