Entries by actualize

WCOE: Chemo for Late-Stage Cancers, Talking about Drug Prices, the Importance of Care Coordination, and the Rise of End-of-Life Care

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"We as oncologists don't want to give up on people, and patients don't want to be given up on." https://t.co/LFsysgxJsi #Chemo at #EOL — NCCS – National Coalition for Cancer Survivorship (@CancerAdvocacy) July 23, 2015 Drug Prices Soar, Prompting Calls for Justification, National Coalition on HealthCare: call for transparency legislat https://t.co/vnOAx3Q3Qw — Daniel Wolfson (@WolfsonD) […]

Twenty Years Later Blog Series: Introducing the Seventh Principle of the Imperatives for Quality Cancer Care

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The seventh principle in the Imperatives for Quality Cancer Care states, “Long-term survivors should have access to specialized follow-up clinics that focus on health promotion, disease prevention, rehabilitation, and identification of physiologic and psychological problems. Communication with the primary care physician must be maintained.” Over the last 20 years, survivorship clinics have emerged to address […]

WCOE: Susan Gubar Giving Thoughts of Thanks, Discovering Patients’ Wishes, JAMA Study on Advance Care Planning, and More

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Living With Cancer: Curses and Blessings https://t.co/1JPw42OYPC via @nytimeswell — NCCS – National Coalition for Cancer Survivorship (@CancerAdvocacy) July 17, 2015 "The real test for physicians is being willing to meet the challenge of discovering our patient’s true wishes" https://t.co/xfXgeUmODq — Shelley Fuld Nasso (@sfuldnasso) July 17, 2015 See study in @JAMAOnc https://t.co/hsqg7hHU8E on advance […]

Medicare Proposal to Cover Advance Care Planning Conversations Marks an Important Step toward Patient-Centered Care

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Last week the Centers for Medicare & Medicaid Services (CMS) announced plans to support Medicare beneficiaries by reimbursing doctors for advance care planning beginning in January 2016. The proposed codes would reimburse for discussions about an individual’s wishes, should he or she becomes too ill to make decisions, and for the completion of an advance […]

WCOE: Shared Decision-Making, Medicare Plans to Pay Doctors to Talk About End-of-Life Care, and Patient Advocate Meets with Congressional Representative

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Patients should learn ALL treatment options. @nprnews: Knowing How Doctors Die Can Change End-Of-Life Discussions https://t.co/If5z8vn6bC — Shelley Fuld Nasso (@sfuldnasso) July 7, 2015 "Death panel" was an unfortunate misnomer and we should not perpetuate it. Patients deserve advanced care planning. https://t.co/7c8R63jb7D — Shelley Fuld Nasso (@sfuldnasso) July 9, 2015 "Shared decision-making is a relationship […]

Discussing “Good” and “Hard” Deaths: Columnist Ellen Goodman’s Opinion Piece “How to Talk About Dying”

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In a recent opinion post in The New York Times, columnist Ellen Goodman writes intimately about the loss of her parents. Decades after the death of her father, Goodman felt wholly unprepared for the decisions that needed to be made  as her mother’s health declined, assuming—like many caregivers and loved ones do—that death would be […]

Advocates from Across the US Discuss Key Survivorship Issues at Cancer Policy Advocate Training

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Last week, advocates from across the country came together for the NCCS Cancer Policy Advocate Training (CPAT). Participants spent two days being trained on the most pressing policy issues affecting cancer survivorship care in the United States. The program agenda focused on the needs of cancer survivors from diagnosis to treatment and through long-term survivorship […]

Navigating Cancer Survivorship Without a Net: How Far Have We Come and Where Are We Headed?

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Diagnosed, in 1994, with stage three testicular cancer with metastases to several lymph nodes and both lungs followed by an unrelated diagnosis of kidney cancer three months later, I found myself completely unprepared for the journey I was about to embark on.   At the age of 25, while many of my friends were planning weddings, […]

Hodgkin’s Lymphoma Survivor Dr. Greg Aune Discusses Issues in Long-Term Survivorship Care

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At age 16, Greg Aune was diagnosed with Hodgkin’s Lymphoma and was successfully cured of his disease after undergoing one year of chemotherapy and radiation treatments. His cancer experience led Dr. Aune down a path to becoming a pediatric oncologist and physician scientist. In this video, Dr. Aune discusses issues of long-term survivorship care and […]

WCOE: Supreme Court Ruling Breathes Life Into Affordable Care Act, Patient Advocates in DC for #CPAT15 Visit the Hill to Show Support for PACT Act, Sponsored by Congresswoman Lois Capps and Congressman Charles Boustany

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  Supreme Court decision is good news for cancer patients who need help purchasing health insurance. #SCOTUS #KingvBurwell — Shelley Fuld Nasso (@sfuldnasso) June 25, 2015   Check out this blog post about yesterday's #PACTAct visits https://t.co/A3JCmpbwxs — NCCS – National Coalition for Cancer Survivorship (@CancerAdvocacy) June 25, 2015   Thank you @RepBoustany for your […]

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