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Over the past twenty years, the number of cancer survivors has grown substantially. Survivors are also living longer, getting older, and have numerous medical conditions that require attention. While survivors typically receive general medical care in primary care settings, the role of primary care providers (PCPs) in the long-term follow up of survivorship needs is […]
Yesterday in the Washington Post, Amy Berman shared her experience with her cancer treatment. She was diagnosed nearly five years ago with an incurable cancer, and she has made decisions about her treatment that support her goal of living as well as she can for as long as she can. She rejected aggressive treatments, including […]
We are pleased to be joining a Cancer Twitter Chat on Tuesday, September 2, 2015 from 2:00 pm to 3:00 pm EDT. The chat will be hosted by the Patient-Centered Outcomes Research Institute (PCORI), an independent nonprofit, nongovernmental organization located in Washington, DC. PCORI was created to help people make better informed healthcare decisions. NCCS […]
As part of our 20 Years Later blog series which examines progress in advancing the principles in the 1995 NCCS publication Imperatives for Quality Cancer Care: Access, Advocacy, Action, and Accountability (Imperatives), this month we will look at the ninth principle of Imperatives: “The responsibility for appropriate long-term medical care must be shared by cancer survivors, […]
What Caught Our Eye (WCOE) Each week, we recap the cancer policy articles, studies, and stories that caught our attention. Join us on Sept 29 at 2pm ET for a chat about #cancer side effects & symptoms. Use #CTalk. https://t.co/oix4S5ISms — NCCS – National Coalition for Cancer Survivorship (@CancerAdvocacy) September 27, 2015 https://twitter.com/NikiBarrPhD/status/647408343598809088 Seeing is […]
What Caught Our Eye (WCOE) Each week, we recap the cancer policy articles, studies, and stories that caught our attention. Christian Nelson, PhD, discusses what nurses should be aware of when caring for an older patient with cancer https://t.co/hN7uj53frj — Oncology Nursing News (@OncNursingNews) September 18, 2015 Living With Cancer: Teal Ribbons https://t.co/fcOOPD2G7e — NYTimes […]
NCCS submitted letters to the Centers for Medicare and Medicaid Services (CMS) on its proposed revisions to the Medicare physician fee schedule for calendar year 2016. In our letter, NCCS commended CMS for its efforts to enhance comprehensive care management for certain Medicare beneficiaries. Through improvements in fee-for-service payments and various demonstration initiatives, CMS has made […]
The terms “palliative care,” “hospice,” and “end-of-life care” are often used interchangeably, but they are not the same. Palliative care includes symptom management and other supportive care that can be provided throughout cancer treatment, whether a cure for the illness is or is not expected. Patients should expect palliative care throughout treatment, as it is […]
What Caught Our Eye (WCOE) Each week, we recap the cancer policy articles, studies, and stories that caught our attention. How is chemotherapy given? In many different ways, as we explain: https://t.co/vqUOL5PBtc pic.twitter.com/tS2Xn8fiwe — National Cancer Institute (@theNCI) September 9, 2015 Sept 29 at 2pm ET: join our Twitter chat about #cancer side effects & […]
In 2008, Marlene King was diagnosed with ductal carcinoma. After treatment, the cancer seemed to be in remission, however in December 2011 the cancer returned in the same breast. She opted for a double mastectomy with expanders and implants. In late July 2012, she learned that her cancer had metastasized to her sternum, as well […]
Survivorship Champions is a program for all clinicians and researchers, both oncology and primary care, who are interested in improving survivorship care and primary care’s role in caring for cancer survivors.
The NCCS Cancer Policy & Advocacy Team (CPAT) is a program for survivors and caregivers to learn about pressing policy issues that affect quality cancer care in order to be engaged as advocates in public policy around the needs of cancer survivors.
NCCS represents the millions of Americans who share a common experience – living with, through and beyond a cancer diagnosis. By sharing your story of how you have been touched by cancer, you are supporting the national cancer survivorship movement.
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Founder
Northeast Regional Cancer Institute
“Perhaps one of the most impactful collaborations in Dr. Brereton’s extraordinary career remains his early work and long friendship with Ellen Stovall. Through him, and in turn through the thousands of lives he has touched, Ellen’s work continues, and her mission lives on.”
—Karen M. Saunders
President, Northeast Regional Cancer Institute