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Many of us who are cancer survivors mark our calendars with days, months, and fortunately for some of us, with years. We at NCCS have used the word “Cancerversary” to acknowledge these passages of time, i.e., the day of diagnosis; the last day of treatment; the first month, the first year, and decade(s). One such […]
Recently, the American Society of Clinical Oncology (ASCO) released an updated cancer survivorship care planning (SCP) template—news that was captured by several medical online news outlets including Healio, Medscape, and Cancer.net. Survivorship care planning is a process of cancer care delivery that NCCS has advocated for over the last 20 years. In follow-up to a […]
This week, several articles caught our eye: Amy Berman shared her own experience “Choosing Wisely” when she opted for a single dose of radiation therapy to alleviate pain from bone metastases, instead of a course of 10 treatments. The Kaiser Family Foundation reported that 89% of uninsured individuals polled are not aware that the next open […]
Guest Blog by Carole McCue, RN, MS, CNE According to a recent study, 75 percent of cancer patients with depression are not treated. The integration of psychosocial care into the routine care of all patients with cancer is now being recognized as a new standard of care and the National Comprehensive Cancer Network, (NCCN) developed […]
This week, in an article by science and medicine reporter Matthew Herper titled “A Drug Regrew a Little Girl’s Missing Bones. How Much Should That Cost?” from Forbes caught our eye. Evie Elsaesser was born with a rare, life-threatening genetic disease causing low levels of hypophophatasia— a chemical important for bone hardening—in her blood. Although […]
On October 17th, NCCS Senior Health Policy Advisor Ellen Stovall will be presenting the patient perspective on overtreatment at the ASCO Quality Care Symposium in Boston. Ellen will be discussing the Choosing Wisely® campaign, an initiative of the ABIM Foundation intended to help physicians and patients engage in conversations to reduce overuse of tests and […]
What caught our eye this week was extensive coverage of Dr. Atul Gawande’s new book, Being Mortal: Medicine and what Matters in the End. In it, he examines end-of-life care in our country, and he weaves in personal stories from his own family and his patients, as well as interviews of hundreds of patients, families, […]
We have a lot of bad incentives built into our system, says @sfuldnasso at #T3Cancer — ThinkWellPoint (@ThinkWellPoint) “We need truth telling so patients understand the full influences on their care” Shelley Fuld Nasso @CancerAdvocacy #T3Cancer — CancerSupportCm (@CancerSupportCm) We need to ask patients what’s important to them in order to match their goals & […]
Two weeks ago I was able to represent NCCS at the Dempsey Challenge with the Amgen Breakaway from Cancer partners. Breakaway from Cancer (BFC) is a national initiative founded in 2005 by Amgen which seeks to increase awareness of the important resources available to people affected by cancer—from prevention to education and support to financial […]
This week, coverage of the release of data on payments by drug and device manufacturers to physicians caught our eye. The Centers for Medicare and Medicaid Services (CMS) released the first round of Open Payments data as mandated by the Physician Payments Sunshine Act provisions of the Affordable Care Act in 2010. The Sunshine Act […]
Survivorship Champions is a program for all clinicians and researchers, both oncology and primary care, who are interested in improving survivorship care and primary care’s role in caring for cancer survivors.
The NCCS Cancer Policy & Advocacy Team (CPAT) is a program for survivors and caregivers to learn about pressing policy issues that affect quality cancer care in order to be engaged as advocates in public policy around the needs of cancer survivors.
NCCS represents the millions of Americans who share a common experience – living with, through and beyond a cancer diagnosis. By sharing your story of how you have been touched by cancer, you are supporting the national cancer survivorship movement.
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Founder
Northeast Regional Cancer Institute
“Perhaps one of the most impactful collaborations in Dr. Brereton’s extraordinary career remains his early work and long friendship with Ellen Stovall. Through him, and in turn through the thousands of lives he has touched, Ellen’s work continues, and her mission lives on.”
—Karen M. Saunders
President, Northeast Regional Cancer Institute