Tag Archive for: end of life

WCOE: New CMS Oncology Care Model Offers Hope, End of Life Planning, and ACA Questions Answered

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The new #Oncology Care Model offers #cancer patients the hope of better care. @canceradvocacy @CMSinnovates https://t.co/uQA76ALOG3 — Shelley Fuld Nasso (@sfuldnasso) February 13, 2015 "What Does It Mean?" commentary by @drdonsdizon via @ASCO https://t.co/mr83TSTiYe clarity in doctor/patient communication — NCCS – National Coalition for Cancer Survivorship (@CancerAdvocacy) February 12, 2015 #WhatMattersMost – To be able […]

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Being Mortal Is Far From Being Morbid: Responding to FRONTLINE’s Profile of Surgeon Atul Gawande and End of Life Care

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On public television stations nationwide, the award-winning FRONTLINE series aired a program on February 10th based on the work of noted surgeon and writer, Atul Gawande.  In addition to Gawande’s many clinical and surgical talents, he has the rare gift of writing articles and books for all of us, no matter what our level of […]

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WCOE: World Cancer Day, “Dying Shouldn’t Be So Brutal,” and More on Precision Medicine

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Hard for clinicians to give up old practices, even when new evidence reveals that those practices offer little value: https://t.co/n3vFLx199y — Peter Ubel (@peterubel) February 6, 2015 "Dying Shouldn't Be So Brutal" new @nytopinion series on End-of-Life that I will also be writing for–soon, I hope. https://t.co/xughvb75Lh — TheresaBrown (@TheresaBrown) February 3, 2015 https://twitter.com/LlyOncOnCanvas/status/563019956565331968 We […]

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WCOE: Obama takes on Precision Medicine, Palliative Care ≠ Hospice, Quantity and Quality of Life, CLRC News, Medicare Payment Reform, and Breast Cancer Patient Communication

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Don't miss President Obama speak on his #PrecisionMedicine Initiative at 11:10am ET → https://t.co/zcSZULoCno — White House OSTP 44 (@WHOSTP44) January 30, 2015 What is President Obama's 'precision medicine' plan, and how might it help you? https://t.co/T8sXHBGWm0 — Shelley Fuld Nasso (@sfuldnasso) January 30, 2015 Beautiful post by @drdonsdizon. Palliative care does not mean hospice […]

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Announcing a New Blog Series: “The Imperatives for Quality Cancer Care” 20 Years Later

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Read posts from the new blog series: “The Imperatives for Quality Cancer Care” 20 Years Later In 1995, NCCS published Imperatives for Quality Cancer Care: Access, Advocacy, Action, and Accountability (Imperatives), the culmination of an inclusive, community-based process.  Adopted at the First National Congress on Cancer Survivorship, the Imperatives represented the community’s first look at […]

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WCOE: New IOM Report, Control Issues, Tempting Treatment Options, and Patients ‘Right to Try’ New Drugs

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New IOM Report: Sharing Clinical Trial Data: Maximizing Benefits, Minimizing Risks https://t.co/neRjKfx8ma #datasharing — NASEM Health (@NASEM_Health) January 14, 2015 "Cancer survivors plagued by lack of personal control" https://t.co/9tRPQrbdzs via @reuters "a wish to return to 'normal'" — NCCS – National Coalition for Cancer Survivorship (@CancerAdvocacy) January 14, 2015 Doing More for Patients Often Does […]

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Guest Post: Forgotten Survivors—Supporting the Needs of Patients with Advanced Cancers

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Guest post by Lillie D. Shockney, RN, BS, MAS, Director of Johns Hopkins Breast Center and Cancer Survivorship Programs. On November 19, 2014, NCCS will present the Catherine Logan Award for Service to Survivorship to Lillie at the Focus on the Care evening reception in Washington, DC.  Though more and more cancer patients are being diagnosed […]

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WCOE: Brittany Maynard’s Death with Dignity, Election Results and the ACA, and Susan Gubar’s “Not Talking About Medical Mistakes”

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Brittany Maynard, a 29-year-old woman with brain cancer who became an advocate for the “death with dignity” movement took her life this week. Marcia Angell wrote about “The Brittany Maynard effect: How she is changing the debate on assisted dying” in The Washington Post, as did Sarah Kliff in “Brittany Maynard and the debate about […]

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WCOE: ACA Open Enrollment, Drug Prices and Innovation, Breast Cancer Awareness and More

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This week, several articles caught our eye: Amy Berman shared her own experience “Choosing Wisely” when she opted for a single dose of radiation therapy to alleviate pain from bone metastases, instead of a course of 10 treatments. The Kaiser Family Foundation reported that 89% of uninsured individuals polled are not aware that the next open […]

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WCOE: Elevating the Discussion on Living Well Until the End of Life

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What caught our eye this week was extensive coverage of Dr. Atul Gawande’s new book, Being Mortal: Medicine and what Matters in the End. In it, he examines end-of-life care in our country, and he weaves in personal stories from his own family and his patients, as well as interviews of hundreds of patients, families, […]

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